Fightsma Inc Subsidiary Group Return

Organization Overview

Fightsma Inc Subsidiary Group Return is located in Richmond, VA. Fightsma Inc Subsidiary Group Return is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2016, Fightsma Inc Subsidiary Group Return generated $21.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 2 years, the organization has seen revenues fall by an average of (19.1%) each year. All expenses for the organization totaled $557.0 during the year ending 12/2016. As we would expect to see with falling revenues, expenses have declined by (22.4%) per year over the past 2 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2016

Describe the Organization's Mission:

Part 3 - Line 1

FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

FIGHTSMA BRINGS TOGETHER THE WORLD'S LEADING SMA SCIENTISTS TO COLLABORATE ON THE STATE OF EXISTING RESEARCH ON SMA AND PURSUE FUNDING FOR THAT RESEARCH. FIGHTSMA ALSO EDUCATES PATIENTS AND FAMILIES ABOUT PROMISING RESEARCH AND CLINICAL TRIALS - AND STAYS ENGAGED WITH PUBLISHED RESEARCH UPDATES DURING THE YEAR. FIGHTSMA ACTIVELY ENGAGES GOVERNMENT LEADERS AND POLICY MAKERS TO BUILD SUPPORT FOR PEDIATRIC RESEARCH. FINALLY, FIGHTSMA PROVIDES PATIENTS AND FAMILIES WITH RESOURCES (ONLINE, IN SOCIAL MEDIA, AND IN PRINT) TO UNDERSTAND SMA AND WHAT THEY CAN DO TO LIVE WITH THE DISEASE, AND HELP IN THE FIGHT FOR A CURE.


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Board, Officers & Key Employees

Name (title)Compensation
Joseph Slay
Chair
$0
Terry Griffin
Vice Chair
$0
Deanna Griffin
Treasurer
$0
Elise Finkner
Secretary
$0
Rod Adams
Director
$0
Michael Calise
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$21,821
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$21,821
Total Program Service Revenue$0
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $21,821

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