Amyotrophic Lateral Sclerosis Association

Organization Overview

Amyotrophic Lateral Sclerosis Association, operating under the name The Als Association Iowa Chapter, is located in West Des Moines, IA. The organization was established in 1990. According to its NTEE Classification (P50) the organization is classified as: Personal Social Services, under the broad grouping of Human Services and related organizations. As of 01/2022, Als Association Iowa Chapter employed 7 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Als Association Iowa Chapter is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 01/2022, Als Association Iowa Chapter generated $1.2m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.8% each year. All expenses for the organization totaled $851.7k during the year ending 01/2022. While expenses have increased by 4.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.

Describe the Organization's Program Activity:

Part 3 - Line 4a

PROGRAM SERVICE COORDINATION AND PUBLIC EDUCATION. OUR PATIENT SERVICES COORDINATORS ARE TRAINED PROFESSIONAL SOCIAL WORKERS WHO PROVIDE ALL OF OUR CHAPTER'S SUPPORT SERVICES TO IOWANS AFFECTED BY ALS. THEY PROVIDE INFORMATION AND REFERRAL SERVICES, FACILITATE SUPPORT GROUPS, MANAGE DURABLE MEDICAL EQUIPMENT PROGRAM AND PROVIDE EDUCATION TO HEALTHCARE PROVIDERS AND FAMILIES. OUR PATIENT SERVICES COORDINATORS SERVE THE PART OF OUR MISSION TO PROVIDE COMPASSIONATE CARE AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY LOU GEHRIG'S DISEASE.


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Board, Officers & Key Employees

Name (title)Compensation
Josh Nuss
Executive Director
$100,634
David Ling
President
$0
Nick Finkenauer
Vice President
$0
Kevin Diehl
Treasurer
$0
Judie Wilson
Secretary
$0
Sarah Steinkamp Bull
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$361,999
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$849,501
Noncash contributions included in lines 1a–1f $15,000
Total Revenue from Contributions, Gifts, Grants & Similar$1,211,500
Total Program Service Revenue$0
Investment income $3,299
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,214,799

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $42,126.

Awarding OrganizationAmount
American Endowment Foundation

Hudson, OH

PURPOSE: HUMAN SERVICE

$14,700
Greater Cedar Rapids Community Foundation

Cedar Rapids, IA

PURPOSE: ALS ASSOCIATION IOWA EQUIPMENT LOAN PROGRAM - 138308

$10,000
Prairie Meadows Race Track & Casino Inc

Altoona, IA

PURPOSE: Quality of Life Grant and Walk to Defeat ALS

$10,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$5,880
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$1,046
Alliant Energy Foundation Inc

Madison, WI

PURPOSE: MATCHING GIFTS

$500
View Grant Recipient Profile

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