Cleft Palate Foundation
- Assets
- $1.2m
- Revenue
- $244.0k
- Investments
- $0.0
- Employees
- 3
- Location
- Chapel Hill, NC
- Founding
- Data as of
- 06/2016
- EIN
- 25-1572666
Organization Overview
Cleft Palate Foundation is located in Chapel Hill, NC. As of 06/2016, Cleft Palate Foundation employed 3 individuals. Cleft Palate Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2016
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF CPF IS TO SERVE INDIVIDUALS AND FAMILIES AFFECTED BY CLEFT LIP/PALATE AND OTHER CRANIOFACIAL CONDITIONS BY CONNECTING THEM TO TEAM CARE, PROVIDING EDUCATION, AND OFFERING PERSONAL SUPPORT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
INFORMATION AND PUBLIC EDUCATION1. PROVIDE ESSENTIAL SUPPORT AND INFORMATION TO INDIVIDUALS AND FAMILIES AFFECTED BY CRANIOFACIAL BIRTH DEFECTS.2. DESIGN, COORDINATE AND IMPLEMENT SERVICE-DELIVERY PROTOCOLS FOR CPF'S EDUCATION, REFERRAL, SUPPORT AND CRISIS LINE INCLUDING TELEPHONE, ON-LINE WEB INQUIRIES, AND EMAIL CONTACTS (COLLECTIVELY REFERENCED AS CLEFTLINE).3. INCREASE PUBLIC AWARENESS OF THE NEEDS OF PERSONS WITH CLEFT LIP AND PALATE AND OTHER CRANIOFACIAL ANOMALIES THROUGH DISTRIBUTION OF WRITTEN INFORMATION, OPERATION OF THE CLEFTLINE, WEBSITE CONTENT, AND OTHER COMMUNICATIONS SUCH AS PRESS RELEASES AND ARTICLES.4. INCREASE AWARENESS OF CPF'S MISSION, VALUES, AND SERVICES AMONG PARENTS/PATIENTS.5. INCREASE AWARENESS OF CLEFT PALATE/CRANIOFACIAL ANOMALIES AMONG INDIVIDUALS IN HEALTH, EDUCATION, AND SOCIAL SERVICE ACTIVITIES WHEN ABLE TO UNDERWRITE THROUGH GRANTS.6. INCREASE AWARENESS OF CPF AMONG ACPA MEMBERS AND OTHER CARE PROVIDERS INVOLVED IN CLEFT PALATE/CRANIOFACIAL CARE.
SCHOLARSHIPS AND RESEARCH GRANTS1. AWARD GRANTS TO BOTH JUNIOR AND SENIOR INVESTIGATORS COMMITTED TO RESEARCH IN CLEFT LIP, CLEFT PALATE AND/OR RELATED CRANIOFACIAL ANOMALIES AS FUNDED.2. PROMOTE RESEARCH GRANTS PROGRAM AND PUBLICIZE RESEARCH AGENDA.3. INCREASE RESEARCH FUNDING.4. AWARD SCHOLARSHIPS TO PROMOTE EDUCATION OF HEALTHCARE PROFESSIONALS AND STUDENTS AFFECTED WITH CLEFT LIP/PALATE.5. SUPPORT AMERICLEFT ONGOING OUTCOMES RESEARCH PROJECT.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Marilyn Cohen Ba Lslp President, Acting Executive Director | OfficerTrustee | 3 | $0 |
Bernard J Costello DMD MD F Treasurer, Director | OfficerTrustee | 2 | $0 |
Nichelle Berry Weintraub Msie Secretary, Director | OfficerTrustee | 2 | $0 |
John A Girotto MD Mma Faap Facs Treasurer, Director | OfficerTrustee | 2 | $0 |
Alexander Weintraub PHD Director | Trustee | 1 | $0 |
Amy Mackin JD Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $190,247 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $190,247 |
| Total Program Service Revenue | $36,160 |
| Investment income | $17,577 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $243,984 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $247,910 |
| Grants and other assistance to domestic individuals. | $56,220 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $104,673 |
| Pension plan accruals and contributions | $5,750 |
| Other employee benefits | $11,345 |
| Payroll taxes | $8,396 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $4,703 |
| Fees for services: Accounting | $18,564 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $5,424 |
| Fees for services: Other | $55,277 |
| Advertising and promotion | $275 |
| Office expenses | $25,858 |
| Information technology | $15,193 |
| Royalties | $0 |
| Occupancy | $2,573 |
| Travel | $28,041 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $37,137 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,256 |
| Insurance | $719 |
| All other expenses | $4,604 |
| Total functional expenses | $645,817 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $634 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $7,081 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,889 |
| Net Land, buildings, and equipment | $85,354 |
| Investments—publicly traded securities | $1,097,373 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,192,331 |
| Accounts payable and accrued expenses | $20,399 |
| Grants payable | $132,310 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $76,686 |
| Total liabilities | $229,395 |
| Unrestricted restricted net Assets | $124,830 |
| Temporarily restricted net Assets | $496,312 |
| Permanently restricted net Assets or current funds | $341,794 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total net assets or fund balances | $962,936 |
Grants Awarded
Over the last fiscal year, Cleft Palate Foundation has awarded $40,000 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
BROWN UNIVERSITY PURPOSE: FUNDING FOR IMPACT OF HBMP4 MUTATIONS ON CRANIOFACIAL DEVELOPMENT | $10,000 |
EAST CAROLINA UNIVERSITY PURPOSE: FUNDING FOR EXAMINING INSERTION SITE OF PHARYNGOPLASTIES AS AN OUTCOME FOR DETERMINING SUCCESS AND FUNDING FOR VELOPHARYNGEAL MUSCLE MORPHOLOGY IN CHILDREN WITH CONGENITAL PALATAL MICROFORMS | $10,000 |
UNIVERSITY OF CALIFORNIA RIVERSIDE PURPOSE: FUNDING FOR AUGMENTED REALITY TO REMOTELY TEACH INTERNATIONAL CLEFT SURGERY | $5,000 |
SEATTLE CHILDREN'S RESEARCH INSTITUTE PURPOSE: FUNDING FOR INTERACTION OF GENOTYPE AND DIETARY VITAMIN A IN CLEFT LIP AND/OR PALATE | $5,000 |
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL PURPOSE: FUNDING FOR IDENTIFYING PSYCHOSOCIAL RISK FACTORS IN FAMILIES OF CHILDREN WITH CRANIOFACIAL CONDITIONS | $10,000 |