Hemophilia Of North Carolina

Organization Overview

Hemophilia Of North Carolina is located in Morrisville, NC. The organization was established in 1997. According to its NTEE Classification (P80) the organization is classified as: Centers to Support the Independence of Specific Populations, under the broad grouping of Human Services and related organizations. As of 06/2022, Hemophilia Of North Carolina employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hemophilia Of North Carolina is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2022, Hemophilia Of North Carolina generated $616.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.8% each year. All expenses for the organization totaled $533.6k during the year ending 06/2022. While expenses have increased by 9.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

DEDICATED TO IMPROVING THE QUALITY OF LIFE OF PERSONS AFFECTED BY BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, PROMOTION OF RESEARCH AND DELIVERY OF SUPPORTIVE PROGRAMS AND SERVICES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

BLEEDING DISORDERS FOUNDATION OF NC PROVIDES EDUCATION TO HELP PEOPLE WITH BLEEDING DISORDERS AVOID DEBILITATING COMPLICATIONS AND LIVE LONGER, MORE ACTIVE AND HEALTHIER LIVES; CONDUCTS ADVOCACY INITIATIVES AT LOCAL AND NATIONAL LEVELS TO HELP ENSURE ACCESS TO MEDICAL CARE AND EQUITABLE INSURANCE REIMBURSEMENT FOR ALL; BUILDS AWARENESS OF BLEEDNG DISORDERS AND PROMOTES EARLY DIAGNOSIS; ADVOCATES AND CREATES AWARENESS FOR BLOOD SAFETY AND HELPS TO FUND AND PROMOTE RESEARCH TOWARD BETTER TREATMENTS AND CURES.


BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES A QUARTERLY NEWSLETTER, THE CONCENTRATE, THAT IS DISTRIBUTED TO MEMBERS, THE MEDICAL COMMUNITY AND OTHER INTERESTED PARTIES. INFORMATION IN THE NEWSLETTER CONTAINS ARTICLES ON RELEVANT TOPICS TO THE BLEEDING DISORDERS COMMUNITY, UPDATES ON PROGRAMS AND SERVICES AND HIGHLIGHTS OF COMMUNITY MEMBERS. BASED ON INFORMATION RECEIVED FROM THE MEMBERSHIP, THE NEWSLETTER IS THEIR PRIMARY SOURCE OF INFORMATION. IN ADDITION TO THE NEWSLETTER, BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES FLYERS WITH INFORMATION ABOUT UPCOMING PROGRAMS AND SERVICES.


THE BLEEDING DISORDERS FOUNDATION OF NC FINANCIAL ASSISTANCE PROGRAM IS PART OF THE ORGANIZATION'S CONTINUING EFFORT TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS AND FAMILIES AFFECTED BY BLEEDING DISORDERS. THIS PROGRAM PROVIDES FUNDS TO ELIGIBLE INDIVIDUALS AND FAMILIES WHO NEED ASSISTANCE WITH EXPENSES INCURRED IN THE CARE, TREATMENT OR PREVENTION OF A BLEEDING DISORDER, AND/OR BASIC LIVING EXPENSES.


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Board, Officers & Key Employees

Name (title)Compensation
Charlene Cowell
Executive Director
$83,691
Steven Humes
President
$0
Taylor Cole
Board Member
$0
Kathy Register
Treasurer
$0
Karyn Davis
Board Member
$0
Arlette Whitaker
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$110,000
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$428,061
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$538,061
Total Program Service Revenue$19,500
Investment income -$12,455
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $68,101
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $616,707

Grants Recieved

Over the last fiscal year, we have identified 6 grants that Hemophilia Of North Carolina has recieved totaling $82,444.

Awarding OrganizationAmount
Hemophilia Alliance Foundation

Lansdale, PA

PURPOSE: PROMOTE HEMOPHILIA

$58,000
We Work For Health

Washington, DC

PURPOSE: ADVOCACY SUPPORT

$10,000
Givinga Foundation Inc

Wellesley, MA

PURPOSE: PROGRAM SUPPORT

$6,900
Givinga Foundation Inc

Wellesley, MA

PURPOSE: PROGRAM SUPPORT

$6,900
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$394
Bank Of America Charitable Foundation Inc

Charlotte, NC

PURPOSE: OPERATIONAL SUPPORT

$250
View Grant Recipient Profile

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