Childrens Inn At Nih Inc

TO KEEP FAMILIES TOGETHER DURING ILLNESS IN A SUPPORTIVE, THERAPEUTIC & EDUCATIONAL ENVIRONMENT

HOUSING -THE CHILDREN'S INN AT NIH WAS FOUNDED 32 YEARS AGO TO PROVIDE A COMFORTABLE AND NURTURING "PLACE LIKE HOME" AT NO COST TO FAMILIES WITH CHILDREN PARTICIPATING IN CLINICAL RESEARCH STUDIES FOR THE TREATMENT OF RARE AND SEVERE DISEASES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). TODAY, THE INN SERVES CHILDREN, TEENS AND YOUNG ADULTS UP TO 30 YEARS OLD, AS WELL AS THEIR FAMILIES, ENSURING ACESS TO POTENTIALLY LIFESAVING RESEARCH AND RELATED CLINICAL CARE AT THE NIH CLINICAL CENTER. FOR MANY FAMILIES, THE COSTS OF LODGING IN THE WASHINGTON, D.C. METRO AREA WOULD BE A BARRIER TO PARTICIPATING IN CLINICAL RESEARCH WITHOUT THE INN'S FREE HOUSING. NIH SCIENTISTS WORK WITH YOUNG RESEARCH PARTICIPANTS TO PIONEER MEDICAL INNOVATIONS THAT IMPROVE THE LIVES AND SURVIVAL RATES OF YOUNG PEOPLE WORLDWIDE. IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH.THE CHILDREN'S INN FEATURES ACCOMMODATIONS FOR 60 FAMILIES. WHILE MOST FAMILIES SPEND BETWEEN 1-5 NIGHTS AT THE INN PER VISIT, MANY STAY FOR WEEKS, MONTHS OR YEARS TO RECEIVE TREATMENTS SUCH AS GENE THERAPY, IMMUNE THERAPY OR BONE MARROW TRANSPLANTS THAT REQUIRE LENGTHY PREPARATION AND RECUPERATION TIMES. IN AN AVERAGE YEAR, MORE THAN 1,500 FAMILIES WILL STAY AT THE INN. FAMILIES HAVE COME FROM EVERY US STATE AND 105 FOREIGN COUNTRIES.AS A "PLACE LIKE HOME," THE INN MAKES IT POSSIBLE FOR FAMILIES TO ENGAGE IN TYPICAL EVERY DAY ACTIVITIES EASILY AND COMFORTABLY-MEAL PREPARATION, HOMEWORK, LAUNDRY, EXERCISE, AND TIME TOGETHER AS A FAMILY-WHILE ALSO PROVIDING AMPLE SPACE TO PLAY, RELAX, AND PARTICIPATE IN FUN AND EDUCATIONAL ACTIVITIES. FAMILIES HAVE ACCESS TO THREE FULLY EQUIPPED KITCHENS WITH SEPARATE REFRIGERATOR/FREEZERS AND CABINET SPACE, SHARED LIVING AND DINING ROOMS AND LAUNDRY ROOMS. COMMUNITY PANTRIES ARE STOCKED WITH FREE, NON-PERISHABLE FOODS FOR SIMPLE MEALS, AND TRANSPORTATION TO GROCERY STORES IS PROVIDED THREE TIMES A WEEK. IN ADDITION, EVERY FAMILY IS ELIGIBLE FOR GROCERY GIFT CARDS. THE CHILDREN'S INN HAS MULTIPLE INDOOR PLAY SPACES, A COMPUTER ROOM, AN EDUCATION CENTER, AND AN ART ROOM TO PLAY, LEARN, MAKE FRIENDS AND PARTICIPATE IN THE INN'S WIDE ARRAY OF RECREATIONAL, WELLNESS, AND EDUCATIONAL ACTIVITIES.THE INN'S EXERCISE ROOM PROVIDES THE CHANCE TO WORK OUT ALONE OR AS PART OF INSTRUCTOR-LED GROUP EXERCISE CLASSES. A REFLECTION SPACE PROVIDES FAMILIES A QUIET ROOM TO PRAY OR ENGAGE IN SPIRITUAL ACTIVITIES. WHEN