Systemic Jia Foundation
- Assets
- $269.8k
- Revenue
- $61.5k
- Investments
- $0.0
- Employees
- 0
- Location
- Cincinnati, OH
- Founding
- 11/2018
- Data as of
- 12/2021
- EIN
- 82-2564392
Organization Overview
Systemic Jia Foundation is located in Cincinnati, OH. The organization was established in 2018. According to its NTEE Classification (H98) the organization is classified as: Pediatrics Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Systemic Jia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Systemic Jia Foundation generated $61.5k in total revenue. This organization has experienced exceptional growth, as over the past 5 years, it has increased revenue by an average of 65.2% each year .
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
1. TO SUPPORT RESEARCH RELATING TO TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS (SJIA); 2. PROMOTE INCREASED AWARENESS, KNOWLEDGE AND UNDERSTANDING OF SJIA BY MEDICAL PROFESSIONALS, THE GENERAL PUBLIC AND FAMILIES AFFECTED BY SJIA; 3. PROMOTE MUTUAL SUPPORT THROUGH BUILDING AND MAINTAINING AN EXTENSIVE WEB-BASED OR OTHER NETWORK OF INFORMATION AND RESOURCES FOR THE GENERAL PUBLIC AND FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SYSTEMIC JIA FOUNDATION PLANS SEVERAL TYPES OF FUNDRAISING: 1) DONATIONS FROM FAMILIES WITH SJIA: THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO FAMILIES WITH SJIA TO BOTH CONTRIBUTE AND RAISE FUNDS FOR THE BENEFIT OF THE SYSTEMIC JIA FOUNDATION. THE SYSTEMIC JIA FOUNDATION WILL RAISE FUNDS ONLINE, USING FUNDRAISING SITES SUCH AS CROWDRISE, STRIPE, FACEBOOK OR FUNDRAISING FUNCTIONALITY ON OUR OWN WEBSITE.2) EVENT SPONSORSHIPS FROM PHARMA COMPANIES: FOR ANY EVENTS THE SYSTEMIC JIA FOUNDATION ORGANIZE, THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO PHARMA COMPANIES WHO ARE INTERESTED IN SJIA TO GIVE SPONSORSHIPS AT DIFFERENT LEVELS TO SUPPORT THE EVENT.3) GENERAL: THE SYSTEMIC JIA FOUNDATION WILL UNDERTAKE ADDITIONAL FUNDRAISING FROM A VARIETY OF SOURCES INCLUDING MAIL, EMAIL, PERSONAL AND PHONE SOLICITATIONS. THE ORGANIZATION WILL CREATE PROPOSALS AND OTHER MATERIALS THAT WILL BE NECESSARY TO SUBMIT IN ORDER FOR THE ORGANIZATION TO RECEIVE GRANTS AND DONATIONS.4) GRANTS FROM OTHER CHARITABLE ORGANIZATIONS. THE SYSTEMIC JIA FOUNDATION WILL RAISE ADDITIONAL FUNDS FROM OTHER CHARITABLE FOUNDATIONS.
GRANT TO HARVARD UNIVERSITYTHE GRANT HAS BEEN PROVIDED TO FUND RESEARCH IN INVESTIGATION OF RNA EXPRESSION DATA TO FIND NEW PATHWAYS TO TARGET FOR SJIA DRUGS. THIS GRANT IS IN LINE WITH THE FOUNDATION'S GOAL TO ACCELERATE AND FIND CURE FOR SJIA.
GRANT TO RAREBASE PBCRAREBASE IS A PUBLIC BENEFIT PRECISION MEDICINE COMPANY THAT LEVERAGES CUTTING-EDGE TECHNOLOGY AND BIOLOGY TO DISCOVER AND DEVELOP TREATMENTS FOR THE MILLIONSOF PEOPLE WORLDWIDE LIVING WITH A RARE DISEASE.
CONFERENCES: MCI CONFERENCES ATTENDED TO IDENTIFY NOVEL TREATMENTS FOR SJIACOMMUNITY BUILDING:CONNECTING PATIENTS, RESEARCHERS, AND CLINICIANS SO THAT PATIENTS GETTREATMENT AND RESEARCHERS GET THE SAMPLES THEY NEED TO DO THEIR RESEARCH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Rashmi Sinha Director | Trustee | 40 | $0 |
Jonathan Boutelle Director | Trustee | 4 | $0 |
Matthew Might Director | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $61,501 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $61,501 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $61,501 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $182,800 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $24,150 |
| Fees for services: Accounting | $3,063 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $134 |
| Advertising and promotion | $400 |
| Office expenses | $112 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $20,312 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $244,574 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $269,815 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $269,815 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $269,815 |
| Total liabilities and net assets/fund balances | $269,815 |
Grants Awarded
Over the last fiscal year, Systemic Jia Foundation has awarded $182,800 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Cambridge, MA PURPOSE: TO HELP FUND FURTHER RESEARCH AND INVESTIGATION OF RNA EXPRESSION DATA TO FIND NEW PATHWAYS TO TARGET FOR SJIA DRUGS. | $120,000 |
RAREBASE PBC PURPOSE: THIS GRANT IS MADE TO A PUBLIC BENEFIT PRECISION MEDICINE COMPANY. THE COMPANY LEVERAGES CUTTING EDGE TECHNOLOGY AND BIOLOGY TO DISCOVER AND DEVELOP TREATMENT FOR MILLIONS OF PEOPLE WORLDWIDE LIVING WITH A RARE DISEASE. THE GRANT HELPS FUND RESEARCH INTO USING ANALYSIS OF MESSENGER RNA DATA TO IDENTIFY NOVEL TREATMENTS FOR SJIA. | $62,800 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Systemic Jia Foundation has recieved totaling $7,083.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $5,909 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,174 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Van Andel Research Institute Grand Rapids, MI | $289,629,145 | $88,891,678 |
Ludwig Institute For Cancer Research New York, NY | $25,811,385 | $89,264,708 |
Stowers Institute For Medical Research Kansas City, MO | $238,524,295 | $116,367,619 |
Institute For Cancer Research Philadelphia, PA | $148,137,241 | $82,576,402 |
Wistar Institute Of Anatomy & Biology Philadelphia, PA | $414,460,000 | $115,831,000 |
American Association For Cancer Research Philadelphia, PA | $261,131,206 | $103,171,549 |
Foundation For The National Institute Of Health Inc North Bethesda, MD | $221,939,759 | $107,605,691 |
Global Alliance For Tb Drug Development Inc New York, NY | $187,560,796 | $58,653,379 |
Licr Fund Inc New York, NY | $2,137,247,231 | $149,523,718 |
Philadelphia Fight Philadelphia, PA | $17,499,427 | $51,561,885 |
Stanley Manne Childrens Research Institute Chicago, IL | $169,123,650 | $39,027,696 |
The Gog Foundation Inc Edgewater, MD | $96,851,330 | $51,133,816 |