Pulmonary Fibrosis Foundation
- Assets
- $17.1m
- Revenue
- $11.0m
- Investments
- $0.0
- Employees
- 41
- Location
- Chicago, IL
- Founding
- 11/2000
- Data as of
- 06/2022
- EIN
- 84-1558631
Organization Overview
Pulmonary Fibrosis Foundation is located in Chicago, IL. The organization was established in 2000. According to its NTEE Classification (G45) the organization is classified as: Lung Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, Pulmonary Fibrosis Foundation employed 41 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pulmonary Fibrosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Pulmonary Fibrosis Foundation generated $11.0m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 7.4% each year. All expenses for the organization totaled $9.7m during the year ending 06/2022. While expenses have increased by 7.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Pulmonary Fibrosis Foundation has awarded 64 individual grants totaling $2,061,533. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO MOBILIZE PEOPLE AND RESOURCES TO PROVIDE ACCESS TO HIGH-QUALITY CARE AND LEAD RESEARCH FOR A CURE SO THAT PEOPLE WITH PULMONARY FIBROSIS WILL LIVE LONGER, HEALTHIER LIVES.
Describe the Organization's Program Activity:
1. PFF PATIENT REGISTRY: TOTAL REVENUE RECOGNIZED FOR THE PFF REGISTRY PROGRAM WAS $2,558,493, WHICH INCLUDED CONTRIBUTIONS AND SPONSORSHIPS OF $347,654 IN ADDITION TO THE PROGRAM SERVICE REVENUE OF $2,210,840. THE PROGRAM IS A RESEARCH EFFORT THAT BRINGS TOGETHER MULTIPLE STAKEHOLDERS INCLUDING PATIENTS, CAREGIVERS, FAMILY MEMBERS, HEALTH CARE PROVIDERS, AND RESEARCHERS TO ADVANCE RESEARCH AND IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH PULMONARY FIBROSIS (PF) AND INTERSTITIAL LUNG DISEASE (ILD). THE REGISTRY'S SPECIFIC AIMS FOLLOW: (CONTINUED ON SCHEDULE O)
2. PFF CARE CENTER NETWORK: TOTAL REVENUE RECOGNIZED FOR THE CCN WAS $325,261, WHICH IS COMPRISED OF CONTRIBUTIONS AND SPONSORSHIPS. THE PULMONARY FIBROSIS FOUNDATION (PFF) IS DEDICATED TO PROMOTING EARLIER RECOGNITION AND DIAGNOSIS OF PULMONARY FIBROSIS AND ENSURING THAT PATIENTS RECEIVE THE HIGHEST QUALITY HEALTHCARE. AS PART OF THAT COMMITMENT, SINCE 2013 THE PFF HAS WORKED WITH THE PF MEDICAL COMMUNITY TO ESTABLISH AND EXPAND THE PFF CARE CENTER NETWORK (CCN) TO 74 CARE CENTERS WHERE PEOPLE WITH PF CAN FIND EXPERIENCED MEDICAL PROFESSIONALS (CONTINUED ON SCHEDULE O)
3. CORPORATE PARTNERSHIPS: TOTAL REVENUE RECOGNIZED FOR CORPORATE PARTNERSHIPS WAS $462,931, WHICH INCLUDED CONTRIBUTIONS AND SPONSORSHIPS OF $194,310 IN ADDITION TO THE PROGRAM SERVICE REVENUE OF $268,621. THE PROGNOSTIC LUNG FIBROSIS CONSORTIUM (PROLIFIC) CONVENED QUARTERLY THROUGHOUT THE FISCAL YEAR TO COMPLETE THE STATISTICAL ANALYSIS PLAN FOR THE BIOMARKER ANALYSIS AND APPROVE THE BUDGET TO BEGIN TESTING. PROLIFIC IS A CONSORTIUM OF COMPANIES AND FOUNDATIONS DEVELOPING TESTS TO IDENTIFY IMPORTANT MARKERS FOR PF. TWELVE INITIAL BIOMARKERS WERE SELECTED (CONTINUED ON SCHEDULE O)
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
William T Schmidt Director/president And CEO | Officer | 40 | $421,968 |
Scott Staszak Chief Operating Officer | Officer | 40 | $313,854 |
Laura Sadler Chief Marketing Officer | Officer | 40 | $189,524 |
Seth Klein Senior Vp, Development | 40 | $177,121 | |
Junelle Speller Vp, Pff Registry | 40 | $164,480 | |
Jessica Shore Vp, Research & Programs | 40 | $157,800 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Dorothy Coyle Raclaw Marketing Consulting | 6/29/22 | $150,345 |
Judah Viola Program Consulting | 6/29/22 | $119,400 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,390,980 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $7,383,919 |
| Noncash contributions included in lines 1a–1f | $2,432,097 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $8,774,899 |