THE WEATHER ALLOWS, THE INN'S LARGE PLAYGROUND IS THE PERFECT PLACE FOR CHILDREN TO MEET OTHER CHILDREN, WHILE THE SPORTS COURT PROVIDES THE OPPORTUNITY TO PRACTICE A VARIETY OF SPORTS. COMMUNITY BIKES, TRIKES, SCOOTERS AND OTHER EQUIPMENT ARE AVAILABLE, AND WALKING PATHS ALLOW FAMILIES TO STROLL. THE INN'S WELCOMING PHYSICAL SPACE AND ITS MANY FAMILY-CENTERED ACTIVITIES MAKE IT EASY FOR FAMILIES TO GET TO KNOW ONE ANOTHER AND FORM DEEP CONNECTIONS THAT LEAD TO LASTING, SUPPORTIVE FRIENDSHIPS REGARDLESS OF AGE OR BACKGROUND. ARRIVING AT THE INN, MAY BE THE FIRST TIME A CHILD OR TEEN MAY MEET SOMEONE WITH A SIMILAR RARE DISEASE. IN JUNE 2018, THE INN LAUNCHED ITS MULTIYEAR STRATEGIC PLAN, "#INN2025." THE PLAN'S THREE MAIN GOALS ARE:- TO IMPROVE OUR FACILITY TO BETTER SERVE FAMILIES - TO ENHANCE OUR ABILITY TO SUPPORT FAMILIES AND NIH'S RESEARCH STUDIES, AND - TO DIVERSIFY AND STRENGTHEN OUR FISCAL SUSTAINABILITY. OVER THE PAST YEAR, BOARD AND STAFF HAVE WORKED CLOSELY WITH ARCHITECTS FROM PERKINS & WILL TO ENVISION THE INN OF THE FUTURE. CONSTRUCTION IS EXPECTED TO COMMENCE IN 2024. CURRENT COST ESTIMATES ARE BETWEEN $35,000,000 AND $45,000,000. A CAPITAL CAMPAIGN IS CURRENTLY BEING LAUNCHED TO HELP FUND THE PROJECT.WHILE THE FULL IMPLEMENTATION OF THE RENOVATION AND EXPANSION ENVISIONED IN THE STRATEGIC PLAN IS STILL SEVERAL YEARS AWAY, THE INN HAS CONTINUED TO FOCUS ON THE COMFORT AND SAFETY OF THE FAMILIES CURRENTLY VISITING. DURING FY22, SEVERAL GUEST ROOMS AND THE CHILDREN'S PLAYROOM RECEIVED NEW PAINT, FLOORING, FIXTURES AND TOYS. THESE UPDATES WILL BRIDGE THE GAP FOR ROOMS SHOWING THE WEAR AND TEAR OF MANY YEARS OF USE, AND THE RENOVATION OF ALL THE GUEST ROOMS WHICH IS EXPECTED TO BE COMPLETE WITHIN 5 YEARS. DURING FY22:657 PEDIATRIC, TEEN AND YOUNG ADULT PATIENTS AND THEIR FAMILIES VISITED THE INN AND STAYED FOR 9,111 NIGHTS. DUE TO THE COVID-19 PANDEMIC, THIS IS LOWER THAN OUR TYPICAL YEAR WHEN WE SERVE MORE THAN 1,500 FAMILIES. -HOUSING COSTS TO SUPPORT THESE FAMILIES TOTALED $4,556,938. -ADDITIONAL IN-KIND SUPPORT THROUGH PARTNERSHIPS WITH THE NIH, CORPORATE SPONSORS, AND INDIVIDUALS TOTALED $2,424,258. -THE INN WAS SUPPORTED BY A DEDICATED GROUP OF VOLUNTEERS WHO GAVE519 HOURS OF SERVICE WITH AN ESTIMATED VALUE OF $15,544 -THE TOTAL COSTS OF HOUSING SERVICES WAS $6,996,740.ON MARCH 23, 2020, TO REDUCE THE RISK OF TRANSMISSION OF COVID-19 AND ENHANCE STAFF SAFETY, THE NIH SHIFTED TO MISSION-CRITICAL FUNCTIONS. WHILE WE ARE CONTINUING TO RETURN TO PRE-COVID ACTIVITIES, THROUGH FY22 THE INN HAS MAINTAINED MANY OF THE CHANGES THAT WERE PREVIOUSLY PUT IN PLACE. THESE CHANGES INCLUDE:-MANDATORY MASK USAGE, SOCIAL DISTANCING AND HEALTH SCREENING.