Amyotrophic Lateral Sclerosis Association
- Assets
- $1.6m
- Revenue
- $1.5m
- Investments
- $0.0
- Employees
- 0
- Location
- Phoenix, AZ
- Founding
- 07/1990
- Data as of
- 01/2022
- EIN
- 86-0727136
Organization Overview
Amyotrophic Lateral Sclerosis Association is located in Phoenix, AZ. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Amyotrophic Lateral Sclerosis Association generated $1.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 3.9% each year. All expenses for the organization totaled $1.3m during the year ending 01/2022. While expenses have increased by 2.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE EDUCATION, PATIENT ASSISTANCE, AND RESEARCH IN THE TREATMENT OF ALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ALS ASSOCIATION ARIZONA CHAPTER, A 501(C)(3) NON-PROFIT ORGANIZATION IS THE ONLY STATEWIDE VOLUNTARY HEALTH ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST AMYOTROPHIC LATERAL SCLEROSIS, PROVIDING COMPREHENSIVE PATIENT SERVICES AND SUPPORT TO ARIZONA'S ALS COMMUNITY. WE ARE COMPASSIONATE, COMMITTED, AND RELENTLESS IN THE FIGHT TO DEFEAT ALS. SINCE 1991 WE HAVE IMPLEMENTED CRITICAL ASSISTANCE FOR MORE THAN 3,500 PATIENTS AND THEIR FAMILIES AT EVERY STAGE OF THE DISEASE BY OFFERING DISEASE EDUCATION, PATIENT CARE MANAGEMENT, A MEDICAL EQUIPMENT LOAN PROGRAM, TRANSPORTATION, AND MULTIDISCIPLINARY ALS CLINICS. THE ARIZONA CHAPTER ALSO RECOGNIZES THAT ALS AFFECTS THE ENTIRE FAMILY AND OFFERS SUPPORT THROUGH SPECIALIZED SUPPORT GROUPS, FAMILY COUNSELING, RESPITE CARE, A YOUTH PROGRAM, AND ADAPTIVE RECREATION ACTIVITIES, ENABLING EACH FAMILY TO LIVE LIFE TO THE FULLEST.EVERY YEAR, OUR NATIONAL ORGANIZATION INVESTS MILLIONS OF DOLLARS IN RESEARCH CONDUCTED BY THE BEST AND BRIGHTEST SCIENTISTS IN THE WORLD. BECAUSE OF THE SUPPORT OF INDIVIDUALS, FOUNDATIONS, AND CORPORATE PARTNERS WE CAN CONTINUE TO GIVE HELP AND HOPE TO THOSE FACING THIS DEVASTATING DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Taryn Norley President & CEO | OfficerTrustee | 40 | $118,463 |
Robert Meyncke Chair | OfficerTrustee | 1 | $0 |
Robert Bowser Vice Chair | OfficerTrustee | 1 | $0 |
Dan Roder Treasurer | OfficerTrustee | 1 | $0 |
Cindy Ketcherside Director | Trustee | 1 | $0 |
Beau Baukol Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $65,311 |
| Membership dues | $0 |
| Fundraising events | $857,919 |
| Related organizations | $0 |
| Government grants | $192,925 |
| All other contributions, gifts, grants, and similar amounts not included above | $525,565 |
| Noncash contributions included in lines 1a–1f | $93,832 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,641,720 |
| Total Program Service Revenue | $0 |
| Investment income | $498 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$158,538 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,483,680 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $118,463 |
| Compensation of current officers, directors, key employees. | $5,923 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $387,596 |
| Pension plan accruals and contributions | $15,278 |
| Other employee benefits | $43,458 |
| Payroll taxes | $42,517 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $34,394 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $132,375 |
| Advertising and promotion | $6,313 |
| Office expenses | $36,369 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $72,994 |
| Travel | $18,328 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $203,890 |
| Depreciation, depletion, and amortization | $6,481 |
| Insurance | $2,265 |
| All other expenses | $10,219 |
| Total functional expenses | $1,270,330 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $681,117 |
| Savings and temporary cash investments | $847,983 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,960 |
| Net Land, buildings, and equipment | $15,126 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $3,499 |
| Total assets | $1,551,685 |
| Accounts payable and accrued expenses | $86,708 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $110,803 |
| Total liabilities | $197,511 |
| Net assets without donor restrictions | $1,303,630 |
| Net assets with donor restrictions | $50,544 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,551,685 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $128,677.
| Awarding Organization | Amount |
|---|---|
Bhhs Legacy Foundation Phoenix, AZ PURPOSE: Lessons from a Pandemic | $75,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $20,669 |
Bhhs Legacy Foundation Phoenix, AZ PURPOSE: General Operations | $20,000 |
Charro Foundation Scottsdale, AZ PURPOSE: CIVIC | $10,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,958 |
Brown Foundation Inc Houston, TX PURPOSE: IN MEMORY OF SALLY LOUISE HATFIELD | $1,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Amyotrophic Lateral Sclerosis Association Woodland Hills, CA | $12,004,045 | $10,468,130 |
Joint Electrical Industry Fund San Jose, CA | $5,316,972 | $2,015,967 |
Adult & Pediatric Spine Research Foundation Inc San Anselmo, CA | $9,464,891 | $173,934 |
Amyotrophic Lateral Sclerosis Association Phoenix, AZ | $1,551,685 | $1,483,680 |
Amyotrophic Lateral Sclerosis Association Citrus Heights, CA | $1,088,166 | $1,260,833 |
Amyotrophic Lateral Sclerosis Association Oceanside, CA | $0 | $2,138,341 |
Road 2 Recovery Foundation Poway, CA | $2,785,803 | $1,723,214 |
Southern California Joint Pole Committee San Dimas, CA | $374,552 | $956,754 |
Personal Enrichment Program Inc Venice, CA | $143,594 | $802,209 |
Parkinson Association Of The Rockies Denver, CO | $907,707 | $1,027,994 |
Amyotrophic Lateral Sclerosis Association Albuquerque, NM | $976,620 | $950,547 |
National Academy Of Neuropsychology Inc Denver, CO | $5,563,124 | $1,143,560 |