Williams Syndrome Association Inc
- Assets
- $3.1m
- Revenue
- $1.5m
- Investments
- $0.0
- Employees
- 9
- Location
- Troy, MI
- Founding
- 01/1995
- Data as of
- 12/2021
- EIN
- 22-3305007
Organization Overview
Williams Syndrome Association Inc is located in Troy, MI. The organization was established in 1995. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Williams Syndrome Association Inc employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Williams Syndrome Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Williams Syndrome Association Inc generated $1.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.7% each year. All expenses for the organization totaled $1.3m during the year ending 12/2021. While expenses have increased by 3.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Williams Syndrome Association Inc has awarded 14 individual grants totaling $1,961,569. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Terry Monkaba Executive Di | Officer | 40 | $120,232 |
Judy Van Handel Treasurer | OfficerTrustee | 3.4 | $0 |
Cyndra Cole President | OfficerTrustee | 5.8 | $0 |
Scott Ottenheimer Vice Preside | OfficerTrustee | 2.9 | $0 |
Matthew Bartow Secretary | OfficerTrustee | 2.3 | $0 |
Clancey Hopper Trustee | Trustee | 1.3 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $5,830 |
| Membership dues | $4,520 |
| Fundraising events | $346,909 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,008,759 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,366,018 |
| Total Program Service Revenue | $55,858 |
| Investment income | $48,046 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $45,966 |
| Net Income from Fundraising Events | -$43,494 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,472,394 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $369,949 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $120,232 |
| Compensation of current officers, directors, key employees. | $18,035 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $445,290 |
| Pension plan accruals and contributions | $9,897 |
| Other employee benefits | $54,299 |
| Payroll taxes | $39,704 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $882 |
| Fees for services: Accounting | $17,470 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $21,791 |
| Fees for services: Other | $11,391 |
| Advertising and promotion | $225 |
| Office expenses | $18,920 |
| Information technology | $7,996 |
| Royalties | $0 |
| Occupancy | $33,745 |
| Travel | $3,854 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $6,087 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,632 |
| Insurance | $17,844 |
| All other expenses | $31,010 |
| Total functional expenses | $1,309,219 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $300 |
| Savings and temporary cash investments | $318,582 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $152,360 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $33,936 |
| Net Land, buildings, and equipment | $7,861 |
| Investments—publicly traded securities | $2,589,226 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $4,400 |
| Total assets | $3,106,665 |
| Accounts payable and accrued expenses | $10,173 |
| Grants payable | $127,460 |
| Deferred revenue | $5,500 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $143,133 |
| Net assets without donor restrictions | $2,598,664 |
| Net assets with donor restrictions | $364,868 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,106,665 |
Grants Awarded
Over the last fiscal year, Williams Syndrome Association Inc has awarded $369,949 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
New York, NY PURPOSE: RESEARCH | $190,000 |
Somerville, MA PURPOSE: RESEARCH | $179,949 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Williams Syndrome Association Inc has recieved totaling $2,000.
| Awarding Organization | Amount |
|---|---|
Niner Foundation Inc Jackson, WY PURPOSE: SUPPORT OF ORGANIZATION | $2,000 |
Endowment Analysis
| Beg. Balance | $1,075,637 |
| Earnings | $126,183 |
| Other Expense | $126,183 |
| Ending Balance | $1,075,637 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
United Cerebral Palsy Association Of Greater Cleveland Inc Cleveland, OH | $12,790,842 | $13,371,888 |
Opportunity Of North Central Wisconsin Inc Wausau, WI | $5,456,425 | $7,999,504 |
Cerebral Palsy Inc Green Bay, WI | $17,196,927 | $8,115,992 |
United Rehabilitation Services Of Greater Dayton Dayton, OH | $10,265,698 | $5,599,820 |
Curefa Foundation Inc Port Washington, WI | $3,628,378 | $2,819,191 |
Hemophilia Foundation Of Michigan Ypsilanti, MI | $2,873,305 | $3,729,383 |
Reach Services Inc Terre Haute, IN | $2,911,645 | $1,297,496 |
Fairfield Center For Disabilities And Cerebral Palsy Inc Lancaster, OH | $1,295,164 | $1,445,146 |
Great Lakes Hemophilia Foundation Inc Milwaukee, WI | $2,570,807 | $1,284,453 |
Williams Syndrome Association Inc Troy, MI | $3,106,665 | $1,472,394 |
Michigan United Cerebral Palsy Southfield, MI | $1,132,012 | $747,818 |
Hemophilia Of Indiana Inc Indianapolis, IN | $2,819,176 | $1,337,949 |