-LIMITED ONSITE VOLUNTEERS AND VISITORS ARE ALLOWED BASED ON ORGANIZATIONAL NEEDS.-SUSPENSION OF GROCERY STORE TRIPS -INSTEAD, INN STAFF CONTINUE TO COORDINATE GROCERY DELIVERIES FOR FAMILIES. -TO REPLACE THE MEALS DONATED TO FAMILIES WEEKLY BY COMMUNITY GROUPS, THE INN CONTINUES TO PURCHASE AND COORDINATE THE DELIVERY OF INDIVIDUALLY PACKAGED MEALS DAILY.-FAMILIES RESERVE A TIME TO COOK IN EACH OF THE KITCHENS TO PRACTICE SAFE DISTANCING.-IN FY2022 ADDITONAL SOCIALLY DISTANCED OFFSITE ACTIVITIES WERE RE-INSTATED ALLOWING FAMILIES TO PARTICIPATE. THE INN ALSO HOLDS OUTDOOR ACTIVITIES THAT MAKE PHYSICAL DISTANCING EASIER, SUCH AS MOVIE NIGHTS ON THE PLAYGROUND, PICNICS AND CAMPOUTS.-THE INN CONTINUES TO WORK CLOSELY WITH NIH EPIDEMIOLOGISTS TO ADJUST PROCEDURES AS NEEDED.

RESIDENT SERVICES - IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH. THROUGH THE FAMILY SUPPORT PROGRAM, THE INN AIMS TO MEET THE VARIOUS NEEDS OF FAMILIES WHO ARE STAYING WITH US BY DEVELOPING AND IMPLEMENTING THERAPEUTIC, RECREATIONAL AND EDUCATIONAL PROGRAMS. KEEPING FAMILIES TOGETHER IS CRUCIAL FOR THEIR HEALTH AND WELL-BEING, ESPECIALLY WHEN FACED WITH A CHILD'S RARE AND SERIOUS ILLNESS. THESE ACTIVITIES NOT ONLY PROVIDE ENTERTAINMENT BUT ALSO HELP FOSTER LASTING RELATIONSHIPS WITH OTHER FAMILIES, CREATING THE INN'S UNIQUE NURTURING AND SUPPORTIVE COMMUNITY.THE INN'S ENVIRONMENT SUPPORTS FAMILY LIFE AND MEETS EVERYDAY NEEDS SUCH AS COOKING A CHILD'S FAVORITE MEAL, SPENDING QUALITY TIME TOGETHER OUTSIDE THE HOSPITAL, AND PARTICIPATING IN RECREATIONAL ACTIVITIES TOGETHER. IN THIS ERA OF PHYSICAL DISTANCING DUE TO THE COVID-19 PANDEMIC, THE HEALTH AND SAFETY OF OUR FAMILIES REMAINS OUR TOP PRIORITY. ALL ACTIVITIES ARE DESIGNED TO BE INCLUSIVE, SO THAT EACH RESIDENT FEELS A SENSE OF BELONGING, SAFETY, CARE AND, MOST IMPORTANTLY, HAS FUN. WHETHER IT BE THROUGH A RELAXING YOGA SESSION, MOVIE NIGHT ON THE PLAYGROUND, OR A SAILING TRIP AROUND CHESAPEAKE BAY, OUR WIDE RANGE OF ACTIVITIES OFFER FAMILIES A CHANCE TO SIMPLY ENJOY THEMSELVES.THE INN'S EDUCATIONAL PROGRAMS SUPPORT THE PATIENT AND THEIR SIBLINGS WITH SCHOOLWORK AND GROUP ACTIVITIES. CHILDREN CAN BE MATCHED WITH INDIVIDUAL TUTORS BASED ON THEIR EDUCATIONAL NEEDS AND LANGUAGE PREFERENCES. EDUCATIONAL ACTIVITIES INCLUDE LEARNING ABOUT TECHNOLOGY OR MEETING CHILDREN'S BOOK AUTHORS WHO LEAD LIVELY DISCUSSIONS ABOUT THE FUN OF READING