Massachusetts Downs Syndrome Congress Inc
- Assets
- $2.3m
- Revenue
- $1.9m
- Investments
- $0.0
- Employees
- 14
- Location
- Burlington, MA
- Founding
- 06/1985
- Data as of
- 06/2021
- EIN
- 22-2596246
Organization Overview
Massachusetts Downs Syndrome Congress Inc is located in Burlington, MA. The organization was established in 1985. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2021, Massachusetts Downs Syndrome Congress Inc employed 14 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Massachusetts Downs Syndrome Congress Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2021, Massachusetts Downs Syndrome Congress Inc generated $1.9m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 5.9% each year. All expenses for the organization totaled $1.5m during the year ending 06/2021. While expenses have increased by 0.8% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO ENSURE INDIVIDUALS WITH DOWN SYNDROME IN MASSACHUSETTS ARE VALUED, INCLUDED, AND GIVEN THE OPPORTUNITIES TO PURSUE FULFILLING LIVES BY PROVIDING INFORMATION, NETWORKING OPPORTUNITIES, AND ADVOCACY FOR PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES, EDUCATORS, HEALTH CARE PROFESSIONALS, AND THE COMMUNITY-AT-LARGE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE MDSC ADVANCES THE UNDERSTANDING OF DOWN SYNDROME THROUGH IMPLEMENTING PUBLIC AWARENESS INITIATIVES THAT LEAD TO SYSTEMIC CHANGES THAT ENHANCE THE ABILITY FOR ALL INDIVIDUALS WITH DOWN SYNDROME TO HAVE MEANINGFUL FULFILLING LIVES IN THE COMMUNITY. OUR MAJOR PUBLIC AWARENESS AND EDUCATION PROGRAMS INCLUDE THE BUDDY WALK PROGRAM, YOUR NEXT STAR EMPLOYMENT CAMPAIGN, THE ANNUAL CONFERENCE, EDUCATORS FORUM, ADULT CONFERENCE, AND MEDICAL PROVIDER EDUCATION. IN FY21 OVER 6,200 PEOPLE PARTICIPATED IN AND BENEFITED FROM THESE PROGRAMS.
THE MDSC PROVIDES NETWORKING, SOCIAL/FRIENDSHIP OPPORTUNITIES, AND DIRECT SUPPORTS FOR ALL PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES ACROSS MASSACHUSETTS. THROUGH OUR NATIONALLY RECOGNIZED PARENTS FIRST CALL PROGRAM, ADVOCATES IN MOTION TEEN AND YOUNG ADULT PROGRAM, ALLEN CROCKER SELF-ADVOCATE INTERN PROGRAM, DADS APPRECIATING DOWN SYNDROME, DOWN SYNDROME AUTISM CONNECTION, SERVICES FOR FAMILIES WHO HAVE CHILDREN WITH SPECIAL HEALTH CARE NEEDS, DIVERSITY OUTREACH PROGRAM, SUPPORT GROUP LEADER RETREAT, AND A VARIETY OF OTHER SOCIAL RECREATION PROGRAMS THE MDSC PROVIDED DIRECT SUPPORT TO OVER 4,500 INDIVIDUALS IN FY21.
THE MDSC ADVANCES THE UNDERSTANDING OF DOWN SYNDROME THROUGH IMPLEMENTING PUBLIC AWARENESS INITIATIVES THAT LEAD TO SYSTEMIC CHANGES THAT ENHANCE THE ABILITY FOR ALL INDIVIDUALS WITH DOWN SYNDROME TO HAVE MEANINGFUL FULFILLING LIVES IN THE COMMUNITY. OUR MAJOR PUBLIC AWARENESS AND EDUCATION PROGRAMS INCLUDE THE BUDDY WALK PROGRAM, YOUR NEXT STAR EMPLOYMENT CAMPAIGN, THE ANNUAL CONFERENCE, EDUCATORS FORUM, ADULT CONFERENCE, AND MEDICAL PROVIDER EDUCATION. IN FY21 OVER 6,200 PEOPLE PARTICIPATED IN AND BENEFITED FROM THESE PROGRAMS.
