Turner Syndrome Society Of The United States
- Assets
- $549.6k
- Revenue
- $482.7k
- Investments
- $0.0
- Employees
- 3
- Location
- Houston, TX
- Founding
- 05/1988
- Data as of
- 12/2021
- EIN
- 41-1596910
Organization Overview
Turner Syndrome Society Of The United States is located in Houston, TX. The organization was established in 1988. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Turner Syndrome Society Of The United States employed 3 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Turner Syndrome Society Of The United States is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Turner Syndrome Society Of The United States generated $482.7k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (3.1%) each year. All expenses for the organization totaled $345.1k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (5.1%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TURNER SYNDROME SOCIETY OF THE UNITED STATES (TSSUS) ADVANCES KNOWLEDGE, FACILITATES RESEARCH AND PROVIDES SUPPORT FOR ALL PERSONS TOUCHED BY TURNER SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROGRAMS CONSIST OF ORGANZIING NATIONAL TURNER SYNDROME (TS) EVENTS FOR THOSE WITH TS AND THEIR FAMILIES, CREATING AND MAINTAINING TS CONTENT AND RESOURCES, CONNECTING PEOPLE TO INFORMATION, SUSTAINING THE TS RESEARCH REGISTRY AND PROFESSIONAL PROVIDER DIRECTORY, AND CREATING TS AWARENESS. IN 2021, TS SUPPORTED 2,500 INDIVIDUAL REQUESTS FOR HELP, 20 SUPPORT GROUPS, 84,000 UNIQUE WEBSITE VISITORS, 15,000 FACEBOOK FOLLOWERS, 500+ ATTENDEES OF 52 WEBINARS, 9 TS RESEARCH STUDIES, AND REACHED 75,000 PEOPLE DURING TS AWARENESS MONTH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Cindy C Scurlock President & CEO | Officer | 45 | $84,048 |
Brittani Ehrhorn Board Chair Elect | OfficerTrustee | 2 | $0 |
Carolyn Gibbs Treasurer | OfficerTrustee | 3 | $0 |
Nancy Bryant Board Chair | OfficerTrustee | 3 | $0 |
Jeff Hynes Director | Trustee | 2 | $0 |
Melissa Caulum Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $6,583 |
| Membership dues | $33,980 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $51,529 |
| All other contributions, gifts, grants, and similar amounts not included above | $379,691 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $471,783 |
| Total Program Service Revenue | $5,045 |
| Investment income | $18 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $5,545 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $482,741 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $1,500 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $84,048 |
| Compensation of current officers, directors, key employees. | $7,564 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $109,760 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $14,456 |
| Payroll taxes | $16,600 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $29,850 |
| Advertising and promotion | $32 |
| Office expenses | $26,694 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $12,600 |
| Travel | $78 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $3,469 |
| All other expenses | $0 |
| Total functional expenses | $345,098 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $272,562 |
| Savings and temporary cash investments | $274,379 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,661 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,000 |
| Total assets | $549,602 |
| Accounts payable and accrued expenses | $17,629 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $17,629 |
| Net assets without donor restrictions | $531,973 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $549,602 |
Grants Recieved
Over the last fiscal year, we have identified 9 grants that Turner Syndrome Society Of The United States has recieved totaling $27,900.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $12,709 |
St Louis Community Foundation Incorporated St Louis, MO PURPOSE: HEALTH ADVOCACY/EQUITY | $10,000 |
Risor Foundation Bedminster, NJ PURPOSE: HEALTH AND WELFARE | $2,500 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,370 |
Albemarle Foundation Charlotte, NC PURPOSE: PROGRAM ASSISTANCE | $103 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $100 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Easter Seals North Texas Inc Fort Worth, TX | $7,741,249 | $3,817,445 |
Arc Of St Charles Inc Boutte, LA | $2,824,257 | $4,270,363 |
Roy Gene & Pamela Evans Foundation Dallas, TX | $2,505,030 | $124,760 |
Perinatal Quality Foundation Oklahoma City, OK | $853,464 | $1,030,454 |
Childrens Craniofacial Association Dallas, TX | $1,729,152 | $1,442,509 |
Louisiana Hemophilia Foundation Baton Rouge, LA | $90,645 | $485,884 |
C F Solutions Inc Tulsa, OK | $468,647 | $136,859 |
Turner Syndrome Society Of The United States Houston, TX | $549,602 | $482,741 |
Myhre Syndrome Foundation Richardson, TX | $48,766 | $0 |
Sickle Cell Support Services Little Rock, AR | $0 | $0 |
Northeast La Sickle Cell Anemia Tech Resource Foundation Inc Monroe, LA | $167,371 | $97,574 |
Oklahoma Elks Major Project Inc Ada, OK | $484,515 | $0 |