AND WRITING STORIES. SPECIAL ACTIVITIES FOR PATIENTS AND THEIR SIBLINGS INCLUDE:- CAMP INNCREDIBLE: ALLOWS CHILDREN TO PARTICIPATE IN TYPICAL CAMP ACTIVITIES DURING THE SUMMER MONTHS. RECENTLY, THE INN ADDED CAMP ACTIVITIES FOR TEENS ANDACTIVITIES DURING SPRING AND WINTER SCHOOL BREAKS. - SIBLING DAY: PROVIDES THE CHANCE FOR SIBLINGS TO LEARN ABOUT THE MEDICAL PROCEDURES THEIR SICK SIBLING MAY UNDERGO AND RECOGNIZES THEM AS "SUPER SIBS" FOR THEIR MANY IMPORTANT CONTRIBUTIONS TO THEIR FAMILIES.THE CHILDREN'S INN PROVIDES SUPPORT AND ACTIVITIES FOR OUR TEEN AND YOUNG ADULT RESIDENTS. THE TEEN AND YOUNG ADULT LOUNGE IS DESIGNED FOR AGES 13 AND OLDER TO HAVE THEIR OWN SPACE TO PLAY BOARD AND VIDEO GAMES, READ, STUDY, PARTICIPATE IN ORGANIZED GROUP DISCUSSIONS OR GATHER BEFORE OUTINGS TO LOCAL RESTAURANTS, LIVE CONCERTS AND SHOWS. THE CHANCE TO GET TO KNOW, SOCIALIZE AND MAKE FRIENDS WITH PEERS OF THE SAME AGE FACED WITH CHRONIC OR LIFE-THREATENING DISEASES IS WELCOMED BY OUR YOUNG PEOPLE WHO TYPICALLY HAVE NEVER HAD THE CHANCE TO MEET OTHERS FACED WITH SIMILAR, RARE HEALTH CHALLENGES. EACH YEAR, THE INN PROVIDES TWO DAYS OF SPECIAL ACTIVITIES FOR OUR TEEN RESIDENTS PARTICIPATING IN THE "TEEN RETREAT."THE CHILDREN'S INN IS EXPANDING PROGRAMS AND ACTIVITIES FOR OUR YOUNG ADULTS WHO OFTEN HAVE NOT HAD THE CHANCE TO DEVELOP INDEPENDENT LIVING SKILLS TO THE SAME DEGREE AS THEIR HEALTHY PEERS.. IN 2024, THE INN PLANS TO OPEN A SECOND BUILDING LOCATED DIRECTLY ACROSS THE STREET, WHICH WILL PROVIDE HOUSING DESIGNED FOR OUR YOUNG ADULTS, AGES 18-30. CAREGIVER GATHERINGS LED BY THE CLINICAL CENTER'S NON-DENOMINATIONAL CHAPLAIN PROVIDE PARENTS, GRANDPARENTS AND OTHERS WITH THE CHANCE TO ENGAGE IN DISCUSSIONS, SING SONGS TOGETHER AND EXPLORE THEIR SPIRITUALITY. MANY CAREGIVERS REPORT THEY FIND SOLACE AND INSPIRATION IN CONVERSATIONS WITH THE CHAPLAIN AND OTHER FAMILIES. HAVING THE OPPORTUNITY TO EXPRESS AND DISCUSS THE DIFFICULTIES OF THEIR SITUATION STRENGTHENS FAMILIES' BONDS AND THE INN'S NURTURING COMMUNITY. EXERCISE IS ANOTHER MEANINGFUL WAY FOR CAREGIVERS TO PRACTICE SELF-CARE. THE INN'S EXERCISE ROOM PROVIDES WEIGHTS AND CARDIAC EQUIPMENT FOR AN EASY WAY TO STAY IN SHAPE AND DE-STRESS. THE INN OFFERS FREE FITNESS CLASSES TAUGHT BY CERTIFIED TRAINERS THREE TIMES A WEEK. THE INN'S STAFF PROVIDES A WIDE RANGE OF RECREATIONAL FIELD TRIPS TO TOURIST ATTRACTIONS, LOCAL MUSEUMS, ART STUDIOS, SPORTING EVENTS, RESTAURANTS, CONCERTS, MUSICALS AND OTHER FAMILY-FRIENDLY PERFORMANCES. ACTIVITIES FOR THE ENTIRE FAMILY INCLUDE: - CHRISTMAS IN JULY IS A SPECIAL SUMMERTIME VISIT FROM SANTA WHO BRINGS GIFTS AND SURPRISES FOR THE WHOLE FAMILY. -HOLIDAY DECORATIONS AND VISITS FROM SANTA AND THE ELVES, TRANSFORM THE INN INTO A MAGICAL PLACE DURING DECEMBER. EVERY CHILD AND FAMILY MEMBER CAN WRITE SANTA A WISH LIST, AND SANTA AND HIS ELVES ENSURE WISHES ARE FILLED TO THE BEST EXTENT POSSIBLE. MEALS SERVED BY VOLUNTEERS OR INN STAFF ALLOW FAMILIES THE CHANCE TO FOCUS ON THEIR CHILD AND THEIR HEALTH RATHER THAN COOK AFTER LONG DAYS OF TRAVEL OR MEDICAL APPOINTMENTS. TO SUPPORT FAMILIES, VOLUNTEERS AND COMMUNITY GROUPS SERVE BREAKFAST MOST DAYS AND DINNERS MOST NIGHTS OF THE WEEK, AS WELL AS SUNDAY BRUNCH. RECENTLY, THE INN BEGAN SERVING LUNCH TO SUPPORT FAMILIES FURTHER AND OFFER THEM AN ADDITIONAL MEAL, FREE OF CHARGE. WE ALSO INCLUDE MEAL OPTIONS FOR VARIOUS DIETARY RESTRICTIONS AND MEET STRICT FOOD STANDARDS FOR OUR TRANSPLANT PATIENTS. THE EXPANDED OPTIONS INCLUDE GLUTEN-FREE, FAT-FREE AND DAIRY-FREE MEALS, FRESH FRUIT AND VEGETABLES AND VEGETARIAN OPTIONS. SHARED MEALS BRING FAMILIES TOGETHER WHERE THEY CAN MEET ONE ANOTHER AND BOND. INTERNATIONALLY THEMED DINNERS ORGANIZED BY OUR STAFF PROVIDE THE OPPORTUNITY FOR FAMILIES FROM DIFFERENT COUNTRIES AND CULTURES TO SHARE THEIR NATIONAL DISHES AND CELEBRATE THEIR CULTURES WITH OUR COMMUNITY OF RESIDENTS.FOR FAMILIES WISHING TO COOK, NON-PERISHABLE ITEMS FOR QUICK MEALS ARE PROVIDED FREE OF CHARGE IN OUR KITCHENS' COMMUNITY PANTRIES. OUR TEAM ORGANIZES TRIPS TO THE GROCERY STORE THREE TIMES A WEEK AND PROVIDES GROCERY GIFT CARDS TO FAMILIES. OUR KITCHENS HAVE INDIVIDUAL REFRIGERATORS/FREEZERS AND PANTRY SPACE FOR EASY, HYGIENIC FOOD STORAGE.TO HELP NON-ENGLISH-SPEAKING FAMILIES, TUTORING IS AVAILABLE FREE OF CHARGE. MULTILINGUAL STAFF AND PHONE-ACCESSIBLE TRANSLATION SERVICES ARE ALWAYS AVAILABLE TO HELP FAMILIES COMMUNICATE. A GROUP OF DEDICATED VOLUNTEERS SUPPORTS THE INN'S STAFF BY MANAGING THE WELCOME DESK, CHECKING FAMILIES IN AND OUT OF THE INN, STOCKING THE KITCHENS, ORGANIZING IN-KIND DONATIONS AND OFFERING INFORMATION TO FAMILIES ABOUT LOCAL CULTURE AND TOURIST ATTRACTIONS, PUBLIC TRANSPORTATION AND MORE. IN FY2022, -1,085 RECREATIONAL, EDUCATIONAL AND THERAPEUTIC ACTIVITIES FOR CHILDREN, TEENS, YOUNG ADULTS AND THEIR CAREGIVERS WERE OFFERED - RESIDENT SUPPORT SERVICES COSTS TOTALED:$2,294,953 - ADDITIONAL IN-KIND SUPPORT TOTALED: $548,467 - VOLUNTEERS PROVIDED 3,076 HOURS OF SERVICE, VALUED AT: $92,126 - TOTAL MANAGED EFFORT RESIDENT SERVICES AND FAMILY PROGRAMS WAS: $2,935,546.