North American Association Of Central Cancer Registries Inc

DEVELOPMENT/APPLICATION OF CANCER REGISTRATION

NCI CONTRACT - THE PURPOSE OF THE NCI CONTRACT IS TO ENHANCE NATIONAL CANCER SURVEILLANCE EFFORTS IN THREE SPECIFIC AREAS: 1. STRENGTHEN THE NATIONAL CAPACITY FOR COLLECTING, ANALYZING, AND USING COMPARABLE CANCER REGISTRY DATA FOR CANCER SURVEILLANCE AND RESEARCH. 2. DEVELOP AND IMPROVE METHODS FOR ASSESSING THE QUALITY AND COMPARABILITY OF CANCER REGISTRY DATA. THIS INCLUDES, BUT IS NOT LIMITED TO TIMELINESS, COMPLETENESS, AND ACCURACY. 3. IMPROVE THE EFFICIENCY AND QUALITY OF REGISTRY OPERATIONS THROUGH PROMOTING ESTABLISHED STANDARDS, DISSEMINATING TECHNICAL INFORMATION, AND FACILITATING COLLAOBRATION AMONG FEDERAL, STATE, PROVINCIAL AND LOCAL REGISTRY PROFESSIONALS.

NATIONAL CHILDHOOD CANCER REGISTRY (NCCR) - THE PURPOSE OF THIS TASK ORDER IS TO CREATE A COORDINATING CENTER SUPPORTING THE NCCR - AN AGGREGATED NATIONAL LEVEL CHILDHOOD CANCER PATIENT DATABASE IN PARTNERSHIP WITH MANY LEADING PEDIATRIC ONCOLOGY ORGANIZATIONS ACROSS THE U.S.

CDC COOPERATIVE AGREEMENT - THE TITLE OF THE PROGRAM IS THE NATIONAL PARTNERSHIPS TO PROMOTE CANCER SURVEILLANCE STANDARDS AND SUPPORT DATA QUALITY AND OPERATIONS OF NATIONAL PROGRAM OF CANCER REGISTRIES, EDUCATION, STANDARDS, AND TRANSLATION. NAACCR WORKS COLLABORATIVELY WITH NPCR LEADERSHIP TO SUPPORT THE DEVELOPMENT, PROMOTION, MAINTENANCE, AND COMMUNICATION OF DATA STANDARDS FOR POPULATION-BASED CENTRAL CANCER REGISTRATION. IMPROVE CENTRAL CANCER REGISTRY OPERATIONS THROUGH THE DEVELOPMENT AND DISSEMINATION OF DOCUMENTED BEST PRACTICES. INCREASE REPORTING VIA ELECTRONIC MECHANISMS AND MEANINGFUL USE IMPLETMENTATION.

NACDDTHE PURPOSE OF THIS PROJECT IS TO ASSIST NACDD IN IDENTIFYING AND IMPLEMENTING BEST PRACTICES FOR REGISTRY OPERATIONS. THE NAACCR WILL ADVISE ON THE TECHNICAL ASPECTS OF THE STATISTICAL COMPLETENESS ESTIMATE REVIEW AND THE IMPLEMENTATION OF BEST PRACTICES. NAACCR WILL UTILIZE IT/DATA SERVICE CONTRACTORS TO PROVIDE PROGRAMMING SUPPORT TO THE EXPERT PANEL ADDRESSING THE STATISTICAL ASPECTS OF THE COMPLETENESS ESTIMATE. NAACCR WILL ALSO INSTITUTE AN APPLICATION PROCESS FOR CANCER REGISTRIES WHO HAVE NOT MET THE NPCR 12MONTH COMPLETENESS STANDARDS.BATTELLETO ASSIST ATSDR AND BATTELLE IN ASSESSING WHETHER THERE IS AN ASSOCIATION BETWEEN EXPOSURE TO THE CONTAMINATED DRINKING WATER AT CAMP LEJEUNE AND THE INCIDENCE OF SPECIFIC CANCERS IN OVER 460,000 COHORT MEMBERS. THE STUDY WILL REQUIRE THAT VITAL STATUS AND CAUSE OF DEATH FOR DECEDENTS BE OBTAINED FOR OVER 425,000 OF THE COHORT MEMBERS WHO HAD NOT DIED PRIOR TO JANUARY 1, 2009 BEFORE ACCESSING CANCER REGISTRY DATA FROM UP TO 55 STATES, TERRITORIAL, AND FEDERAL CANCER REGISTRIESVIRTUAL POOLED REGISTRY THE PURPOSE OF THE VPR PROJECT IS TO DESIGN A PROCESS BY WHICH RESEARCH DATA FILES CAN BE LINKED WITH MULTIPLE STATE CANCER REGISTRIES WITH A SIGNIFICANTLY LOWER INVESTMENT IN COST AND TIME FOR THE PUPOSE OF PROVIDING CANCER DIAGNOSIS AND FOLLOW-UP INFORMATION ON PATIENTS THAT MAY EXIST IN A CENTRAL CANCER REGISTRY'S DATABASE. A "ONE STOP SHOP" WILL BE CREATED THROUGH WITH AN INTERESTED RESEARCHER COULD SUBMIT A SINGLE RESEARCH APPLICATION AND ONE RESERCH FILE WHICH WOULD UNDERGO ONE STANDARDIZED LINKAGE SIMULTANEOUSLY AT MULTIPLE REGISTRIES. SYSTEM WILL BE TESTED TO DE-DUPLICATE CASE REPORTS BETWEEN STATES AND SHARE FOLLOW UP AND TREATMENT INFORMATION.