Chromosome 18 Registry And Research Society is located in San Antonio, TX. The organization was established in 1990. According to its NTEE Classification (H03) the organization is classified as: Professional Societies & Associations, under the broad grouping of Medical Research and related organizations. As of 12/2023, Chromosome 18 Registry And Research Society employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Chromosome 18 Registry And Research Society is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Chromosome 18 Registry And Research Society generated $669.6k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 3.2% each year. All expenses for the organization totaled $653.2k during the year ending 12/2023. While expenses have increased by 1.7% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
EDUCATION AND RESEARCH TO HELP PEOPLE WITH CHROMOSOME 18 ABNORMALITIES OVERCOME THE OBSTACLES THEY FACE SO THAT THEY MAY LEAD HEALTHY AND PRODUCTIVE LIVES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DISSEMINATION OF INFORMATION REGARDING CHROMOSOME ABNORMALITIES TO PHYSICIANS AND FAMILIES, AND FUNDING RESEARCH REGARDING CHROMOSOME 18 ABNORMALITIES.
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Neale Parker CEO | Officer | 40 | $85,410 |
David Aldrup President | OfficerTrustee | 12 | $0 |
Liz Woodfield Vp-Mem Relation | OfficerTrustee | 5 | $0 |
Claudia Traa Vp-Development | OfficerTrustee | 5 | $0 |
John Drymala Treasurer | OfficerTrustee | 5 | $0 |
Brad Sheppard Secretary | OfficerTrustee | 5 | $0 |
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $59,793 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $266,781 |
| Noncash contributions included in lines 1a–1f | $59,793 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $326,574 |
| Total Program Service Revenue | $133,343 |
| Investment income | $17 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $194,969 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $669,638 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $197,500 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $97,083 |
| Compensation of current officers, directors, key employees. | $24,543 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $158,193 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $21,397 |
| Payroll taxes | $16,363 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $5,533 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $15,254 |
| Information technology | $9,245 |
| Royalties | $0 |
| Occupancy | $1,599 |
| Travel | $1,766 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $78,104 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,013 |
| Insurance | $1,637 |
| All other expenses | $0 |
| Total functional expenses | $653,232 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $52,110 |
| Savings and temporary cash investments | $74,008 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $15,663 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,180 |
| Net Land, buildings, and equipment | $3,767 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $147,728 |
| Accounts payable and accrued expenses | $27,313 |
| Grants payable | $0 |
| Deferred revenue | $2,250 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $29,563 |
| Net assets without donor restrictions | $83,405 |
| Net assets with donor restrictions | $34,760 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $147,728 |
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