Lymelight Foundation Inc

Organization Overview

Lymelight Foundation Inc is located in Burlingame, CA. The organization was established in 2011. According to its NTEE Classification (P20) the organization is classified as: Human Service Organizations, under the broad grouping of Human Services and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lymelight Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Lymelight Foundation Inc generated $1.6m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (13.0%) each year. All expenses for the organization totaled $1.4m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

PROVIDE GRANTS TO CHILDREN AND YOUNG ADULTS WITH LYME DISEASE WHO CANNOT AFFORD TREATMENT.

Describe the Organization's Program Activity:

Part 3 - Line 4a

LYMELIGHT FOUNDATION PROVIDES MEDICAL GRANTS UP TO $10,000 (CUMULATIVE) TO LYME INFECTED CHILDREN AND YOUNG ADULTS WHO CANNOT PAY FOR NECESSARY MEDICATION AND THERAPIES. GRANTS FUNDS COVER DOCTOR VISITS, MEDICATIONS, SUPPLEMENTS, LAB TESTING, ALTERNATIVE THERAPIES AND TRANSPORTATION TO OUT OF AREA PHYSICIAN. IN 2021, 223 TOTAL GRANTS WERE AWARDED; 122 TO NEW INDIVIDUALS AND 101 TO EXISTING RECIPIENTS. AS MOST INSURANCE COMPANIES DO NOT COVER THE TREATMENT OF CHRONIC LYME DISEASE, FAMILIES ARE TYPICALLY LEFT ON THEIR OWN TO BATTLE THE DISEASE, OFTEN INCURRING EXTREME MEDICAL DEBT. BY PROVIDING CRITICAL TREATMENT, LYMELIGHT BRIDGES THE GAP OF ENORMOUS UNMET NEED. SINCE ITS INCEPTION IN 2011, LYMELIGHT HAS AWARDED GRANTS TOTALING $7.2 M TO 1,013 INDIVIDUALS IN 49 STATES.


LYMELIGHT FOUNDATION IS DEDICATED TO EDUCATING THE PUBLIC ON THE TRUTH AND MISCONCEPTIONS ABOUT IDENTIFYING, CONTRACTING AND FIGHTING LYME DISEASE. LYMELIGHT FOUNDATION HOSTS AND PARTICIPATES IN SEVERAL LYME AWARENESS AND FUNDRAISING EVENTS INCLUDING DART FOR ART. ACTIVE SUPPORTERS INCLUDE SINGER-SONG WRITER AVRIL LAVIGNE AND AUXILIARY AND FUNDRAISING EVENTS IN 27 STATES.


LYMELIGHT FOUNDATION CONTINUES TO PROMOTE AND UTILIZE THE VIDEO SERIES CALLED PATIENT TALK. LYMELIGHT COLLABORATED WITH OTHER ORGANIZATIONS TO PRODUCE THE SERIES IN 2017 WHERE REAL PATIENTS TELL THEIR STORIES IN ADDRESSING THE PRACTICAL, PHYSICAL AND EMOTIONAL ISSUES THEY FACED WHEN DEALING WITH A LIFE CHANGING LYME DISEASE MEDICAL DIAGNOSIS. THESE EDUCATIONAL MEDICAL VIDEOS DETAIL THE LONG AND DIFFICULT JOURNEYS FACED BY THOSE WITH LYME DISEASE. THE VIDEOS ALSO PROVIDE IMPORTANT INFORMATION ABOUT DIAGNOSIS AND TREATMENT PROTOCOLS. THE VIDEO SERIES HAS BEEN EXTREMELY WELL RECEIVED BY BOTH THE LYME COMMUNITY AND BY THE BROADER AUDIENCE OF THE GENERAL PUBLIC. IT HAS BECOME A KEY EDUCATIONAL TOOL.


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Board, Officers & Key Employees

Name (title)Compensation
Nora Thomas
Board Member/program Mgr.
$124,954
Scott Bedford
Chairman
$0
Phyllis Bedford
Executive Director
$0
Scott Forsgren
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$462,142
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$876,155
Noncash contributions included in lines 1a–1f $2,685
Total Revenue from Contributions, Gifts, Grants & Similar$1,338,297
Total Program Service Revenue$0
Investment income $551
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $41
Net Income from Fundraising Events $291,369
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,631,644

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Lymelight Foundation Inc has recieved totaling $2,500.

Awarding OrganizationAmount
Peter & Marie-Helene Gotcher Foundation

Hillsborough, CA

PURPOSE: FUND RESEARCH FOR LYME DISEASE PATIENTS

$2,500
View Grant Recipient Profile

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