Heart Valve Voice Us
- Assets
- $140.5k
- Revenue
- $257.8k
- Investments
- $0.0
- Employees
- 1
- Location
- Washington, DC
- Founding
- 01/2017
- Data as of
- 12/2021
- EIN
- 81-4459237
Organization Overview
Heart Valve Voice Us is located in Washington, DC. The organization was established in 2017. According to its NTEE Classification (G19) the organization is classified as: Support N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Heart Valve Voice Us is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Heart Valve Voice Us generated $257.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 5 years, the organization has seen revenues fall by an average of (6.1%) each year. All expenses for the organization totaled $522.8k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
HEART VALVE VOICE US IS A NONPROFIT PATIENT ADVOCACY ORGANIZATION. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT COMMUNITY BUILDING AND AWARENESSHEART VALVE VOICE BUILT THE MY VALVE MY VOICE PATIENT COMMUNITY AND DEVELOPED RELATED SOCIAL MEDIA, VIDEO AND OTHER CAMPAIGNS TO ENGAGE PATIENTS AND RAISE AWARENESS OF HEART VALVE DISEASE. THIS WAS FUNDED BY AN EVERY HEARTBEAT MATTERS GRANT FROM THE EDWARDS LIFESCIENCES FOUNDATION.
JUST GO CAMPAIGNAS A RESULT OF THE COVID-19 PANDEMIC, MANY HEART VALVE PATIENTS WERE FORGOING APPOINTMENTS WITH THEIR CARDIOLOGISTS OR DELAYING PROCEDURES. HEART VALVE VOICE US LAUNCHED A TWO-PHASED JUST GO CAMPAIGN TO ENCOURGAE PATIENTS TO STAY ENGAGED IN THEIR CARE. THE FIRST STAGE, FUNDED BY EDWARDS LIFESCIENCES, INVOLVED ETENSIVE USE OF SOCIAL MEDIA AND DIGITAL ADVERTISING. THE SECOND PHASE FOCUSED ON PUBLIC SERVICE ANNOUNCEMENTS (PSAS) FUNDED BY ABBOTT.
VALVE IN RESEARCHWITH A EUGENE WASHINGTON ENGAGEMENT AWARD FROM THE PATIENT CENTERED OUTCOMES RESEARCH INSTITUTE. HEART VALVE VOICE US INITIATED A VIRTUAL TRAINING PROGRAM FOR PATIENTS TO BECOME RESEARCH ADVISORS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
John Lewis Executive Director | OfficerTrustee | 40 | $112,362 |
Donnette Smith Chair | OfficerTrustee | 2 | $0 |
Susan Peschin Secretary | OfficerTrustee | 2 | $0 |
Norm Linsky Treasurer | OfficerTrustee | 2 | $0 |
Teresa Wright-Johnson Vice Chair | OfficerTrustee | 2 | $0 |
Donald May Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $237,236 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $237,236 |
| Total Program Service Revenue | $20,589 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $257,825 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $118,189 |
| Compensation of current officers, directors, key employees. | $17,546 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $24,481 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $16,200 |
| Payroll taxes | $11,353 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $8,700 |
| Fees for services: Accounting | $44,570 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $278,178 |
| Advertising and promotion | $0 |
| Office expenses | $14,774 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $620 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $5,684 |
| All other expenses | $49 |
| Total functional expenses | $522,798 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $140,549 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $140,549 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $140,549 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $140,549 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Heart Valve Voice Us has recieved totaling $5.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $5 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Allergy And Asthma Network-Mothers Of Asthmatics Inc Vienna, VA | $1,791,033 | $3,839,428 |
Friends Of The Global Fight Against Aids Tuberculosis And Malaria Washington, DC | $4,190,053 | $1,084,211 |
Gi Quality Improvement Consortium Ltd Bethesda, MD | $4,563,310 | $2,690,271 |
Aids Response Effort Inc Winchester, VA | $1,247,768 | $2,198,362 |
Cure Jm Foundation Leesburg, VA | $2,112,799 | $1,824,036 |
Ias Washington, DC | $11,646,716 | $1,662,331 |
Heart Valve Voice Us Washington, DC | $140,549 | $257,825 |
Red Devils Inc Lutherville Timonium, MD | $143,772 | $332,389 |
Untamed Spirit Therapeutic And Educational Program Virginia Beach, VA | $9,360 | $259,781 |
Susan Cohan Colon Cancer Foundation Inc Baltimore, MD | $23,814 | $137,512 |
Friendship Circle Of Va Richmond, VA | $22,200 | $109,316 |
Kids V Cancer Washington, DC | $186,082 | $0 |