Adenoid Cystic Carcinoma Researchfoundation

Organization Overview

Adenoid Cystic Carcinoma Researchfoundation is located in Needham, MA. The organization was established in 2006. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2021, Adenoid Cystic Carcinoma Researchfoundation employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Adenoid Cystic Carcinoma Researchfoundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Adenoid Cystic Carcinoma Researchfoundation generated $2.4m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.5% each year. All expenses for the organization totaled $2.1m during the year ending 12/2021. While expenses have increased by 2.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Adenoid Cystic Carcinoma Researchfoundation has awarded 62 individual grants totaling $5,302,634. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

SUPPORTING RESEARCH INTO THE TREATMENT AND CURE OF ADENOID CYSTIC CARCINOMA.

Describe the Organization's Program Activity:

Part 3 - Line 4a

TRANSLATION TO THE CLINIC: ACCRF SUPPORTS AND COORDINATES RESEARCH INTO TREATMENTS MOST LIKELY TO LEAD TO CLINICAL BENEFIT FOR ADENOID CYSTIC CARCINOMA PATIENTS. DRUG DISCOVERY, DRUG DEVELOPMENT, PRECLINICAL DRUG SCREENING AND CORRELATIVE STUDIES ARE CRUCIAL TO THE INITIATION AND OPTIMAL CONDUCT OF CLINICAL TRIALS.


BASIC RESEARCH: ACCRF SUPPORTS AND COORDINATES THE DESCRIPTIVE AND FUNCTIONAL STUDIES THAT IDENTIFY THE MOLECULAR TARGETS AND PATHWAYS THAT PERMIT ADENOID CYSTIC CARCINOMA TO PROGRESS. BY FOCUSING ON THE MECHANISMS OF ACTION, RESEARCHERS MAY DISCOVER MORE QUICKLY THE ACHILLES' HEELS OF THE DISEASE.


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Board, Officers & Key Employees

Name (title)Compensation
Jeffrey A Kaufman
Executive Director/board Chair
$150,000
Nicole Spardy Burr
Director Of Research
$113,500
Thomas Dilenge
Board Vice Chair
$0
Ralph Mollis
Treasurer
$0
Bozho Todorich
Director
$0
Douglas Meyer
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$1,588,834
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,588,834
Total Program Service Revenue$837,896
Investment income $403
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,427,133

Grants Awarded

Over the last fiscal year, Adenoid Cystic Carcinoma Researchfoundation has awarded $439,967 in support to 5 organizations.

Grant RecipientAmount

Boston, MA

PURPOSE: SUPPORT FOR THE STUDY STEREOTACTIC BODY RADIOTHERAPY (SBRT) FOR EARLY TREATMENT OF OLIGOMETASTATIC ADENOID CYSTIC CARCINOMA: THE SOLAR TRIAL

$233,633

M D ANDERSON CANCER CENTER

PURPOSE: SUPPORT FOR THE STUDY AL101 PRIOR TO STANDARD-OF-CARE SURGERY IN PATIENTS WITH NOTCH ACTIVATED ADENOID CYSTIC CARCINOMA

$131,572

M D ANDERSON CANCER CENTER

PURPOSE: SUPPORT FOR THE STUDY IMAGING FEATURES AND NATURAL HISTORY OF METASTATIC ADENOID CYSTIC CARCINOMA

$25,000

Boston, MA

PURPOSE: SUPPORT THE STUDY OF EVALUATING COMBINATION TARGETED THERAPY FOR PATIENTS WITH VEGFR-REFRACTORY ADVANCED ADENOID CYSTIC CARCINOMA (ACC) USING EX VIVO PATIENT DERIVED CELL LINES (PDCL)

$25,000

UNIVERSITY OF NEW MEXICO

PURPOSE: SUPPORT FOR THE STUDY OF ACCRF BIOINFORMATICS PROJECT

$24,762
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Adenoid Cystic Carcinoma Researchfoundation has recieved totaling $1,000.

Awarding OrganizationAmount
Marion W & Walter J Minton Foundation Inc

Ponte Vedra Beach, FL

PURPOSE: CHARITABLE

$1,000
View Grant Recipient Profile

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