Southwestern Ohio Hemophilia Foundation

Organization Overview

Southwestern Ohio Hemophilia Foundation is located in Dayton, OH. The organization was established in 1997. As of 12/2023, Southwestern Ohio Hemophilia Foundation employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Southwestern Ohio Hemophilia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2023, Southwestern Ohio Hemophilia Foundation generated $152.6k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (4.4%) each year. All expenses for the organization totaled $167.2k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2023

Describe the Organization's Mission:

Part 3 - Line 1

THE ORGANIZATION HELPS IMPROVE THE QUALITY OF LIFE FOR THOSE AFFECTED BY HEMOPHILIA, VON WILLEBRAND DISEASE, AND OTHER BLEEDING DISORDERS BY PROVIDING SUPPORT, EDUCATION, NETWORKING, ADVOCACY AND SERVICES TO INDIVIDUALS, THEIR FAMILIES AND THE COMMUNITY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

IMPROVE THE QUALITY OF LIFE FOR THOSE AFFECTED BY HEMOPHILIA, VON WILLEBRAND DISEASE, AND OTHER BLEEDING DISORDERS BY PROVIDING SUPPORT, EDUCATION, NETWORKING, ADVOCACY AND SERVICES TO INDIVIDUALS, THEIR FAMILIES AND THE COMMUNITY


PROGRAM ACTIVITIES INCLUDE AN ANNUAL BUSINESS MEETING WITH REVIEW OF FINANCIAL REPORTS, A BOARD PRESIDENT REPORT TO THE ORGANIZATION, AN UPDATE FROM THE DAYTON CHILDREN'S HEMOPHILIA TREATMENT CENTER, AS WELL AS INFORMATION REGARDING LEGISLATION PRESENTED BY THE OHIO BLEEDING DISORDERS COUNCIL REPRESENTATIVE. THIS MEETING ALSO RECOGNIZES OUR EVENT VOLUNTEERS (TOTAL 24 IN 2023). IN THE SUMMER, WE PRESENTED OUR ANNUAL FAMILY FEST AT A DOWNTOWN DAYTON EVENT VENUE AND SAW INCREASED PARTICIPATION. THIS IS A FAMILY-CENTERED WEEKEND FILLED WITH EDUCATIONAL SEMINARS, INSPIRATIONAL SPEAKERS AND FAMILY ACTIVITES. WE SERVED 16 FAMILIES (OVER 60 INDIVIDUALS) AT THIS EVENT. FALL OUTING IS A PROGRAM THAT ENCOURAGES NETWORKING, COMMUNICATION AND CONNECTION IN CONTEXT OF FUN FAMILY ACTIVITIES. WE SERVED 54 FAMILIES (OVER 225 INDIVIDUALS) AT THIS EVENT, PROVIDING UPDATES ON RECENT ADVANCEMENTS IN CARE AND TREATMENT OF BLEEDING DISORDERS, AS WELL AS NEW THERAPIES / RESOURCES. IN THE FALL, WE ALSO PRESENTED A ONE-DAY WOMEN'S WORKSHOP TO PROVIDE A FUN, RELAXED NETWORKING OPPORTUNITY AND REINFORCE THE IMPORTANCE OF SELF-CARE AND FRIENDSHIPS AMONG OVER 45 WOMEN PATIENTS / CAREGIVERS WHO ATTENDED. LASTLY IN 2023, IN COOPERATION WITH THE DAYTON CHILDREN'S HTC, WE ADDED A DINNER EVENT FOR NEWLY DIAGNOSED FAMILIES. THE PURPOSE OF THE PROGRAM WAS TO PROVIDE INFORMATION ABOUT SWOHF PROGRAMS AND SUPPORT; ADDITIONALLY, WE PAIRED ALL NEW FAMILIES WITH ANOTHER FAMILY WITH OLDER CHILDREN TO ENABLE CONVERSATIONS, MENTORING AND ENCOURAGEMENT FOR THOSE EXPERIENCING THE CHALLENGES OF LIVING WITH A BLEEDING DISORDERS DIAGNOSIS.


NEWSLETTER - SWOHF PROVIDES RELEVANT INFORMATION TO THE BLOOD DISORDER COMMUNITY, DONORS AND OTHER INTERESTED PARTIES ABOUT FOUNDATION ACTIVITIES, TREATMENT ADVANCES AND CURRENT EVENTS, LEGISLATION AND AVAILABLE RESOURCES.


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Board, Officers & Key Employees

Name (title)Compensation
Lindsay Carlson
President
$0
Debra Smith
Secretary
$0
Katie Mullins
Board Member
$0
Dena Shepard
Vice-President
$0
Dick Miller
Board Member
$0
Sandra Hibner
Interim Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$2,514
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$50,035
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$52,549
Total Program Service Revenue$89,030
Investment income $4,275
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $6,726
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $152,580

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