National Spasmodic Torticollis Association
- Assets
- $146.7k
- Revenue
- $411.7k
- Investments
- $0.0
- Employees
- 2
- Location
- Fountain Valley, CA
- Founding
- 07/2000
- Data as of
- 09/2022
- EIN
- 33-0879421
Organization Overview
National Spasmodic Torticollis Association, operating under the name Association, is located in Fountain Valley, CA. The organization was established in 2000. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2022, Association employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2022, Association generated $411.7k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 23.6% each year . All expenses for the organization totaled $183.5k during the year ending 09/2022. While expenses have increased by 1.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE NSTA IS TO SUPPORT THE NEEDS AND WELL BEING OF AFFECTED INDIVIDUALS AND FAMILIES;TO PROMOTE AWARENESS AND EDUCATION; TO ADVANCE RESEARCH FOR MORE TREATMENTS AND ULTIMATELY A CURE.
Describe the Organization's Program Activity:
PEOPLE WHO RECEIVE THE ST QUARTERLY MAGAZINE USE IT AS A CONTINUOUS SOURCE OF UP-TO-DATE INFORMATION REGARDING SPASMODIC TORTICOLLIS. FROM THE INFORMATION THEY LEARN THROUGH THE ARTICLES WRITTEN BY MEDICAL PROFESSIONALS AND PEOPLE INFLICTED WITH ST, THEY ARE ABLE TO COMMUNICATE CLEARLY WITH THE MEDICAL PROFESSIONALS INVOLVED WITH THEIR HEALTHCARE. IN ADDITION TO INFORMATION, READERS ARE USING THE MAGAZINE AS A SOURCE OF EMOTIONAL SUPPORT. THEY TAKE COMFORT KNOWING THERE ARE PEOPLE WHO UNDERSTAND WHAT THEY ARE GOING THROUGH AND THERE IS A PLACE TO CONTACT IF THEY SHOULD EVER NEED INFORMATION OR SUPPORT.
RESEARCH
PROVIDED EMAIL SUPPORT TO PEOPLE INQUIRING INFORMATION ON SPASMODIC TORTICOLLIS. PROVIDE INFORMATION ON YOUTUBE, FACEBOOK, & NSTA WEBSITE ABOUT THE CONDITION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Justin Aquines Treasurer | Officer | 0 | $0 |
Kenneth Price Treasurer | Officer | 0 | $0 |
Sandra Levine Secretary | Officer | 0 | $0 |
Mark Ledoux Chairman | Officer | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $405,456 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $6,192 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $411,648 |
| Total Program Service Revenue | $0 |
| Investment income | $22 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $411,670 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $122,359 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $8 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $61,135 |
| Total functional expenses | $183,502 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $145,590 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $1,083 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $146,673 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $146,673 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $146,673 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that National Spasmodic Torticollis Association has recieved totaling $10,267.
| Awarding Organization | Amount |
|---|---|
Abbvie Foundation North Chicago, IL PURPOSE: GENERAL MISSION | $10,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $267 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Amyotrophic Lateral Sclerosis Association Woodland Hills, CA | $12,004,045 | $10,468,130 |
Amyotrophic Lateral Sclerosis Association Portland, OR | $3,939,845 | $4,368,601 |
Joint Electrical Industry Fund San Jose, CA | $5,316,972 | $2,015,967 |
Adult & Pediatric Spine Research Foundation Inc San Anselmo, CA | $9,464,891 | $173,934 |
Amyotrophic Lateral Sclerosis Association Phoenix, AZ | $1,551,685 | $1,483,680 |
Amyotrophic Lateral Sclerosis Association Citrus Heights, CA | $1,088,166 | $1,260,833 |
Amyotrophic Lateral Sclerosis Association Oceanside, CA | $0 | $2,138,341 |
Parkinsons Resources Of Oregon Beaverton, OR | $3,158,996 | $1,166,467 |
Road 2 Recovery Foundation Poway, CA | $2,785,803 | $1,723,214 |
Southern California Joint Pole Committee San Dimas, CA | $374,552 | $956,754 |
Personal Enrichment Program Inc Venice, CA | $143,594 | $802,209 |
Sup Joint Employment Committee Trust San Francisco, CA | $101,954 | $709,109 |