Acid Maltase Deficiency Association Inc
- Assets
- $789.7k
- Revenue
- $281.7k
- Investments
- $0.0
- Employees
- 0
- Location
- San Antonio, TX
- Founding
- 08/1996
- Data as of
- 09/2023
- EIN
- 74-2760695
Organization Overview
Acid Maltase Deficiency Association Inc is located in San Antonio, TX. The organization was established in 1996. According to its NTEE Classification (T20) the organization is classified as: Private Grantmaking Foundations, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Acid Maltase Deficiency Association Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2023, Acid Maltase Deficiency Association Inc generated $281.7k in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (2.9%) each year. All expenses for the organization totaled $480.4k during the year ending 09/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2023
Describe the Organization's Program Activity:
Part 3 - Line 4a
AMDA SPONSORS SCIENTIFIC RESEARCH IN POMPE DISEASE AND LYSOSOMAL STORAGE DISEASES. BOTH DISEASES ARE CLASSIFIED AS PART OF A GROUP OF 40+ RARE DISEASES.
AMDA PERIODICALLY COSPONSORS THE INTERNATIONAL POMPE ASSOCIATIONS CONFERENCE AND DISTRIBUTES INFORMATION TO PATIENTS, PHYSICIANS AND MEDICAL RESEARCHERS.
AMDA PUBLISHES NEWSLETTERS AND EDUCATIONAL MATERIALS THROUGHOUT THE YEAR REGARDING POMPE DISEASE PROVIDED FREE OF CHARGE TO PATIENTS AND PHYSICIANS.
AMDA SPONSORS WEBINARS THROUGHOUT THE YEAR TO PROVIDE EDUCATIONAL INFORMATION FOR POMPE PATIENTS FREE TO THE POMPE PATIENT COMMUNITY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Marylyn House Vp/sec/treas | 30 | $0 | |
Randall H House Chairman | 15 | $0 | |
Tiffany House President | 30 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $275,233 |
| Interest on Savings | $15,406 |
| Dividends & Interest | $1,824 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | -$10,800 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $281,663 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $30 |
| Depreciation | $0 |
| Occupancy | $59,614 |
| Travel, conferences, and meetings | $0 |
| Printing and publications | $2,002 |
| Other expenses | $118,566 |
| Total operating and administrative expenses | $180,422 |
| Contributions, gifts, grants paid | $300,000 |
| Total expenses and disbursements | $480,422 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $129,630 |
| Savings and temporary cash investments | $660,109 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $0 |
| Total assets | $789,739 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
Grants Awarded
Over the last fiscal year, Acid Maltase Deficiency Association Inc has awarded $236,212 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
DR FREDERIC LOFASO PURPOSE: RESEARCH ON ACID MALTASE DEFICIENCY MYOPATHY | $121,959 |
DR VIRGINIA KIMONISUNIV OF CALIF PURPOSE: RESEARCH ON TREATMENT FOR POMPE DISEASE | $114,253 |