Aplastic Anemia & Mds International Foundation Inc
- Assets
- $7.2m
- Revenue
- $3.4m
- Investments
- $0.0
- Employees
- 10
- Location
- Rockville, MD
- Founding
- 05/1984
- Data as of
- 12/2023
- EIN
- 52-1336903
Organization Overview
Aplastic Anemia & Mds International Foundation Inc is located in Rockville, MD. The organization was established in 1984. According to its NTEE Classification (H99) the organization is classified as: Medical Research N.E.C., under the broad grouping of Medical Research and related organizations. As of 12/2023, Aplastic Anemia & Mds International Foundation Inc employed 10 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Aplastic Anemia & Mds International Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Aplastic Anemia & Mds International Foundation Inc generated $3.4m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (5.3%) each year. All expenses for the organization totaled $2.5m during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (10.3%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Aplastic Anemia & Mds International Foundation Inc has awarded 93 individual grants totaling $10,166,028. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Deborah Cook Chair | OfficerTrustee | 2 | $0 |
Judy Paulette Vice-Chair | OfficerTrustee | 1 | $0 |
Chris Mills Secretary | OfficerTrustee | 1 | $0 |
Rebecca Doane Treasurer | OfficerTrustee | 1 | $0 |
Marlena Connor Director | Trustee | 1 | $0 |
Bart S Fisher Director | Trustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
East-west Towers Llc Rental Real Estate | 12/30/23 | $186,045 |
Calibre Cpa Group Pllc Professional Services | 12/30/23 | $142,380 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $338,866 |
| Related organizations | $0 |
| Government grants | $81,314 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,916,740 |
| Noncash contributions included in lines 1a–1f | $11,974 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,336,920 |
| Total Program Service Revenue | $0 |
| Investment income | $126,602 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$4,157 |
| Net Income from Fundraising Events | -$42,407 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,416,958 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $161,374 |
| Grants and other assistance to domestic individuals. | $7,652 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $261,428 |
| Compensation of current officers, directors, key employees. | $17,352 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $684,467 |
| Pension plan accruals and contributions | $9,395 |
| Other employee benefits | $60,837 |
| Payroll taxes | $63,840 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $14,872 |
| Fees for services: Other | $602,160 |
| Advertising and promotion | $0 |
| Office expenses | $99,992 |
| Information technology | $94,267 |
| Royalties | $0 |
| Occupancy | $189,892 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $172,675 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $32,044 |
| Insurance | $20,533 |
| All other expenses | $0 |
| Total functional expenses | $2,486,226 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $259,773 |
| Savings and temporary cash investments | $2,893,129 |
| Pledges and grants receivable | $345,615 |
| Accounts receivable, net | $18,641 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $54,470 |
| Net Land, buildings, and equipment | $83,667 |
| Investments—publicly traded securities | $2,538,107 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,036,248 |
| Total assets | $7,229,650 |
| Accounts payable and accrued expenses | $89,525 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $646,000 |
| Total liabilities | $735,525 |
| Net assets without donor restrictions | $5,301,759 |
| Net assets with donor restrictions | $1,192,366 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $7,229,650 |
Grants Awarded
Over the last fiscal year, Aplastic Anemia & Mds International Foundation Inc has awarded $120,000 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
NYU SCHOOL OF MEDICINE PURPOSE: RESEARCH | $30,000 |
TRUSTEES OF UNIVERSITY OF PENNSYLVANIA PURPOSE: RESEARCH | $30,000 |
MEMORIAL SLOAN-KETTERING CANCER CENTER PURPOSE: RESEARCH | $30,000 |
ST JUDE CHILDREN'S RESEARCH HOSPITAL PURPOSE: RESEARCH | $30,000 |