The Milla Goni Family Foundation

IN 2021, THE FOUNDATION CONTINUED ITS COLLABORATION WITH FIQUI PERU, UNDER THE "SUMANDO MAANAS" (ADDING TOMORROWS) PROJECT. DURING THIS SECOND YEAR, THE PROJECT OFFERED WORKSHOPS FOR PARENTS LED BY SPECIALISTS COVERING VERY IMPORTANT ASPECTS OF CYSTIC FIBROSIS (CF). IN ADDITION, THE PROJECT CONTINUED TO IDENTIFY NEWLY DIAGNOSED CF PATIENTS AND HELD INTERVIEWS WITH THEIR PARENTS TO HELP THEM UNDERSTAND WHAT CF IS, ITS IMPLICATIONS IN THE LIFE OF THEIR SON/DAUGHTER, AND THE FUTURE HANDLING AND TREATMENT REQUIRED, TO IMPROVE THE QUALITY AND LIFE EXPECTANCY OF THEIR CHILD. THESE PATIENTS WERE OFFERED ACCESS TO THE GENETIC STUDY NEEDED TO IDENTIFY THEIR SPECIFIC MUTATION(S), WHICH IS CRITICAL INFORMATION TO PLAN MEDICATION AND TREATMENT NEEDED BY EACH PATIENT. TOWARDS THE END OF 2021, THE PROJECT FUNDED THE VIRTUAL ATTENDANCE OF A TOTAL OF 20 PHYSICIANS WORKING WITH CF PATIENTS TO INTERNATIONAL CF CONFERENCES (NORTH AMERICAN CYSTIC FIBROSIS CONFERENCE IN NOVEMBER, (CONTINUED BELOW)

(CONTINUED) AND THE VI ARGENTINE CONGRESS OF CYSTIC FIBROSIS IN DECEMBER), GIVING THEM THE OPPORTUNITY TO LEARN THE STATE OF THE ART IN CF TREATMENT IN BENEFIT OF THEIR PATIENTS. THE SOCIAL STUDY STARTED IN 2020 CONTINUED WITH IN-PERSON VISITS TO OTHER REGIONS OF THE COUNTRY (OUTSIDE LIMA), ALLOWING FIQUI AND THE PROJECT TO BETTER UNDERSTAND THE CURRENT SITUATION OF THEIR MEMBER FAMILIES TO ADDRESS THE SUPPORT NEEDED FROM THE PROJECT. BASED ON THIS INFORMATION SPECIAL SOCIAL SUPPORT WAS PROVIDED TO SOME NEEDY FAMILIES, AND SPECIALLY TWO CRITICAL CASES. WORK IN ALL THESE AREAS HAS CONTINUED THROUGH THE FIRST HALF OF 2022.