Parotid Patient Project

WE PROVIDE CURRENT AND TRUSTED EDUCATION FOR PAROTID PATIENTS TO EMPOWER THEM TO MAKE INFORMED DECISIONS REGARDING THEIR MEDICAL CARE THROUGH OUR WEBSITE, WHICH WAS MADE PUBLICLY AVAILABLE ON APRIL 1, 2020. OUR WEBSITE CONTAINS MULTIPLE RESOURCES TO HELP EDUCATE PATIENTS, FAMILY MEMBERS, CAREGIVERS, DOCTORS, RESEARCHERS, AND THE GENERAL PUBLIC ABOUT THE PROPER DIAGNOSIS AND TREATMENT OF PAROTID GLAND DISEASES. OUR WEBSITE INCLUDES A PAROTID EDUCATION SECTION, LINKS TO HELPFUL RESOURCES, INFORMATIONAL VIDEOS, GLOSSARY OF TERMS, LISTS OF QUESTIONS PATIENTS CAN ASK THEIR PHYSICIANS, AND ACCESS TO A PATIENT ONLINE FORUM. OUR COMPREHENSIVE WEBSITE PROVIDES PATIENTS AND CAREGIVERS WITH A GUIDE THAT COVERS ALL ASPECTS OF THIS JOURNEY FROM DIAGNOSIS TO RECOVERY. FROM APRIL 1, 2020 UNTIL DECEMBER 31, 2020, OUR WEBSITE WAS VISITED APPROXIMATELY 3,000 TIMES WITH VISITORS REVIEWING OVER 9,000 PAGES OF INFORMATION CONTAINED ON OUR WEBSITE. AS A LEADER FOR THIS CAUSE, WE ADVOCATE FOR PATIENTS AND RAISE AWARENESS ABOUT THIS CONDITION THROUGH PUBLIC OUTREACH AND MEDIA. WE ESTABLISHED FACEBOOK, TWITTER, AND INSTAGRAM ACCOUNTS AND UTILIZE THOSE SOCIAL MEDIA PLATFORMS TO RAISE AWARENESS ABOUT THIS CONDITION, AND OUR ORGANIZATION TO ASSIST PATIENTS IN FINDING OUR WEBSITE WHERE THEY CAN ACCESS ALL THE INFORMATIONAL RESOURCES THAT WE OFFER. WE DEVELOPED A FACT SHEET ABOUT THE ORGANIZATION, INCLUDING MEDICAL STATISTICS, THAT PATIENTS CAN SHARE ON THEIR OWN SOCIAL MEDIA ACCOUNTS TO ASSIST US IN RAISING AWARENESS ABOUT THIS CAUSE. WE ESTABLISHED OUR ONLINE PATIENT SUPPORT GROUP FORUM. WE HAVE INTERACTED WITH NUMEROUS PATIENTS THROUGH OUR SUPPORT GROUP FORUM AND HAVE ANSWERED PATIENT QUESTIONS THAT WERE SUBMITTED THROUGH OUR WEBSITE. WE ALSO LAUNCHED AN EDUCATIONAL PODCAST SERIES CALLED PAROTID TUMOR PODCAST THAT PROVIDES PATIENTS AND CAREGIVERS WITH VALUABLE INFORMATION TO ASSIST THEM IN MAKING INFORMED MEDICAL DECISIONS AND TO HELP GUIDE THEM THROUGH THE DIAGNOSIS, TREATMENT, AND RECOVERY PROCESS. THIS PODCAST SERIES IS ALSO LISTED ON OUR WEBSITE, AS WELL AS MANY OTHER PODCAST HOSTING PLATFORMS, SUCH AS APPLE, SPOTIFY, AMAZON, AND GOOGLE PODCASTS. WE HAVE RAISED FUNDS ONLINE THROUGH OUR WEBSITE, AND FACEBOOK FUNDRAISERS AS IN PERSON FUNDRAISING EVENTS WERE RESTRICTED DUE TO COVID-19. WE ARE COMMITTED TO SUPPORTING MEDICAL RESEARCH AND CREATED A REQUEST FOR PROPOSAL (RFP) FOR A 15,000.00 RESEARCH GRANT THAT WAS SENT TO SEVERAL MEDICAL INSTITUTIONS. WE RECEIVED RESPONSES TO THE RFP, AND WE AWARDED OUR FIRST RESEARCH GRANT TO THE MAYO CLINIC ON DECEMBER 7, 2020. THIS PATIENT- CENTERED RESEARCH STUDY WILL EXPLORE QUALITY OF LIFE VALUES OF VARIOUS SURGICAL AND FUNCTIONAL OUTCOMES AND TAKE INTO CONSIDERATION THE OUTCOMES THAT PATIENTS VALUE THE MOST AFTER SURGERY. THIS STUDY WILL EVALUATE DIFFERENT SCENARIOS IN THE PATIENT CARE SYSTEM TO DETERMINE WHICH HAVE THE GREATEST IMPACT ON PATIENT QUALITY OF LIFE AND ATTEMPT TO DEVELOP A COMPREHENSIVE PATIENT-CENTERED OUTCOME MEASURE AFTER PAROTIDECTOMY. MAYO CLINIC AND PAROTID PATIENT PROJECT ARE DETERMINED TO GIVE PATIENTS A VOICE THROUGH THIS STUDY, ALLOWING THEM THE POWER TO CONTRIBUTE TO FUTURE CARE POSSIBILITIES.

