Afe Foundation

THE AFE FOUNDATION IS THE LEADING EXPERT IN EDUCATION AND RESEARCH AND THE LARGEST SUPPORT ORGANIZATION FOR IMPACTED FAMILIES AND HEALTHCARE WORKERS AROUND THE WORLD WITH A MISSION TO REDUCE MORTALITY ATTRIBUTED TO AFE.

THE AMNIOTIC FLUID EMBOLISM FOUNDATION, A NON-PROFIT ORGANIZATION FOUNDED IN 2008, QUICKLY UNITED THE VOICES OF FAMILIES, SURVIVORS, MEDICAL PROFESSIONALS AND RESEARCHERS TO CALL FOR GREATER AWARENESS AND RESOURCES TO REDUCE THE THREAT OF AMNIOTIC FLUID EMBOLISM (AFE). OUR COLLECTIVE EFFORTS HAVE RESULTED IN AN INTERNATIONALLY RECOGNIZED RESEARCH PROGRAM ON AFE, HIGHLY SOUGHT AFTER EDUCATIONAL PROGRAMMING FOR HEALTHCARE PROVIDERS, AND A WORLDWIDE NETWORK OF SUPPORT GROUPS AND RESOURCES FOR THOSE IMPACTED BY AN AFE. WE ARE COMMITTED TO IDENTIFYING THE CAUSE, DIAGNOSIS, PREVENTION, AND TREATMENT OF AMNIOTIC FLUID EMBOLISM AND BRING OUR INFORMATION AND RESOURCES TO HEALTHCARE PROVIDERS AND IMPACTED FAMILIES THROUGH OUR EDUCATION AND SUPPORT PROGRAMS.WE ALSO STRIVE TO BE THE LIGHT GUIDING THOSE IMPACTED BY AN AFE THROUGH THEIR PHYSICAL AND EMOTIONAL RECOVERY AS THEY NAVIGATE THEIR WAY FORWARD. BEFORE THE AFE FOUNDATION WAS FOUNDED, FAMILIES AND HEALTHCARE PROVIDERS IMPACTED BY AN AFE HAD NOWHERE TO TURN FOR INFORMATION AND SUPPORT, LEFT IN THE DARK ABOUT THEIR EXPERIENCE AND HOW TO MOVE FORWARD. SINCE TURNING ON OUR LIGHTS AND SHINING OUR EFFORTS INTO UNDERSTANDING THIS RARE CONDITION, WEVE HELPED TENS OF THOUSANDS OF PEOPLE GAIN KNOWLEDGE, UNDERSTANDING, AND SUPPORT THROUGH SOME OF THEIR DARKEST DAYS. WE WILL CONTINUE TO BE THE LIGHT AS LONG AS IT TAKES TO END AFE. THE AFE FOUNDATION IS THE ONLY ORGANIZATION DEDICATED TO AMNIOTIC FLUID EMBOLISM (AFE), A LIFE-THREATENING BIRTH COMPLICATION THAT REMAINS A LEADING CAUSE OF MATERNAL DEATH AND SUFFERING IN THE UNITED STATES AND ABROAD. THE AFE FOUNDATION IS PROUD TO UNDERWRITE THE AMNIOTIC FLUID EMBOLISM REGISTRY AND BIOSPECIMEN REPOSITORY IN COLLABORATION WITH RESEARCHERS FROM UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER, WAYNE STATE UNIVERSITY, AND THE PERINATOLOGY RESEARCH BRANCH OF THE NATIONAL INSTITUTE OF HEALTH. THE REGISTRY AND BIOREPOSITORY ALLOW RESEARCHERS GREATER INSIGHT INTO THE INDIVIDUAL CASES OF AFE. THE BIOREPOSITORY HOLDS SPECIMENS WHICH WILL BE USED IN VARIOUS PROTEOMIC AND GENOMIC STUDIES. SEVERAL SCIENTIFIC ABSTRACTS, PAPERS AND OPINIONS BASED ON DATA FROM THE REGISTRY HAVE BEEN PUBLISHED IN MEDICAL JOURNALS IN THE AREAS OF CRITICAL CARE OBSTETRICS AND GYNECOLOGY. THE AFE FOUNDATION CONTINUES TO BE A LEADING PATIENT ADVOCACY ORGANIZATION AND HOLDS MULTIPLE BOARD POSITIONS IN INFLUENTIAL MATERNAL HEALTH AND PATIENT SAFETY AND QUALITY INSTITUTIONS AND ASSOCIATIONS; MOST NOTABLY, THE CDC PARTNERSHIP FOR REDUCING MATERNAL MORTALITY AND MORBIDITY, THE CALIFORNIA MATERNAL QUALITY CARE COLLABORATIVE (CMQCC), INSTITUTE FOR PERINATAL QUALITY IMPROVEMENT, OBSTETRIC LIFE SUPPORT STUDY, AND PREGNANCY ASSOCIATED MORTALITY REVIEW FOR THE STATE OF CA, AND MOMMAS VOICES, A COALITION OF PATIENT ADVOCACY ORGANIZATIONS AND INDIVIDUALS FOCUSED ON MATERNAL MORTALITY AND MORBIDITY IN THE UNITED STATES. THE FOUNDATION CONTINUES TO PROMOTE EDUCATION AMONG THE MANY DISCIPLINES IN LABOR AND DELIVERY. OVER 10,000 CLINICIANS HAVE RECEIVED DIRECT EDUCATION FROM THE AFE FOUNDATION THROUGH LECTURES, SYMPOSIUMS, PANELS, WEBINARS, AND PUBLICATIONS. IN 2021, APPROXIMATELY 1,500 FAMILIES RECEIVED DIRECT SUPPORT FROM THE ORGANIZATION TO ASSIST WITH PHYSICAL, EMOTIONAL, AND FINANCIAL HARDSHIPS ASSOCIATED WITH EXPERIENCING AN AMNIOTIC FLUID EMBOLISM. THE AFE FOUNDATION CONTINUES TO BE THE PRIMARY SOURCE OF ACCURATE AND RELIABLE INFORMATION FOR PATIENTS, THEIR FAMILIES, AND CLINICIANS AROUND THE WORLD. WITH WEBSITE VISITS OVER 100,000 A YEAR IN OVER 50 COUNTRIES, IT REMAINS THE GREATEST SOURCE OF GLOBAL AWARENESS AND EDUCATION OF AFE. MORE DETAILED INFORMATION ABOUT PROGRAMS AND SERVICES CAN BE FOUND ON OUR WEBSITE AT WWW.AFESUPPORT.ORG.