Rocky Mountain Rett Association
- Assets
- $517.4k
- Revenue
- $323.1k
- Investments
- $0.0
- Employees
- 0
- Location
- Morrison, CO
- Founding
- 06/2009
- Data as of
- 12/2021
- EIN
- 26-4698552
Organization Overview
Rocky Mountain Rett Association is located in Morrison, CO. The organization was established in 2009. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rocky Mountain Rett Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Rocky Mountain Rett Association generated $323.1k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 13.5% each year . All expenses for the organization totaled $101.6k during the year ending 12/2021. While expenses have increased by 3.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
RMRA IS ORGANIZED FOR THE PRIMARY PURPOSE OF FUNDING RESEARCH FOR THEDEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2DISORDERS. WE ALSO PROMOTE OTHER RELATED ACTIVITES THAT PROVIDE SUPPORT AND ADVOCACY TO AREA FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION FUNDS THE RETT SYNDROME RESEARCH TRUST (RSRT) AND INTERNATIONAL RETT SYNDROME FOUNDATION (IRSF) TO ADDRESS THE NEEDS OF FAMILIES AND TO FACILITATE TREATMENT AND RESEARCH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Justin Allen Vice President | OfficerTrustee | 1 | $0 |
Celeste Spiers Treasurer | OfficerTrustee | 3 | $0 |
Heidi Hedges Greenall Secretary | OfficerTrustee | 5 | $0 |
Jim Schroath President | OfficerTrustee | 5 | $0 |
Sierra Gilbride Treasurer | OfficerTrustee | 10 | $0 |
Richard Hill Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $384,967 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $105,104 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $490,071 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$166,931 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $323,140 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $50,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,440 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $308 |
| Information technology | $632 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $644 |
| All other expenses | $1,477 |
| Total functional expenses | $101,587 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $517,437 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $517,437 |
| Accounts payable and accrued expenses | $444 |
| Grants payable | $0 |
| Deferred revenue | $44,500 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $44,944 |
| Net assets without donor restrictions | $472,493 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $517,437 |
Grants Awarded
Over the last fiscal year, Rocky Mountain Rett Association has awarded $50,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Cincinnati, OH PURPOSE: TO ADDRESS THE NEEDS OF FAMILIES AND TO FACILITATE TREATMENT AND RESEARCH | $40,000 |
Trumbull, CT PURPOSE: TO ADDRESS THE NEEDS OF FAMILIES AND TO FACILITATE TREATMENT AND RESEARCH | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Rocky Mountain Rett Association has recieved totaling $55,344.
| Awarding Organization | Amount |
|---|---|
Community First Foundation Arvada, CO PURPOSE: GENERAL PURPOSE | $30,556 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $19,437 |
The Hackstock Family Foundaton Englewood, CO PURPOSE: MEDICAL SUPPORT | $5,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $351 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Sanford P & Irene F Burnstein Charitable Foundation Tulsa, OK | $81,529,191 | $9,320,612 |
Chi St Josephs Children Albuquerque, NM | $107,979,051 | $7,915,838 |
House Of Hope Salt Lake City, UT | $7,458,316 | $5,889,523 |
Childrens Diabetes Foundation Aurora, CO | $11,044,936 | $4,262,841 |
Hoy Recovery Program Inc Espanola, NM | $1,722,107 | $2,184,561 |
Developmental Fx-The Developmental & Fragile X Resource Centre Denver, CO | $641,864 | $1,207,245 |
National Veterans Wellness And Healing Center In Angel Fire Inc Angel Fire, NM | $693,143 | $411,592 |
Franklin L Burns Foundation Centennial, CO | $0 | $56 |
American Society Of Parasitologists Inc Placitas, NM | $765,089 | $221,481 |
Houses With Hope Inc Farmington, NM | $137,505 | $235,186 |
Diabetes Solutions Ok Inc Oklahoma City, OK | $187,398 | $337,041 |
Kawasaki Kids Foundation Windsor, CO | $122,388 | $255,852 |