Aplastic Anemia & Mds International Foundation Inc
- Assets
- $5.2m
- Revenue
- $3.5m
- Investments
- $0.0
- Employees
- 12
- Location
- Bethesda, MD
- Founding
- 05/1984
- Data as of
- 12/2021
- EIN
- 52-1336903
Organization Overview
Aplastic Anemia & Mds International Foundation Inc is located in Bethesda, MD. The organization was established in 1984. According to its NTEE Classification (H99) the organization is classified as: Medical Research N.E.C., under the broad grouping of Medical Research and related organizations. As of 12/2021, Aplastic Anemia & Mds International Foundation Inc employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Aplastic Anemia & Mds International Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Aplastic Anemia & Mds International Foundation Inc generated $3.5m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (6.4%) each year. All expenses for the organization totaled $2.1m during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (15.0%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Aplastic Anemia & Mds International Foundation Inc has awarded 85 individual grants totaling $9,926,028. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Janice Frey-Angel CEO | Officer | 40 | $201,045 |
Neil Horikoshi JD MBA Former CEO | 0 | $200,000 | |
Alice Houk Senior Director, Health Pr | 40 | $109,875 | |
Desiree L Ruiters Senior Director Of Development | 40 | $102,228 | |
Kevin Lyons-Tarr Chair | OfficerTrustee | 2 | $0 |
Tony Sanfilippo Treasurer | OfficerTrustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Calvert Computer Solutions It Services | 12/30/16 | $103,754 |
The Gardiner Group Professional Services | 12/30/16 | $117,330 |
Calibre Cpa Group Professional Services | 12/30/16 | $205,660 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $281,390 |
| Related organizations | $0 |
| Government grants | $182,336 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,925,002 |
| Noncash contributions included in lines 1a–1f | $3,293 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,388,728 |
| Total Program Service Revenue | $0 |
| Investment income | $51,744 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $25,673 |
| Net Income from Fundraising Events | -$7,453 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,484,930 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $96,238 |
| Grants and other assistance to domestic individuals. | $1,343 |
| Grants and other assistance to Foreign Orgs/Individuals | $30,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $447,215 |
| Compensation of current officers, directors, key employees. | $20,849 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $398,168 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $44,635 |
| Payroll taxes | $66,206 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $15,746 |
| Fees for services: Other | $494,914 |
| Advertising and promotion | $0 |
| Office expenses | $66,976 |
| Information technology | $148,450 |
| Royalties | $0 |
| Occupancy | $178,912 |
| Travel | $50,979 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $33,915 |
| Insurance | $19,757 |
| All other expenses | $0 |
| Total functional expenses | $2,124,677 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,664,573 |
| Savings and temporary cash investments | $109,675 |
| Pledges and grants receivable | $367,344 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $23,250 |
| Net Land, buildings, and equipment | $50,886 |
| Investments—publicly traded securities | $1,613,778 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $369,870 |
| Total assets | $5,199,376 |
| Accounts payable and accrued expenses | $162,491 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $62,243 |
| Total liabilities | $224,734 |
| Net assets without donor restrictions | $3,766,727 |
| Net assets with donor restrictions | $1,207,915 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,199,376 |
Grants Awarded
Over the last fiscal year, Aplastic Anemia & Mds International Foundation Inc has awarded $96,238 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
Bethesda, MD PURPOSE: RESEARCH | $30,000 |
NYU SCHOOL OF MEDICINE PURPOSE: RESEARCH | $30,000 |
Chicago, IL PURPOSE: RESEARCH | $26,238 |
Doylestown, PA PURPOSE: RESEARCH | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 17 grants that Aplastic Anemia & Mds International Foundation Inc has recieved totaling $70,662.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $18,350 |
The Good Shepherd Fund Las Vegas, NV PURPOSE: ANNUAL GIVING | $10,000 |
Janie Dean Charitable Foundation Palm Beach Gardens, FL PURPOSE: SUPPORT TO FAMILIES AND PATIENTS LIVING WITH BONE MARROW FAILURE DISEASES, APLASTIC ANEMIA | $10,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: PUBLIC, SOCIETAL BENEFIT | $8,850 |
Charities Aid Foundation America Alexandria, VA PURPOSE: CHARITABLE DONATION | $7,890 |
Samuels Family Foundation Inc Highland Beach, FL PURPOSE: TO SUPPORT EXEMPT ACTIVITIES | $5,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Lankenau Institute For Medical Research Wynnewood, PA | $8,021,343 | $9,109,367 |
Institute For Humane Studies Arlington, VA | $19,221,469 | $20,882,389 |
Medical Device Innovation Consortium Arlington, VA | $8,765,414 | $16,908,156 |
Coalition Of Cancer Cooperative Groups Philadelphia, PA | $21,235,863 | $14,701,631 |
Council Of Independent Colleges Washington, DC | $74,304,856 | $12,399,028 |
University Of Maryland Family Medicine Associates Pa Baltimore, MD | $1,189,573 | $10,954,092 |
Friedreichs Ataxia Research Alliance Fara Springfield, VA | $7,478,784 | $7,717,778 |
National Disease Research Interchange Philadelphia, PA | $6,059,781 | $7,072,153 |
Council Of The Great City Schools Washington, DC | $15,898,076 | $7,382,134 |
National Grain And Feed Association Arlington, VA | $10,815,590 | $5,604,417 |
Copper Development Association Inc Mclean, VA | $5,141,566 | $5,540,739 |
National Chicken Council Inc Washington, DC | $3,826,159 | $4,782,126 |