The National Myeloproliferative Disease Foundation Trust
- Assets
- $0.0
- Revenue
- -$295.0
- Investments
- $0.0
- Employees
- 0
- Location
- Washington, DC
- Founding
- 11/1998
- Data as of
- 12/2019
- EIN
- 65-6232769
Organization Overview
The National Myeloproliferative Disease Foundation Trust is located in Washington, DC. The organization was established in 1998. According to its NTEE Classification (T20) the organization is classified as: Private Grantmaking Foundations, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2019
Describe the Organization's Program Activity:
Part 3 - Line 4a
THIS YEAR THE NATIONAL MPD FOUNDATION FOCUSED ESPECIALLY ON TWO AREAS: SOCIAL NETWORKING AND RESEARCH INTO NATURAL TRIGGERS FOR MYELOPROLIFERATIVE DISEASE. THE NATIONAL MPD FOUNDATION CONTINUED ITS RESEARCH THIS YEAR INTO ESSENTIAL THROMBOCYTHEMIA THAT IS MARKED BY THE CALR MUTATION . AS HAS BEEN NOTED IN A 2014 NEJM ARTICLE, MOST PATIENTS WITH ESSENTIAL THROMBOCYTHEMIA OR PRIMARY MYELOFIBROSIS WITHOUT THE JAK2 MUTATION HAVE AN ACQUIRED MUTATION IN THE CALR GENE ENCODING CALRETICULIN. WITH THIS SCIENTIFIC FINDING CONFIRMED, THE NMPD FOUNDATION CONTINUED ITS RESEARCH IN THIS AREA BOTH THROUGH CONTACT WITH MEDICAL PROFESSIONALS AS WELL AS VIA OUTREACH AND RESEARCH COMPILATION. IN ADDITION THE FOUNDATION KEPT WATCH ON CLINICAL TRIALS THAT COULD FURTHER THE KNOWLEDGE BASE RELATED TO THIS RARE DISEASE PROCESS.
THROUGH OUTREACH TO MANY HEALTH RELATED SOCIAL NETWORKS, THE FOUNDATION WAS ABLE TO IDENTIFY LARGE POPULATIONS OF PATIENTS ARE EXPERIMENTING WITH ALTERNATIVE TREATMENTS FOR ESSENTIAL THROMBOCYTHEMIA, POLYCYTHEMIA VERA AND MYELOFIBROSIS.
COMPLEMENTING THIS EFFORT WAS A TELEPHONE SURVEY OF MANY ALTERNATIVE DOCTORS WHO ARE USING ANTIANGIOGENIC DIETS, NUTRITION AND OTHER ALTERNATIVE TREATMENT MECHANISMS IN AN ATTEMPT TO REDUCE PLATELET PROLIFERATION AND SUBSEQUENTLY REDUCE INFLAMMATION IN THE BODY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Pamela M Meyer Officer | 0 | $0 | |
Cynthia Meyer Truitt Trustee | 0 | $0 | |
Jerome Meyer Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $0 |
| Interest on Savings | $0 |
| Dividends & Interest | $18 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | -$313 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | -$295 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $0 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $0 |
| Printing and publications | $0 |
| Other expenses | $8,316 |
| Total operating and administrative expenses | $10,476 |
| Contributions, gifts, grants paid | $9,000 |
| Total expenses and disbursements | $19,476 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $0 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $0 |
| Total assets | $0 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |