Lumind Idsc Foundation
- Assets
- $4.5m
- Revenue
- $5.3m
- Investments
- $0.0
- Employees
- 14
- Location
- Burlington, MA
- Founding
- 03/2004
- Data as of
- 09/2021
- EIN
- 37-1483975
Organization Overview
Lumind Idsc Foundation is located in Burlington, MA. The organization was established in 2004. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2021, Lumind Idsc Foundation employed 14 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lumind Idsc Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2021, Lumind Idsc Foundation generated $5.3m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 13.2% each year . All expenses for the organization totaled $3.4m during the year ending 09/2021. While expenses have increased by 4.5% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Lumind Idsc Foundation has awarded 49 individual grants totaling $10,010,503. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
WE ACCELERATE RESEARCH TO INCREASE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC, AND MEDICAL CARE OPTIONS AND WE EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS, AND SUPPORT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME.
RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN COVID19, GENE THEREAPY, INDEPENDENCE, MEDICAL CARE AND REGULATORY.
COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COSTS RELATED TO LUMIND IDSC'S MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC).
DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME.
RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN COVID19, GENE THEREAPY, INDEPENDENCE, MEDICAL CARE AND REGULATORY.
COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COSTS RELATED TO LUMIND IDSC'S MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC).
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Hampus Hillerstrom President And CEO | OfficerTrustee | 40 | $278,723 |
Dr James Hendrix Chief Scientific Officer | Officer | 40 | $181,202 |
Michelle Petronio Chief Development Officer | 40 | $156,294 | |
Angella Britton Vice President, Clinical Operations | 40 | $105,250 | |
Anthony Providenti Member | OfficerTrustee | 1 | $0 |
Patrick Kannan Board Member Treasurer | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $324,071 |
| All other contributions, gifts, grants, and similar amounts not included above | $4,788,334 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $5,112,405 |
| Total Program Service Revenue | $0 |
| Investment income | $1,503 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $153,307 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,267,215 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,507,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $894,922 |
| Compensation of current officers, directors, key employees. | $50,411 |
| Compensation to disqualified persons | $151,944 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $39,516 |
| Other employee benefits | $101,441 |
| Payroll taxes | $91,629 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $89,251 |
| Fees for services: Accounting | $86,538 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $29,657 |
| Advertising and promotion | $22,218 |
| Office expenses | $50,961 |
| Information technology | $118,316 |
| Royalties | $0 |
| Occupancy | $45,088 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,118 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $65,582 |
| Insurance | $27,724 |
| All other expenses | $2,552 |
| Total functional expenses | $3,367,926 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $914,870 |
| Savings and temporary cash investments | $637,017 |
| Pledges and grants receivable | $2,655,533 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $34,321 |
| Net Land, buildings, and equipment | $216,053 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $29,420 |
| Total assets | $4,487,214 |
| Accounts payable and accrued expenses | $167,209 |
| Grants payable | $1,563,845 |
| Deferred revenue | $12,555 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $3,160 |
| Total liabilities | $1,746,769 |
| Net assets without donor restrictions | $832,028 |
| Net assets with donor restrictions | $1,908,417 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,487,214 |
Grants Awarded
Over the last fiscal year, Lumind Idsc Foundation has awarded $3,014,000 in support to 12 organizations.
| Grant Recipient | Amount |
|---|---|
DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTS PURPOSE: TO SUPPORT DOWN SYNDROME MEDICAL RESEARCH | $1,290,000 |
DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTS PURPOSE: TO SUPPORT DOWN SYNDROME MEDICAL RESEARCH | $1,290,000 |
UCONN HEALTH - PINTER PURPOSE: TO SUPPORT GENE THERAPY RESEARCH FOR DOWN SYNDROME | $100,000 |
UCONN HEALTH - PINTER PURPOSE: TO SUPPORT GENE THERAPY RESEARCH FOR DOWN SYNDROME | $100,000 |
DSC2U PURPOSE: TO SUPPORT DOWN SYNDROME MEDICAL INFORMATION | $45,000 |
DSC2U PURPOSE: TO SUPPORT DOWN SYNDROME MEDICAL INFORMATION | $45,000 |
Grants Recieved
Over the last fiscal year, we have identified 9 grants that Lumind Idsc Foundation has recieved totaling $100,039.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $61,667 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $17,694 |
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $10,000 |
Charities Aid Foundation America Alexandria, VA PURPOSE: CHARITABLE DONATION | $6,517 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,086 |
White Family Charitable Foundation Winnetka, IL PURPOSE: CHARITABLE | $1,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Lumind Idsc Foundation Burlington, MA | $4,487,214 | $5,267,215 |
Massachusetts Downs Syndrome Congress Inc Burlington, MA | $2,273,195 | $1,885,684 |
Down Syndrome Association Of Connecticut Inc New Britain, CT | $344,220 | $252,953 |
Pals Tours Syosset, NY | $114,123 | $0 |
Down Syndrome Society Of Rhode Island Inc West Warwick, RI | $133,822 | $58,575 |
Julias Way Inc Pembroke, MA | $20,133 | $0 |
Familiaupdown Boylston, MA | $196 | $0 |
Family And Friends Down Syndrome Association Of Niagara Inc Lewiston, NY | $13,769 | $0 |