Spinal Muscular Atrophy Foundation
- Assets
- $33.7m
- Revenue
- $12.5m
- Investments
- $0.0
- Employees
- 0
- Location
- Jackson, WY
- Founding
- 05/2003
- Data as of
- 12/2023
- EIN
- 01-0759380
Organization Overview
Spinal Muscular Atrophy Foundation is located in Jackson, WY. The organization was established in 2003. According to its NTEE Classification (B99) the organization is classified as: Education N.E.C., under the broad grouping of Education and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Spinal Muscular Atrophy Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Spinal Muscular Atrophy Foundation generated $12.5m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 9.6% each year. All expenses for the organization totaled $3.6m during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Spinal Muscular Atrophy Foundation has awarded 71 individual grants totaling $14,861,717. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2023
Describe the Organization's Program Activity:
Part 3 - Line 4a
SEE STATEMENT 9
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Dinakar Singh Board Chairman | 1 | $0 | |
Douglas Cole MD Director | 1 | $0 | |
Gerald Fischbach MD Director | 1 | $0 | |
Andrew Knight Director | 1 | $0 | |
Jonathan Leff Director | 1 | $0 | |
Helen Meates Director | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Mylogica | 12/30/16 | $222,518 |
Pharmaoptima | 12/30/16 | $57,040 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $52,414 |
| Interest on Savings | $1,272,150 |
| Dividends & Interest | $0 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $11,183,186 |
| Total Revenue | $12,507,750 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $886,948 |
| Pension plans, employee benefits | $132,003 |
| Interest | $0 |
| Taxes | $350,928 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $144,610 |
| Printing and publications | $0 |
| Other expenses | $67,569 |
| Total operating and administrative expenses | $1,730,022 |
| Contributions, gifts, grants paid | $1,911,506 |
| Total expenses and disbursements | $3,641,528 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $196,091 |
| Savings and temporary cash investments | $33,471,451 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $13,107 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $11,340 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $0 |
| Total assets | $33,691,989 |
| Accounts payable and accrued expenses | $84,947 |
| Grants payable | $2,132,700 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $3,624 |
| Total liabilities | $2,221,271 |
Grants Awarded
Over the last fiscal year, Spinal Muscular Atrophy Foundation has awarded $3,334,919 in support to 16 organizations.
| Grant Recipient | Amount |
|---|---|
STANFORD UNIVERSITY PURPOSE: OVERSIGHT ON THE STANFORD-SMA FOUNDATION REGENERATIVE MEDICINE PROGRAM PROJECTS | $162,935 |
STANFORD UNIVERSITY PURPOSE: DEVELOPMENT OF NONINVASIVE GENE EDITING METHODS | $69,000 |
STANFORD UNIVERSITY PURPOSE: GENERATION OF HINDBRAIN MOTOR NEURONS FROM PLURIPOTENT CELLS | $138,000 |
STANFORD UNIVERSITY PURPOSE: CHARACTERIZATION OF MUSCLE IN SMA PATIENTS | $138,000 |
STANFORD UNIVERSITY PURPOSE: ANALYSIS OF GENE EXPRESSION AND SPLICING IN SMA PATIENT CELLS | $207,000 |
STANFORD UNIVERSITY PURPOSE: GENERATION OF SPINAL CORD MOTOR NEURONS FROM PLURIPOTENT CELLS | $138,000 |