Pulmonary Hypertension Care Centers Inc is located in Washington, DC. The organization was established in 2017. According to its NTEE Classification (E11) the organization is classified as: Single Organization Support, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pulmonary Hypertension Care Centers Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Pulmonary Hypertension Care Centers Inc generated $653.9k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (2.9%) each year. All expenses for the organization totaled $683.6k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO ESTABLISH A PROGRAM OF ACCREDITED CENTERS WITH EXPERTISE IN PULMONARY HYPERTENSION TO IMPROVE OVERALL QUALITY OF CARE AND LONG-TERM OUTCOMES OF PATIENTS WITH THIS LIFE THREATENING DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PULMONARY HYPERTENSION CARE CENTERS (PHCC ACCREDITATION): THE PULMONARY HYPERTENSION ASSOCIATION (PHA) ESTABLISHED ITS PH CARE CENTERS (PHCC) PROGRAM TO ACCREDIT CENTERS NATIONWIDE WITH SPECIAL EXPERTISE IN TREATING PULMONARY HYPERTENSION (PH), PARTICULARLY PULMONARY ARTERIAL HYPERTENSION (PAH), TO RAISE THE OVERALL QUALITY OF CARE AND OUTCOMES IN PATIENTS WITH THIS INCURABLE, PROGRESSIVE, LIFE-THREATENING RARE DISEASE. ESTABLISHED IN 2011, THE PHCC PROGRAM HAS ACCREDITED TWO TYPES OF CENTERS. CENTERS OF COMPREHENSIVE CARE (CCC) AND REGIONAL CLINICAL PROGRAMS (RCP). BOTH PHCC-ACCREDITED CCC'S AND RCP'S HAVE DEMONSTRATED A COMMITMENT TO ROVIDING EXPERT-LEVEL CARE BASED ON THE PULMONARY HYPERTENSION DIAGNOSIS AND TREATMENT CONSENSUS GUIDELINES. AT THE END OF 2022, THERE WERE 82 ACCREDITED CENTERS NATIONWIDE.
PULMONARY HYPERTENSION ASSOCIATION REGISTRY (PHAR): ACCREDITED PHCC'S HAVE AN OPPORTUNITY TO PARTICIPATE IN PHAR AS BOTH A QUALITY IMPROVEMENT PROCESS AND A RESEARCH ACTIVITY. A PATIENT REGISTRY IS AN ORGANIZED SYSTEM THAT COLLECTS DATA TO EVALUATE CERTAIN OUTCOMES FOR A POPULATION OF PEOPLE WITH A MEDICAL CONDITION AND IS A USEFUL TOOL FOR QUALITY IMPROVEMENT OF CARE AND FOR RESEARCH OF RARE DISEASES SUCH AS PH. PHAR COLLECTS DATA FROM WHO GROUP 1 PH (PULMONARY ARTERIAL HYPERTENSIONPAH) AND WHO GROUP 4 PH (CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSIONCTEPH) WHO ARE STARTING EVALUATION AND/OR TREATMENT AT AN ACCREDITED PHCC. DATA IS COLLECTED IN CONJUNCTION WITH ROUTINE PH CARE TEAM VISITS APPROXIMATELY EVERY 3-6 MONTHS. AT THE END OF 2022, THERE WERE 68 CENTERS PARTICIPATING AND 12,323 PATIENTS EVER ENROLLED IN PHAR.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Delphine Yung Chair | OfficerTrustee | 3 | $0 |
Matt Wall Treasurer | OfficerTrustee | 3 | $0 |
Elizabeth Miklos Secretary | OfficerTrustee | 3 | $0 |
Joel Wirth Immediate Past Chair | OfficerTrustee | 3 | $0 |
Colleen Brunetti Director | Trustee | 3 | $0 |
Jessie Kohler Director | Trustee | 3 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $1,351 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $1,351 |
Total Program Service Revenue | $652,500 |
Investment income | $0 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $653,851 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $0 |
Grants and other assistance to domestic individuals. | $26,000 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $299,389 |
Fees for services: Legal | $11,900 |
Fees for services: Accounting | $0 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $306,813 |
Advertising and promotion | $0 |
Office expenses | $1,839 |
Information technology | $2,423 |
Royalties | $0 |
Occupancy | $19,229 |
Travel | $544 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $15,489 |
All other expenses | $0 |
Total functional expenses | $683,626 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $0 |
Savings and temporary cash investments | $0 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $0 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $0 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $0 |