Curepsp Inc

Organization Overview

Curepsp Inc is located in New York, NY. The organization was established in 1991. According to its NTEE Classification (G90) the organization is classified as: Medical Disciplines, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2021, Curepsp Inc employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Curepsp Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2021, Curepsp Inc generated $6.3m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 11.9% each year . All expenses for the organization totaled $3.5m during the year ending 06/2021. While expenses have increased by 1.7% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, Curepsp Inc has awarded 38 individual grants totaling $2,733,911. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBS AND MSA.

Describe the Organization's Program Activity:

Part 3 - Line 4a

CUREPSP ADVANCES THE UNDERSTANDING AND SEEKS TREATMENT AND CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY(PSP) AND RELATED "PRIME OF LIFE" NEURODEGENERATIVE DISEASES BY FUNDING RESEARCH THAT FOCUSES ON (A) THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, (B) BIOMARKERS AND CLINICAL TESTS THAT AID IN DIAGNOSIS, (C) GENETIC VARIANTS THAT ARE ASSOCIATED WITH THE DISEASES, (D) THERAPIES THAT WOULD PREVENT, STOP, OR REVERSE BRAIN DAMAGE ASSOCIATED WITH PATHOLOGICAL PROTEIN ACCUMULATION IN THE BRAIN, AND (E) AIDING PHARMACEUTICAL COMPANIES AND RESEARCH INSTITUTIONS IN RECRUITMENT OF COHORTS FOR CLINICAL TRIALS AND MARKETING OF THOSE TRIALS. CUREPSP PROVIDES CRITICAL BRAIN-TISSUE SAMPLES TO RESEARCHERS THROUGH ITS SUPPORT OF THE MAYO CLINIC'S BRAIN BANK.


CUREPSP ADVOCATES FOR PATIENTS, FAMILIES, AND CAREGIVERS MANAGING PRIME OF LIFE NEURODEGENERATION TO IMPROVE QUALITY OF LIFE AND PATIENT OUTCOMES. CUREPSP DOES THIS THROUGH FAMILY CONFERENCES, CAREGIVER RETREATS, VOLUNTEER DEVELOPMENT, PROFESSIONAL EDUCATION, ONLINE AND PRINTED RESOURCES, AND SOCIAL MEDIA. CUREPSP SUPPORTS SOME 50 SUPPORT GROUPS AND AROUND 200 VOLUNTEERS PROVIDING ONLINE, TELEPHONE, AND FACE-TO-FACE SUPPORT WORLDWIDE. CUREPSP'S CHERIE LEVIEN QUALITY OF LIFE FUND PROVIDES PROFESSIONAL IN-HOME CARE TO FAMILIES IN NEED.


CUREPSP PUBLISHES A LIBRARY OF PRINTED AND ONLINE EDUCATIONAL MATERIALS FOR FAMILIES, PATIENTS, PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS. THE FOUNDATION SPONSORS PROFESSIONAL EDUCATION CONFERENCES IN COLLABORATION WITH LEADING INSTITUTIONS TO INCREASE KNOWLEDGE OF THE DISEASE THAT WILL LEAD TO EARLIER AND MORE ACCURATE DIAGNOSIS AND BETTER PATIENT CARE. SEVERAL DOZEN VOLUNTEER EVENTS ANNUALLY SUPPORTED BY CUREPSP FURTHER EDUCATE THE GENERAL PUBLIC. CUREPSP USES SEVERAL SOCIAL MEDIA PLATFORMS TO COMMUNICATE WITH ITS CONSTITUENTS, MAINTAINS AN ONLINE PATIENT AND CAREGIVER FORUM, AND PRODUCES NATIONAL WEBINARS, ONLINE SUPPORT GROUPS, AND ONLINE PRESENTATIONS FROM CLINICIANS AND RESEARCHERS.


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Board, Officers & Key Employees

Name (title)Compensation
David Kemp
President
$194,000
Kristophe Diaz
Vp-Sci. Affairs
$169,932
William Mcfarland
Chair
$0
Amy Branch
Vice Chair
$0
Lawrence Levien
Secretary
$0
Justin Shea
Treasurer
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Kiwi Partners Inc
Accounting Services
$104,045
Regina Printing
Printing Services
$181,522
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$222,837
Related organizations$0
Government grants $134,035
All other contributions, gifts, grants, and similar amounts not included above$5,934,036
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$6,290,908
Total Program Service Revenue$0
Investment income $18,990
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $8,448
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $6,342,039

Grants Awarded

Over the last fiscal year, Curepsp Inc has awarded $647,195 in support to 9 organizations.

Grant RecipientAmount

NORTH TEXAS COMMUNITY FDTN

Org PageRecipient Profile

Fort Worth, TX

PURPOSE: Research

$200,000

THE REGENTS OF THE UCLA

Org PageRecipient Profile

Los Angeles, CA

PURPOSE: Research

$100,000

Shrewsbury, MA

PURPOSE: Research

$90,000

UNIVERSITY OF PENNSYLVANIA

Org PageRecipient Profile

Philadelphia, PA

PURPOSE: Research

$90,000

Phoenix, AZ

PURPOSE: Research

$90,000

JEFF GOLUB DOCUMENTARY LLC

PURPOSE: Research

$31,620
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 53 grants that Curepsp Inc has recieved totaling $258,590.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$55,876
Community Foundation Of New Jersey

Morristown, NJ

PURPOSE: GENERAL SUPPORT

$55,619
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$24,000
Kathryn J Dinardo Tr Fund

Pittsburgh, PA

PURPOSE: CONDUCTS RESEARCH TO ABATE DISEASES

$10,000
Morgan Stanley Global Impact Funding Trust Inc

Indianapolis, IN

PURPOSE: UNRESTRICTED GENERAL SUPPORT

$10,000
Community Foundation Of North Texas

Fort Worth, TX

PURPOSE: IN HONOR OF TODD RAINWATER

$10,000
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$316,620
Earnings$80,458
Ending Balance$397,078

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