| Total Program Service Revenue | $2,545,747 |
| Investment income | $233,512 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $64,444 |
| Net Income from Fundraising Events | -$613,597 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $2,398 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $11,007,903 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $319,696 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $887,126 |
| Compensation of current officers, directors, key employees. | $117,941 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $2,801,204 |
| Pension plan accruals and contributions | $64,790 |
| Other employee benefits | $177,458 |
| Payroll taxes | $213,269 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $32,800 |
| Fees for services: Accounting | $53,065 |
| Fees for services: Lobbying | $232,675 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $29,861 |
| Fees for services: Other | $3,741,524 |
| Advertising and promotion | $118,689 |
| Office expenses | $212,317 |
| Information technology | $16,437 |
| Royalties | $0 |
| Occupancy | $227,073 |
| Travel | $43,026 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $8,487 |
| Interest | $3 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $98,114 |
| Insurance | $49,440 |
| All other expenses | $0 |
| Total functional expenses | $9,685,619 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,111,860 |
| Savings and temporary cash investments | $5,356,166 |
| Pledges and grants receivable | $204,965 |
| Accounts receivable, net | $2,586,813 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $552,239 |
| Net Land, buildings, and equipment | $73,278 |
| Investments—publicly traded securities | $6,557,385 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $190,132 |
| Other assets | $431,631 |
| Total assets | $17,064,469 |
| Accounts payable and accrued expenses | $2,221,067 |
| Grants payable | $350,000 |
| Deferred revenue | $3,937,721 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $580,675 |
| Other liabilities | $0 |
| Total liabilities | $7,089,463 |
| Net assets without donor restrictions | $6,338,585 |
| Net assets with donor restrictions | $3,636,421 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $17,064,469 |
Grants Awarded
Over the last fiscal year, Pulmonary Fibrosis Foundation has awarded $300,000 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
Richmond, VA PURPOSE: See Part IV | $75,000 |
Richmond, VA PURPOSE: See Part IV | $75,000 |
San Francisco, CA PURPOSE: See Part IV | $75,000 |
Denver, CO PURPOSE: See Part IV | $75,000 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Pulmonary Fibrosis Foundation has recieved totaling $1,950.
| Awarding Organization | Amount |
|---|---|
Brighton Foundation Trust Cashiers, NC PURPOSE: OPERATIONS | $1,000 |
Allen And Meline Pickus Foundation Highwood, IL PURPOSE: GENERAL AND UNRESTRICTED | $500 |
Ryan Lee Mohn Memorial Foundation Harrisburg, PA PURPOSE: DONATION | $300 |
Logan Bauman Memorial Fund Parker, CO PURPOSE: PROGAM | $150 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Pulmonary Fibrosis Foundation Chicago, IL | $17,064,469 | $11,007,903 |
Respiratory Health Association Chicago, IL | $4,265,968 | $2,927,620 |
Illinois Association Of Wholesale Distributors Springfield, IL | $97,698 | $0 |
International Respiratory Infections Society Louisville, KY | $53,319 | $0 |
Wisconsin Association Of Tobacco & Candy Distributors Incorporated Madison, WI | $139,063 | $213,386 |
Bakery Confectionery Tobacco Owensboro, KY | $168,569 | $0 |
Kentucky Wholesale Distributors Association Inc Prospect, KY | $88,194 | $0 |
Bakery Confectionery Tobacco Keokuk, IA | $120,807 | $0 |
Wisconsin Society For Respiratory Care Milwaukee, WI | $158,969 | $0 |
Council For Burley Tobacco Inc Lexington, KY | $339,250 | $0 |