National Center For Health Research Incorporated

TO IMPROVE THE HEALTH AND SAFETY OF ADULTS AND CHILDREN BY USING OBJECTIVE, RESEARCH-BASED INFORMATION TO ENCOURAGE NEW, MORE EFFECTIVE PROGRAMS & POLICIES. OUR CANCER PREVENTION AND TREATMENT FUND IS OUR MAJOR PROGRAM AND THROUGH IT WE HELP PEOPLE PREVENT CANCER AND HELP PATIENTS GET THE BEST TREATMENTS.

ACA PROJECT: THIS PROJECT FOCUSES ON HELPING WOMEN OBTAIN HEALTH INSURANCE COVERAGE FOR MEDICALLY NECESSARY SURGERY, THAT CONFORMS WITH THE AFFORDABLE CARE ACT. THIS PROJECT ALSO INCLUDES REVIEWING AND EXPLAINING NEW DATA PERTAINING TO THE RISKS OF IMPLANTS THAT CAN CAUSE CANCER AND OTHER SERIOUS CONDITIONS, AND PROVIDING THAT INFORMATION TO PATIENTS, HEALTHCARE PROVIDERS, JOURNALISTS, AND THE GENERAL PUBLIC. THE GOAL OF THE PROJECT IS TO ENSURE THAT WOMEN WITH HARMFUL MEDICAL IMPLANTS HAVE ACCESS TO MEDICALLY NECESSARY TREATMENT, AS THE LAW REQUIRES.

PATIENT CENTERED OUTCOME RESEARCH INSTITUTE SUPPORTED MEDIA PROJECT BRINGS TOGETHER MEDICAL WRITERS, JOURNALISTS, RESEARCHERS, AND MEDICAL EXPERTS TO EFFECTIVELY DISSEMINATE RESEARCH FINDINGS FROM PCORI STUDIES AND COMPLICATED COVID-19 RESEARCH. THE PROJECT'S FIRST AIM IS TO ENSURE THAT THE MEDIA AND MEDICAL EXPERTS UNDERSTAND AND GIVE ATTENTION TO IMPORTANT NEW RESEARCH FINDINGS. THE SECOND AIM IS TO TRAIN PCORI RESEARCHERS AND THEIR PATIENT PARTNERS TO PERSUASIVELY COMMUNICATE THEIR NEWLY RELEASED FINDINGS TO THE MEDIA. THE PROJECT WILL INCLUDE ONE-HOUR TELECONFERENCES AS WELL AS ONE IN-PERSON WORKSHOP FOR JOURNALISTS AND RESEARCHERS.

ACTION NOW: IMPROVING THE SAFETY AND EFFECTIVENESS OF MEDICAL PRODUCTS. GENERAL SUPPORT FOR THIS PROGRAM ENABLES US TO HIRE STAFF WHO FOCUS ON ANALYZING THE STRENGTHS AND WEAKNESSES OF CURRENT STANDARDS FOR FDA APPROVAL AND POST-MARKET SURVEILLANCE OF DRUGS, BIOLOGICS, AND MEDICAL DEVICES. THIS WORK INCLUDES ANALYZING DATA, SYNTHESIZING RESEARCH CONDUCTED BY OTHERS, PRESENTATIONS AT PUBLIC MEETINGS, AND SHARING INFORMATION WITH HEALTHCARE PROFESSIONALS, HEALTH POLICY EXPERTS, AND OPINION LEADERS.

CANCER PREVENTION AND TREATMENT FUND PROGRAM IS FOCUSED ON CONDUCTING RESEARCH AND EXPLAINING RESEARCH RESULTS, HELPING INDIVIDUALS PREVENT CANCER, PREVENT CANCER FROM RETURNING, AND GET THE BEST POSSIBLE MEDICAL CARE. THE PROGRAM ANALYZES RESEARCH-BASED INFORMATION FROM PEER-REVIEWED SOURCES AND PROVIDES ANALYSES OF HEALTH POLICIES. THE PROGRAM ALSO PROVIDES A FREE ONLINE CANCER HOTLINE AND OTHER PERSONALIZED ASSISTANCE, AND HELPS PROFESSIONALS GIVE PATIENTS THE BEST POSSIBLE CARE THROUGH PRESENTATIONS AT PUBLIC MEETINGS; HOSTING WORKSHOPS AND WEBINARS; AND WRITING REPORTS AND ARTICLES. THIS PROGRAM WILL ALSO INCLUDE TECHNICAL SUPPORT TO ORGANIZATIONS SERVING BREAST CANCER PATIENTS OF COLOR.PATIENT CENTERED OUTCOME RESEARCH INSTITUTE SUPPORTED LONG COVID PROJECT BRINGS TOGETHER PATIENTS, RESEARCHERS, AND HEALTHCARE PROVIDERS TO SHARE INFORMATION ABOUT LONG COVID (ALSO SOMETIMES CALLED COVID LONG HAULERS). A LARGE NUMBER OF PEOPLE WHO RECOVERED FROM CORONAVIRUS INFECTIONS ARE SUFFERING FROM LONG-TERM HEALTH PROBLEMS THAT LAST FOR MONTHS OR YEARS AFTER THE INFECTION IS OVER. HEALTHCARE PROVIDERS ARE STRUGGLING TO FIND TREATMENTS TO HELP THESE PATIENTS, AND THE PATIENTS REPORT FEELING DESPERATE TO FIND TREATMENTS TO HELP THEM RECOVER. THE PROJECT WILL INCLUDE 6 ONE-HOUR TELECONFERENCES AND ONE IN-PERSON ALL-DAY CONFERENCE IN WASHINGTON, DC.GENERAL HEALTH PROGRAMS INCLUDE RESEARCH ANALYSIS OF MEDICAL INFORMATION, ANALYSIS OF HEALTH POLICIES, AND ASSISTANCE TO ADULTS AND CHILDREN WITH A WIDE RANGE OF HEALTH AND MENTAL HEALTH ISSUES. THIS INCLUDES A HOTLINE FOR PATIENTS WITH SYMPTOMS OR DISEASES, GUIDANCE FOR MILITARY FAMILY MEMBERS, AND STRATEGIES TO REDUCE SEXUAL ASSAULT AND OTHER VIOLENCE.