Amyotrophic Lateral Sclerosis Association

Organization Overview

Amyotrophic Lateral Sclerosis Association, operating under the name The Als Association North Carolina, is located in Raleigh, NC. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Als Association North Carolina employed 17 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Als Association North Carolina is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 01/2022, Als Association North Carolina generated $2.6m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.5% each year. All expenses for the organization totaled $2.1m during the year ending 01/2022. While expenses have increased by 0.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.

Describe the Organization's Program Activity:

Part 3 - Line 4a

CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. DESPITE THE DISRUPTION CAUSED BY THE ONGOING COVID-19 PANDEMIC, NO CUTS WERE MADE TO ANY CRUCIAL PROGRAMS OR SERVICES. THE ALS ASSOCIATION NORTH CAROLINA CHAPTER CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2022 FISCAL YEAR ALSNC HELD 82 SUPPORT GROUP MEETINGS (MOVED TO ONLINE OR TELEPHONE GROUPS), LOANED 480 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 4,500 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED 898 PATIENTS.


THE GLOBAL RESEARCH PROGRAM PROVIDES FUNDING TO THE ALS ASSOCIATION NATIONAL OFFICE TO SUPPORT INTERNATIONAL MEDICAL RESEARCH TO DISCOVER EFFECTIVE TREATMENTS AND A CURE FOR ALS.


THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES, ADVANCING GLOBAL ALS RESEARCH, AND ADVANCING IMPORTANT PUBLIC POLICY INITIATIVES.


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Board, Officers & Key Employees

Name (title)Compensation
Jerry Dawson
President An
$168,000
David Shore
Chief Operat
$107,923
Christy Hall
Secretary
$0
Douglas Noreen
Vice Chair
$0
Robert Whited
Treasurer
$0
Denise Kirkland
Chair
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$1,122,344
Related organizations$0
Government grants $577,916
All other contributions, gifts, grants, and similar amounts not included above$900,080
Noncash contributions included in lines 1a–1f $102,400
Total Revenue from Contributions, Gifts, Grants & Similar$2,600,340
Total Program Service Revenue$0
Investment income $179,500
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$27,183
Net Income from Fundraising Events -$120,812
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $2,631,845

Grants Recieved

Over the last fiscal year, we have identified 9 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $32,254.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$23,068
Chc Creating Healthier Communities

Alexandria, VA

PURPOSE: RESEARCH/PUBLICEDUCATION

$7,086
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$1,000
Reynolds American Foundation

Winston Salem, NC

PURPOSE: CHARITABLE ACTIVITIES

$550
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$175
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$150
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$2,909,687
Earnings$36,776
Admin Expense$22,351
Net Contributions$597,725
Other Expense$783,893
Ending Balance$2,737,977

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