National Incontinentia Pigmenti Foundation
- Assets
- $0.0
- Revenue
- $840.0
- Investments
- $0.0
- Employees
- 0
- Location
- New York, NY
- Founding
- 12/1995
- Data as of
- 05/2022
- EIN
- 13-3810181
Organization Overview
National Incontinentia Pigmenti Foundation is located in New York, NY. The organization was established in 1995. According to its NTEE Classification (B28) the organization is classified as: Special Education, under the broad grouping of Education and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Incontinentia Pigmenti Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 05/2022, National Incontinentia Pigmenti Foundation generated $840.0 in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (47.8%) each year. All expenses for the organization totaled $127.4k during the year ending 05/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO ENCOURAGE AND SUPPORT RESEARCH IN INCONTINENTIA PIGMENTOSA AND TO PROVIDE FAMILY SUPPORT AND EDUCATION.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ATTENDED AND PROMOTED SEVERAL CONFERENCES ON INCONTINENTIA PIGMENTOSA, GATHERED AND DISSEMINATED INFORMATION ABOUT THE DISEASE THROUGH BROCHURES AND NETWORK SITES.
ATTENDED AND PROMOTED SEVERAL CONFERENCES ON INCONTINENTIA PIGMENTOSA, GATHERED AND DISSEMINATED INFORMATION ABOUT THE DISEASE THROUGH BROCHURES AND NETWORK SITES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Laura M Richter Pres Thru June | Trustee | 20 | $10,000 |
Susanne Emmerich Pres/treas | Trustee | 0 | $0 |
Albert Palentchar Bdmbr Thru Jun | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $840 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $840 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $840 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $103,265 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $15,000 |
| Fees for services: Accounting | $9,000 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $127,373 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $0 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $126,533 |
| Total liabilities and net assets/fund balances | $0 |
Grants Awarded
Over the last fiscal year, National Incontinentia Pigmenti Foundation has awarded $373,232 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Fairview Heights, IL PURPOSE: MEDICAL RESEARCH/ SUPPORT OF IPIF | $278,679 |
Fairview Heights, IL PURPOSE: MEDICAL RESEARCH/ SUPPORT OF IPIF | $54,553 |
Fairview Heights, IL PURPOSE: MEDICAL RESEARCH/ SUPPORT OF IPIF | $40,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that National Incontinentia Pigmenti Foundation has recieved totaling $410.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $410 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Judge Rotenberg Educational Center Inc Canton, MA | $44,183,993 | $90,766,696 |
Perkins School For The Blind Watertown, MA | $459,820,688 | $83,698,194 |
Mastery Schools Of Camden Inc Philadelphia, PA | $73,798,386 | $68,691,904 |
The Windward School White Plains, NY | $180,402,224 | $74,362,935 |
Matheny School And Hospital Inc Peapack, NJ | $69,499,999 | $54,050,053 |
Hillcrest Educational Centers Inc Pittsfield, MA | $31,700,149 | $41,848,314 |
Eden Autism Services Inc Princeton, NJ | $37,499,869 | $43,268,973 |
Landmark School Inc Prides Crossing, MA | $81,242,185 | $45,882,089 |
Mary Cariola Childrens Center Inc Rochester, NY | $32,501,953 | $38,497,065 |
Winston Preparatory School New York, NY | $56,916,189 | $37,261,516 |
American School For The Deaf West Hartford, CT | $58,629,293 | $44,148,151 |
Childrens Institute Of Pittsburgh Pittsburgh, PA | $161,136,560 | $38,389,576 |