THE MDSC PROVIDES NETWORKING, SOCIAL/FRIENDSHIP OPPORTUNITIES, AND DIRECT SUPPORTS FOR ALL PEOPLE WITH DOWN SYNDROME AND THEIR FAMILIES ACROSS MASSACHUSETTS. THROUGH OUR NATIONALLY RECOGNIZED PARENTS FIRST CALL PROGRAM, ADVOCATES IN MOTION TEEN AND YOUNG ADULT PROGRAM, ALLEN CROCKER SELF-ADVOCATE INTERN PROGRAM, DADS APPRECIATING DOWN SYNDROME, DOWN SYNDROME AUTISM CONNECTION, SERVICES FOR FAMILIES WHO HAVE CHILDREN WITH SPECIAL HEALTH CARE NEEDS, DIVERSITY OUTREACH PROGRAM, SUPPORT GROUP LEADER RETREAT, AND A VARIETY OF OTHER SOCIAL RECREATION PROGRAMS THE MDSC PROVIDED DIRECT SUPPORT TO OVER 4,500 INDIVIDUALS IN FY21.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Maureen Gallagher Executive Director | Officer | 40 | $137,341 |
Joshua Komyerov Communications & Op Director | 40 | $108,412 | |
Richard Downey Vice Chair Of The Board | OfficerTrustee | 2 | $0 |
Judson Decew Chair Of Board, Personnel Committee Chair | OfficerTrustee | 2 | $0 |
James Molla Chair Of Audit And Finance Committee | OfficerTrustee | 2 | $0 |
Margaret Pulsifer Governance Committee Chair | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $1,845 |
| Fundraising events | $702,461 |
| Related organizations | $0 |
| Government grants | $339,778 |
| All other contributions, gifts, grants, and similar amounts not included above | $796,212 |
| Noncash contributions included in lines 1a–1f | $116,520 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,840,296 |
| Total Program Service Revenue | $62,211 |
| Investment income | $4,169 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,810 |
| Net Income from Fundraising Events | -$22,951 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $149 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,885,684 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $8,500 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $134,571 |
| Compensation of current officers, directors, key employees. | $6,767 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $584,627 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $187,661 |
| Payroll taxes | $60,662 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $37,628 |
| Fees for services: Lobbying | $48,325 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $36 |
| Fees for services: Other | $65,617 |
| Advertising and promotion | $4,158 |
| Office expenses | $29,048 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $52,080 |
| Travel | $2,453 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $45,022 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $775 |
| Insurance | $8,325 |
| All other expenses | $61,957 |
| Total functional expenses | $1,523,881 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $699,317 |
| Savings and temporary cash investments | $688,326 |
| Pledges and grants receivable | $58,269 |
| Accounts receivable, net | $174,998 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $31,893 |
| Net Land, buildings, and equipment | $40,950 |
| Investments—publicly traded securities | $579,442 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,273,195 |
| Accounts payable and accrued expenses | $71,968 |
| Grants payable | $0 |
| Deferred revenue | $35,403 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $149,900 |
| Unsecured mortgages and notes payable | $168,862 |
| Other liabilities | $0 |
| Total liabilities | $426,133 |
| Net assets without donor restrictions | $1,260,202 |
| Net assets with donor restrictions | $586,860 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,273,195 |
Grants Awarded
Over the last fiscal year, Massachusetts Downs Syndrome Congress Inc has awarded $13,822 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Washington, DC PURPOSE: TO HELP SUPPORT THE NATIONAL ORGANIZATION FOR DOWN SYNDROME. | $13,822 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Massachusetts Downs Syndrome Congress Inc has recieved totaling $2,503,000.
| Awarding Organization | Amount |
|---|---|
Richard K And Nancy L Donahue Charitable Foundation Lowell, MA PURPOSE: UNRESTRICTED | $2,500,000 |
Institution For Savings In Newbrypt & Its Vcnty Chrtble Foundation Inc Newburyport, MA PURPOSE: EXEMPT PURPOSE | $2,500 |
Cecelias Adventures Inc Attleboro, MA PURPOSE: TO SUPPORT THE ORGANIZATIONS MISSION STATEMENT. | $500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Lumind Idsc Foundation Burlington, MA | $4,487,214 | $5,267,215 |
Massachusetts Downs Syndrome Congress Inc Burlington, MA | $2,273,195 | $1,885,684 |
Down Syndrome Association Of Connecticut Inc New Britain, CT | $344,220 | $252,953 |
Pals Tours Syosset, NY | $114,123 | $0 |
Down Syndrome Society Of Rhode Island Inc West Warwick, RI | $133,822 | $58,575 |
Julias Way Inc Pembroke, MA | $20,133 | $0 |
Familiaupdown Boylston, MA | $196 | $0 |
Family And Friends Down Syndrome Association Of Niagara Inc Lewiston, NY | $13,769 | $0 |