As Healthy As Possible
- Assets
- $4.2k
- Revenue
- $5.8k
- Investments
- $0.0
- Employees
- 0
- Location
- Winston Salem, NC
- Founding
- Data as of
- 12/2023
- EIN
- 92-1715452
Organization Overview
As Healthy As Possible is located in Winston Salem, NC. As Healthy As Possible is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO HAVE A POSITIVE IMPACT ON THE LIVES OF THOSE WITH A POLR2A MUTATION AND TO HELP THEM, THEIR FAMILIES, AND THEIR CAREGIVERS STAY AS HEALTHY AS POSSIBLE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
WE ENDEAVOR TO SHARE AND MAKE THE MOST INFORMATION AVAILABLE TO DOCTORS, CAREGIVERS, AND THOSE INTERESTED IN EDUCATING THEMSELVES THE POLR2A GENE. BY FORMING OUR ORGANIZATION WITH BOTH AND EXECUTIVE BOARD AND MEDICAL ADVISORY BOARD IN 2023, WE ARE IN THE POSITION TO PURSUE A GENETIC REGISTRY, AS WELL AS ALLY OURSELVES WITH UNIVERSITIES, PRIVATE ENTERPRISE, AND OTHER INSTITUTIONS/ORGANIZATIONS SUCH AS NORD THAT ENSURE LONG TERM SUSTAINABILITY OF A REGISTRY. THE $277.35 PMB SETUP, $.63 PAYPAL FEE, AND $275 1023-EZ FILING ARE ATTRIBUTED TO THIS EFFORT.
WE STRIVE TO ENSURE THAT SCIENTIFIC RESEARCH THAT BENEFITS THOSE WITH A POLR2A GENE MUTATION IS VISIBLE WITHIN ACADEMIA BY FORMING ALLIANCES WITH THESE INSTITUTIONS. REVENUE FROM 2023 WILL MAKE POSSIBLE AWARDING A GRANT IN 2024 (NOW ANNOUNCED ON OUR WEBSITE) FOR CONTRIBUTING TO RESEARCH ON POLR2A, THE PRESENTATION OF RELATED POLR2A TOPICS AT A CONFERENCE, OR FURTHER MEDICAL DIAGNOSIS AND/OR ASSISTANCE TO AN INDIVIDUAL WITH A POLR2A MUTATION. THE $840 WEB DESIGNER AND $185.81 WEB HOSTING EXPENSES ARE ATTRIBUTED TO THIS PROGRAM SERVICE.
WE ARE AMBITIOUS ABOUT BEING ABLE TO REACH OUT TO THOSE AFFECTED BY MUTATIONS OF POLR2A GENE, HELP THEM FIND THE INFORMATION THEY NEED, AND TO ADVOCATE FOR RESOURCES ON THEIR BEHALF. IN 2023 WE INITIATED DISCUSSIONS WITH THERAPISTS WHO ARE ABLE TO PROVIDE REMOTE SERVICES TO PATIENTS AND WILL BE WORKING TO RAISE FUNDS TO A LEVEL WHICH WILL MAKE THESE SERVICES AVAILABLE TO THOSE WHO NEED THEM.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Daniel O'donnell Executive Board Member | Trustee | 5 | $0 |
Johanna O'donnell Executive Board Member | Trustee | 1 | $0 |
Trine Hestbaek Executive Board Member | Officer | 0.5 | $0 |
Michael Wells Executive Board Member | Officer | 0.5 | $0 |
Patrick Yodzis Executive Board Member | Officer | 0.5 | $0 |
Christine Erdie-Lalena Medical Advisory Board Member | Officer | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $5,769 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $5,769 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,769 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,117 |
| Advertising and promotion | $0 |
| Office expenses | $276 |
| Information technology | $186 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $1,579 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $5 |
| Savings and temporary cash investments | $4,185 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $4,190 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $4,190 |
| Total liabilities and net assets/fund balances | $4,190 |