Foundation To Eradicate Duchenne Inc

Organization Overview

Foundation To Eradicate Duchenne Inc is located in Alexandria, VA. The organization was established in 2002. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Foundation To Eradicate Duchenne Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Foundation To Eradicate Duchenne Inc generated $921.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.9% each year. All expenses for the organization totaled $726.2k during the year ending 12/2021. While expenses have increased by 5.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2015, Foundation To Eradicate Duchenne Inc has awarded 29 individual grants totaling $3,101,248. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $509,989 DURING 2021. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY.


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Board, Officers & Key Employees

Name (title)Compensation
Joel R Wood
President/chairman
$0
Scott Sinder
Secretary
$0
James Wood
Treasurer
$0
Brad Todd
Director
$0
Dan Carson
Director
$0
Dave Heil
Director
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Cornerstone Goverment Affairs
Administrative
$120,000
Epiphany Productions Inc
Fundraising & Administrative
$110,631
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$629,683
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$180,000
Noncash contributions included in lines 1a–1f $180,000
Total Revenue from Contributions, Gifts, Grants & Similar$809,683
Total Program Service Revenue$0
Investment income $226
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $921,694

Grants Awarded

Over the last fiscal year, Foundation To Eradicate Duchenne Inc has awarded $441,989 in support to 5 organizations.

Grant RecipientAmount

CHILDREN'S RESEARCH INSTITUTE

Org PageRecipient Profile

Washington, DC

PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY

$200,000

BRITISH SCHOOLS AND UNIVERSITIES FOUNDATION

Org PageRecipient Profile

New York, NY

PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY

$91,153

MARSHALL UNIVERSITY RESEARCH CORPORATION

Org PageRecipient Profile

Huntington, WV

PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY

$65,000

PARENT PROJECT MUSCULAR DYSTROPHY

Org PageRecipient Profile

Washington, DC

PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY

$50,000

UNIVERSITY OF PITTSBURGH

Org PageRecipient Profile

Pittsburgh, PA

PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY

$35,836
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 7 grants that Foundation To Eradicate Duchenne Inc has recieved totaling $90,000.

Awarding OrganizationAmount
Council Of Insurance Agents & Brokers

Washington, DC

PURPOSE: CHARITABLE DONATION

$50,000
Millennium Evergreen Charitable Fund

Owings Mills, MD

PURPOSE: GENERAL SUPPORT

$25,000
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$7,500
Bgr Foundation Inc

Washington, DC

PURPOSE: OPERATING EXPENSES

$5,000
Vincent Dowling Family Foundation Inc

Wilmington, DE

PURPOSE: GENERAL & UNRESTRICTED

$1,000
H-M Foundation

Washington, DC

PURPOSE: GENERAL SUPPORT

$1,000
View Grant Recipient Profile

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