WE PROVIDE CURRENT AND TRUSTED EDUCATION FOR PAROTID PATIENTS TO EMPOWER THEM TO MAKE INFORMED DECISIONS REGARDING THEIR MEDICAL CARE THROUGH OUR WEBSITE, WHICH WAS MADE PUBLICLY AVAILABLE ON APRIL 1, 2020. OUR WEBSITE CONTAINS MULTIPLE RESOURCES TO HELP EDUCATE PATIENTS, FAMILY MEMBERS, CAREGIVERS, DOCTORS, RESEARCHERS, AND THE GENERAL PUBLIC ABOUT THE PROPER DIAGNOSIS AND TREATMENT OF PAROTID GLAND DISEASES. OUR WEBSITE INCLUDES A PAROTID EDUCATION SECTION, LINKS TO HELPFUL RESOURCES, INFORMATIONAL VIDEOS, GLOSSARY OF TERMS, LISTS OF QUESTIONS PATIENTS CAN ASK THEIR PHYSICIANS, AND ACCESS TO A PATIENT ONLINE FORUM. OUR COMPREHENSIVE WEBSITE PROVIDES PATIENTS AND CAREGIVERS WITH A GUIDE THAT COVERS ALL ASPECTS OF THIS JOURNEY FROM DIAGNOSIS TO RECOVERY. FROM APRIL 1, 2020 UNTIL DECEMBER 31, 2020, OUR WEBSITE WAS VISITED APPROXIMATELY 3,000 TIMES WITH VISITORS REVIEWING OVER 9,000 PAGES OF INFORMATION CONTAINED ON OUR WEBSITE. AS A LEADER FOR THIS CAUSE, WE ADVOCATE FOR PATIENTS AND RAISE AWARENESS ABOUT THIS CONDITION THROUGH PUBLIC OUTREACH AND MEDIA. WE ESTABLISHED FACEBOOK, TWITTER, AND INSTAGRAM ACCOUNTS AND UTILIZE THOSE SOCIAL MEDIA PLATFORMS TO RAISE AWARENESS ABOUT THIS CONDITION, AND OUR ORGANIZATION TO ASSIST PATIENTS IN FINDING OUR WEBSITE WHERE THEY CAN ACCESS ALL THE INFORMATIONAL RESOURCES THAT WE OFFER. WE DEVELOPED A FACT SHEET ABOUT THE ORGANIZATION, INCLUDING MEDICAL STATISTICS, THAT PATIENTS CAN SHARE ON THEIR OWN SOCIAL MEDIA ACCOUNTS TO ASSIST US IN RAISING AWARENESS ABOUT THIS CAUSE. WE ESTABLISHED OUR ONLINE PATIENT SUPPORT GROUP FORUM. WE HAVE INTERACTED WITH NUMEROUS PATIENTS THROUGH OUR SUPPORT GROUP FORUM AND HAVE ANSWERED PATIENT QUESTIONS THAT WERE SUBMITTED THROUGH OUR WEBSITE. WE ALSO LAUNCHED AN EDUCATIONAL PODCAST SERIES CALLED PAROTID TUMOR PODCAST THAT PROVIDES PATIENTS AND CAREGIVERS WITH VALUABLE INFORMATION TO ASSIST THEM IN MAKING INFORMED MEDICAL DECISIONS AND TO HELP GUIDE THEM THROUGH THE DIAGNOSIS, TREATMENT, AND RECOVERY PROCESS. THIS PODCAST SERIES IS ALSO LISTED ON OUR WEBSITE, AS WELL AS MANY OTHER PODCAST HOSTING PLATFORMS, SUCH AS APPLE, SPOTIFY, AMAZON, AND GOOGLE PODCASTS. WE HAVE RAISED FUNDS ONLINE THROUGH OUR WEBSITE, AND FACEBOOK FUNDRAISERS AS IN PERSON FUNDRAISING EVENTS WERE RESTRICTED DUE TO COVID-19. WE ARE COMMITTED TO SUPPORTING MEDICAL RESEARCH AND CREATED A REQUEST FOR PROPOSAL (RFP) FOR A 15,000.00 RESEARCH GRANT THAT WAS SENT TO SEVERAL MEDICAL INSTITUTIONS. WE RECEIVED RESPONSES TO THE RFP, AND WE AWARDED OUR FIRST RESEARCH GRANT TO THE MAYO CLINIC ON DECEMBER 7, 2020. THIS PATIENT- CENTERED RESEARCH STUDY WILL EXPLORE QUALITY OF LIFE VALUES OF VARIOUS SURGICAL AND FUNCTIONAL OUTCOMES AND TAKE INTO CONSIDERATION THE OUTCOMES THAT PATIENTS VALUE THE MOST AFTER SURGERY. THIS STUDY WILL EVALUATE DIFFERENT SCENARIOS IN THE PATIENT CARE SYSTEM TO DETERMINE WHICH HAVE THE GREATEST IMPACT ON PATIENT QUALITY OF LIFE AND ATTEMPT TO DEVELOP A COMPREHENSIVE PATIENT-CENTERED OUTCOME MEASURE AFTER PAROTIDECTOMY. MAYO CLINIC AND PAROTID PATIENT PROJECT ARE DETERMINED TO GIVE PATIENTS A VOICE THROUGH THIS STUDY, ALLOWING THEM THE POWER TO CONTRIBUTE TO FUTURE CARE POSSIBILITIES.