Lymelight Foundation Inc
- Assets
- $1.9m
- Revenue
- $822.2k
- Investments
- $0.0
- Employees
- 0
- Location
- Burlingame, CA
- Founding
- 11/2011
- Data as of
- 12/2023
- EIN
- 61-1645660
Organization Overview
Lymelight Foundation Inc is located in Burlingame, CA. The organization was established in 2011. According to its NTEE Classification (P20) the organization is classified as: Human Service Organizations, under the broad grouping of Human Services and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lymelight Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Lymelight Foundation Inc generated $822.2k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (16.9%) each year. All expenses for the organization totaled $1.4m during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDE GRANTS TO CHILDREN AND YOUNG ADULTS WITH LYME DISEASE WHO CANNOT AFFORD TREATMENT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
LYMELIGHT FOUNDATION PROVIDES MEDICAL GRANTS UP TO $10,000 (CUMULATIVE) TO LYME INFECTED CHILDREN AND YOUNG ADULTS WHO CANNOT PAY FOR NECESSARY MEDICATION AND THERAPIES. GRANTS FUNDS COVER DOCTOR VISITS, MEDICATIONS, SUPPLEMENTS, LAB TESTING, ALTERNATIVE THERAPIES AND TRANSPORTATION TO OUT OF AREA PHYSICIANS. IN 2023, 254 TOTAL GRANTS WERE AWARDED: 141 TO NEW INDIVIDUALS AND 113 TO EXISTING RECIPIENTS. AS MOST INSURANCE COMPANIES DO NOT COVER THE TREATMENT OF CHRONIC LYME DISEASE, FAMILIES ARE TYPICALLY LEFT ON THEIR OWN TO BATTLE THE DISEASE, OFTEN INCURRING EXTREME MEDICAL DEBT. BY PROVIDING CRITICAL TREATMENT, LYMELIGHT BRIDGES THE GAP OF ENORMOUS UNMET NEED. SINCE ITS INCEPTION IN 2011, LYMELIGHT HAS AWARDED GRANTS TOTALING $9,100,370 TO 1,289 INDIVIDUALS IN 49 STATES.
LYMELIGHT FOUNDATION IS DEDICATED TO EDUCATING THE PUBLIC ON THE TRUTH AND MISCONCEPTIONS ABOUT IDENTIFYING, CONTRACTING AND FIGHTING LYME DISEASE. LYMELIGHT FOUNDATION HOSTS AND PARTICIPATES IN SEVERAL LYMEAWARENESS AND FUNDRAISING EVENTS INCLUDING DART FOR ART. ACTIVE SUPPORTERS INCLUDE SINGER-SONG WRITER AVRIL LAVIGNE AND AUXILIARY AND FUNDRAISING EVENTS IN 28 STATES.
LYMELIGHT FOUNDATION CONTINUES TO PROMOTE AND UTILIZE THE VIDEO SERIES CALLED PATIENT TALK. LYMELIGHT COLLABORATED WITH OTHER ORGANIZATIONS TO PRODUCE THE SERIES IN 2017 WHERE REAL PATIENTS TELL THEIR STORIES IN ADDRESSING THE PRACTICAL, PHYSICAL AND EMOTIONAL ISSUES THEY FACED WHEN DEALING WITH A LIFE CHANGING LYME DISEASE MEDICAL DIAGNOSIS. THESE EDUCATIONAL MEDICAL VIDEOS DETAIL THE LONG AND DIFFICULT JOURNEYS FACED BY THOSE WITH LYME DISEASE. THE VIDEOS ALSO PROVIDE IMPORTANT INFORMATION ABOUT DIAGNOSIS AND TREATMENT PROTOCOLS. THE VIDEO SERIES HAS BEEN EXTREMELY WELL RECEIVED BY BOTH THE LYME COMMUNITY AND BY THE BROADER AUDIENCE OF THE GENERAL PUBLIC. IT HAS BECOME A KEY EDUCATIONAL TOOL.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Scott Bedford Chairman | OfficerTrustee | 10 | $0 |
Scott Forsgren Board Member | Trustee | 5 | $0 |
Nora Thomas Board Member/program Mgr. | Trustee | 5 | $0 |
Phyllis Bedford Executive Director | Officer | 40 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $743,745 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $127,124 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $870,869 |
| Total Program Service Revenue | $0 |
| Investment income | $10,407 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,972 |
| Net Income from Fundraising Events | -$61,403 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $349 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $822,194 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $1,060,600 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $42,795 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $259,087 |
| Advertising and promotion | $0 |
| Office expenses | $19,583 |
| Information technology | $6,477 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $5,368 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $1,430,110 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $654,767 |
| Savings and temporary cash investments | $406,689 |
| Pledges and grants receivable | $782,815 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $7,800 |
| Prepaid expenses and deferred charges | $20,768 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $61,940 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,934,779 |
| Accounts payable and accrued expenses | $17,624 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $87,375 |
| Total liabilities | $104,999 |
| Net assets without donor restrictions | $960,963 |
| Net assets with donor restrictions | $868,817 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,934,779 |