The Joshua Frase Foundation For Congenital Myopathy Research Inc
- Assets
- $93.2k
- Revenue
- $214.0k
- Investments
- $0.0
- Employees
- 1
- Location
- Ponte Vedra Beach, FL
- Founding
- 07/1997
- Data as of
- 12/2021
- EIN
- 59-7059890
Organization Overview
The Joshua Frase Foundation For Congenital Myopathy Research Inc is located in Ponte Vedra Beach, FL. The organization was established in 1997. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Joshua Frase Foundation For Congenital Myopathy Research Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Joshua Frase Foundation For Congenital Myopathy Research Inc generated $214.0k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 11.1% each year . All expenses for the organization totaled $155.3k during the year ending 12/2021. While expenses have increased by 4.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Joshua Frase Foundation For Congenital Myopathy Research Inc has awarded 30 individual grants totaling $146,333. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
RESEARCH FOR MYOTUBULAR MYOPATHY AND OTHER CONGENITAL MYOPATHIES, EDUCATIONAL INFORMATION, AND RESEARCH SUPPORT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH
ASSISTANCE TO FAMILIES WITH THE PURCHASE OF NEEDED MEDICAL EQUIPMENT AND BEING A RESOURCE FOR EDUCATING FAMILIES WORLDWIDE ON THE CARE FOR THESE CRITICALLY ILL CHILDREN AS WELL AS PROVIDING RESOURCES FOR THEM
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Alison Rockett-Frase President | OfficerTrustee | 55 | $95,207 |
Lisa Nickerson Vice President | OfficerTrustee | 1 | $0 |
Paul Frase Secretary | OfficerTrustee | 1 | $0 |
Daryl Johnston Director | Trustee | 1 | $0 |
Sean Klinkowize Director | Trustee | 1 | $0 |
Chad Hennings Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $200,551 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $200,551 |
| Total Program Service Revenue | $0 |
| Investment income | $7 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $213,958 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $800 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $95,207 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $7,283 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $517 |
| Fees for services: Accounting | $3,225 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $2,436 |
| Office expenses | $2,256 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,894 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $528 |
| Insurance | $0 |
| All other expenses | $4,434 |
| Total functional expenses | $155,324 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $90,861 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $182 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $1,652 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $529 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $93,224 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $4,456 |
| Total liabilities | $4,456 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $88,768 |
| Total liabilities and net assets/fund balances | $93,224 |
Grants Awarded
Over the last fiscal year, The Joshua Frase Foundation For Congenital Myopathy Research Inc has awarded $10,000 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
BOSTON CHILDRENS HOSPITAL PURPOSE: Research | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that The Joshua Frase Foundation For Congenital Myopathy Research Inc has recieved totaling $26,542.
| Awarding Organization | Amount |
|---|---|
The Community Foundation For Northeast Florida Inc Jacksonville, FL PURPOSE: IN HONOR OF JOSHUA'S 16 YEARS OF LIFE AND IN CELEBRATION OF HIS PARENT'S DEDICATION TO FINDING A CURE FOR CONGENITAL MYOPATHIES | $16,000 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $9,870 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $672 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Multiple Sclerosis Center Of Georgia Inc Atlanta, GA | $14,597,977 | $12,400,152 |
Multiple Sclerosis Foundation Inc Ft Lauderdale, FL | $9,512,588 | $5,647,701 |
Amyotrophic Lateral Sclerosis Association Tampa, FL | $2,655,654 | $4,199,844 |
Prader-Willi Syndrome Association Sarasota, FL | $2,440,137 | $1,719,245 |
Amyotrophic Lateral Sclerosis Association Birmingham, AL | $312,683 | $815,281 |
Lupus Foundation Of America Florida Chapter Inc Boynton Beach, FL | $0 | $167,207 |
Next Step Atlanta Inc Alpharetta, GA | $246,220 | $603,149 |
Facial Pain Research Foundation Inc Gainesville, FL | $1,134,914 | $724,170 |
Nextstep Orlando Inc Altamonte Springs, FL | $280,488 | $408,503 |
Miami Sci Wellness Inc Miami, FL | $626,874 | $254,167 |
Alabama Sheet Metal Joint Industry Board Inc Birmingham, AL | $640,810 | $271,630 |
Independent Living Associates Of The Muscle Shoals Area Inc Florence, AL | $407,896 | $179,197 |