The Kat6a Foundation Inc
- Assets
- $681.4k
- Revenue
- $231.4k
- Investments
- $0.0
- Employees
- 0
- Location
- West Nyack, NY
- Founding
- 11/2017
- Data as of
- 12/2021
- EIN
- 82-3118535
Organization Overview
The Kat6a Foundation Inc is located in West Nyack, NY. The organization was established in 2017. According to its NTEE Classification (H20) the organization is classified as: Birth Defects & Genetic Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Kat6a Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Kat6a Foundation Inc generated $231.4k in total revenue. This organization has experienced exceptional growth, as over the past 4 years, it has increased revenue by an average of 31.1% each year . All expenses for the organization totaled $214.2k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO SUPPORT PEOPLE AND THEIR FAMILIES LIVING WITH KAT6 DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SERVICES RELATED TO ASSISTING PATIENTS IN REGISTERING WITH NORD (THE NATIONAL ORGANIZATION FOR RARE DISORDERS) AND TO SUPPORT KAT6A FAMILIES AROUND THE WORLD VIA EDUCATION AND CONFERENCE CALLS WITH DONORS.
SERVICES RELATED TO ASSISTING PATIENTS IN REGISTERING WITH NORD (THE NATIONAL ORGANIZATION FOR RARE DISORDERS) AND TO SUPPORT KAT6A FAMILIES AROUND THE WORLD VIA EDUCATION AND CONFERENCE CALLS WITH DONORS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Emile Najm Board CEO | OfficerTrustee | 24 | $0 |
Jordan Muller Board Chair | OfficerTrustee | 4 | $0 |
Karen Ginsburg Board Member | Trustee | 2 | $0 |
Aimee Reitzen Board Member | Trustee | 20 | $0 |
David Woodbury Board Member | Trustee | 2 | $0 |
Meg Salisbury Board Member | Trustee | 7 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $79,739 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $79,739 |
| Total Program Service Revenue | $0 |
| Investment income | $260 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $151,444 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $231,443 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $1,396 |
| Grants and other assistance to Foreign Orgs/Individuals | $10,707 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $98,455 |
| Fees for services: Legal | $9,000 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $79,078 |
| Advertising and promotion | $781 |
| Office expenses | $4,669 |
| Information technology | $7,368 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,015 |
| All other expenses | $760 |
| Total functional expenses | $214,229 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $681,392 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $681,392 |
| Accounts payable and accrued expenses | $29 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $29 |
| Net assets without donor restrictions | $441,145 |
| Net assets with donor restrictions | $240,218 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $681,392 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that The Kat6a Foundation Inc has recieved totaling $12,790.
| Awarding Organization | Amount |
|---|---|
Whitney Young Childrens Foundation Palos Verdes, CA PURPOSE: THIS GRANT WILL FUND VITAL RESEARCH NEEDED TO FIND TREATMENTS FOR CHILDREN LIVING WITH KAT6A, A RARE SYNDROME RESULTING FROM A MUTATION IN THE KAT6A GENE. | $10,000 |
John H And Barbara N Breck Charitable Foundation Springfield, MA PURPOSE: EDUCATIONAL ASSISTANCE | $1,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $767 |
Robert V And Shirley V Dahl Foundation Boone, IA PURPOSE: CHARITABLE | $500 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $368 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $105 |
Peer Organizations
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|---|---|---|
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Cardiovascular Research Foundation New York, NY | $57,426,030 | $52,277,749 |
New York Stem Cell Foundation Inc New York, NY | $75,950,014 | $43,590,530 |
The National Hemophilia Foundation New York, NY | $46,786,068 | $26,439,522 |
The Foundation For Embryonic Competence Inc Basking Ridge, NJ | $27,223,706 | $15,272,541 |
Hauptman-Woodward Medical Research Institute Inc Buffalo, NY | $26,101,769 | $9,359,091 |
Fshd Society Randolph, MA | $6,079,315 | $3,508,920 |
Hearing Health Foundation New York, NY | $12,344,240 | $5,730,095 |
Center For Human Genetics Inc Cambridge, MA | $9,835,244 | $2,410,975 |
Hereditary Disease Foundation New York, NY | $15,507,063 | $4,059,819 |
Cerebral Palsy Alliance Research Foundation New York, NY | $1,906,191 | $2,233,194 |
Research Fund For Cystic Fibrosis Inc Oradell, NJ | $1,621,345 | $155,788 |