Bladder Cancer Advocacy Network Inc

Organization Overview

Bladder Cancer Advocacy Network Inc is located in Bethesda, MD. The organization was established in 2005. According to its NTEE Classification (H01) the organization is classified as: Alliances & Advocacy, under the broad grouping of Medical Research and related organizations. As of 12/2021, Bladder Cancer Advocacy Network Inc employed 10 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Bladder Cancer Advocacy Network Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Bladder Cancer Advocacy Network Inc generated $4.3m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.7% each year. All expenses for the organization totaled $3.3m during the year ending 12/2021. While expenses have increased by 7.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER, TO ADVANCE BLADDER CANCER RESEARCH, AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS ENGAGED A NEW GENERATION OF RESEARCHERS WITH THE YOUNG INVESTIGATOR RESEARCH AWARDS, AND IN 2021 GRANTED FIVE AWARDS. IN ADDITION, BCAN SUPPORTS EXCEPTIONALLY NOVEL AND CREATIVE PROJECTS WITH GREAT POTENTIAL TO PRODUCE BREAKTHROUGHS IN THE MANAGEMENT OF BLADDER CANCER THROUGH ITS BLADDER CANCER RESEARCH INNOVATION AWARD, A 300,000 GRANT AWARDED OVER TWO-YEARS. TWO RESEARCH INNOVATION AWARDS WERE GRANTED IN 2021.


EDUCATION AND INFORMATION BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. BCANS COMPREHENSIVE PATIENT HANDBOOK, BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED, HAS BEEN PROVIDED TO THOUSANDS OF SURVIVORS, CAREGIVERS, UROLOGY PRACTICES, AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE PROGRAM THAT ADDRESSES A VARIETY OF ISSUES. THE WEBINARS FEATURE TOP EXPERTS IN THEIR FIELD AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. THE SURVIVOR 2 SURVIVOR PROGRAM CONNECTS NEWLY DIAGNOSED PATIENTS WITH SURVIVORS WITH A SIMILAR DIAGNOSIS.


THINK TANK THE BLADDER CANCER THINK TANK (THINK TANK) IS THE PREMIER SCIENTIFIC MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION, UROLOGISTS, ONCOLOGISTS, SCIENTISTS, AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE. THE 2021 THINK TANK WAS HELD VIRTUALLY DUE TO THE GLOBAL PANDEMIC.


WALK TO END BLADDER CANCER THE WALK TO END BLADDER CANCER IS BCANS SIGNATURE AWARENESS EVENT AND PRIMARILY TAKES PLACE IN MAY. THE WALKS UNITE BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2021, BCAN HAD 1,443 VIRTUAL PARTICIPANTS FROM 714 CITIES IN 47 STATES (INCLUDING D.C. AND PUERTO RICO) AND 11 COUNTRIES. BCANS SOCIAL MEDIA REACH WAS 3.1 MILLION PEOPLE. ADVOCACY AS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. BCAN PROVIDES THE BLADDER CANCER COMMUNITY WITH THE OPPORTUNITY TO BUILD CONNECTIONS, IDENTIFY BLADDER CANCER STATE AND NATIONAL LEGISLATIVE ISSUES OF IMPORTANCE, AND LEARN BEST PRACTICES FOR RAISING AWARENESS OF BLADDER CANCER WITHIN COMMUNITIES. PATIENT AND VOLUNTEER SUPPORT BCAN IS A GRASSROOTS ORGANIZATION AND VOLUNTEERS ARE AN IMPORTANT PART OF PATIENT OUTREACH. BCAN CONTINUES TO EXPAND ITS VOLUNTEER PROGRAMS WHICH WERE FORMALIZED IN 2014. - SURVIVOR 2 SURVIVOR MATCHES NEWLY DIAGNOSED PATIENTS WITH OTHER SURVIVORS WHO HAVE HAD A SIMILAR EXPERIENCE. THROUGH THESE PERSONAL CONNECTIONS, NEWLY DIAGNOSED PATIENTS LEARN MORE ABOUT LIVING WITH BLADDER CANCER AND TREATMENT OPTIONS.


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Board, Officers & Key Employees

Name (title)Compensation
Andrea Maddox-Smith
CEO
$267,500
Mark Story
Dir Of Commu
$132,748
Stephanie Chisolm
Dir. Of Educ
$123,591
Anita Parker
Dir. Of Deve
$122,921
Beverly James
Director/ Se
$0
Jared Sher
Chairman Of
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $143,500
All other contributions, gifts, grants, and similar amounts not included above$4,144,420
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$4,287,920
Total Program Service Revenue$20
Investment income $17,528
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $4,308,947

Grants Recieved

Over the last fiscal year, we have identified 2 grants that Bladder Cancer Advocacy Network Inc has recieved totaling $10,700.

Awarding OrganizationAmount
The Dorney-Koppel Foundation Inc

Potomac, MD

PURPOSE: GENERAL FUND

$10,000
Usdin-Weil Foundation

New Orleans, LA

PURPOSE: PURSUANT TO ORGANIZATIONS GOAL ACHIEVEMENT EFFORTS AND DISTRIBUTIONS TO 501(C)(3)

$700
View Grant Recipient Profile

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