National Down Syndrome Congress
- Assets
- $534.0k
- Revenue
- $732.2k
- Investments
- $0.0
- Employees
- 6
- Location
- Roswell, GA
- Founding
- 10/1975
- Data as of
- 12/2021
- EIN
- 51-0163631
Organization Overview
National Down Syndrome Congress is located in Roswell, GA. The organization was established in 1975. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, National Down Syndrome Congress employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Down Syndrome Congress is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, National Down Syndrome Congress generated $732.2k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (3.7%) each year. All expenses for the organization totaled $930.6k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (2.9%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
SEE SCHEDULE O
Describe the Organization's Program Activity:
Part 3 - Line 4a
NDSC RESOURCE CENTER - NDSC CONTINUES ITS OUTREACH TO UNDERSERVED POPULATIONS, EXPANDING ITS CONTACT WITH HISPANIC, AFRICAN AMERICAN, AND MIDDLE EASTERN FAMILIES. NDSC ALSO HAS A GOVERNMENT AFFAIRS FUNCTION, WHICH INCLUDES A REPRESENTATIVE IN WASHINGTON, DC WHO INFORMS THE MEMBERSHIP OF CURRENT LEGISLATIVE INITIATIVES REGARDING DOWN SYNDROME AND RELATED TOPICS. NDSC ALSO HAS AN AWARENESS CAMPAIGN WHEREBY IT PRINTS ADVERTISEMENTS AND PUBLIC SERVICE ANNOUCEMENTS BROADCASTED TO BRING AWARENESS TO THE DISPARITIES THAT PEOPLE WITH DOWN SYNDROME FACE IN EDUCATION, THE WORK FORCE AND THE GENERAL COMMUNITY.
CONVENTION - ANNUAL CONFERENCE HELD TO EDUCATE PARENTS, PERSONS WITH DOWN SYNDROME, AND PROFESSIONALS ON A VARIETY OF TOPICS INCLUDING HEALTHCARE, EDUCATION, AND ADVOCACY.NDSC'S 49TH ANNUAL CONVENTION PROVIDED SEMINARS ON A VARIETY OF TOPICS SPANNING THE LIFESPAN OF INDIVIDUALS WITH DOWN SYNDROME. THE ANNUAL CONVENTION WAS A VIRTUAL PLATFORM THIS YEAR DUE TO THE COVID-19 PANDEMIC.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
David Tolleson Executive Director | Officer | 40 | $133,750 |
Mitchel Rothholz 3rd Vice President | OfficerTrustee | 1 | $0 |
Valerie Williams 2nd Vice President | OfficerTrustee | 2 | $0 |
Kate Dougherty 1st Vice President | OfficerTrustee | 3 | $0 |
Dana Halle 4th Vice President | OfficerTrustee | 3 | $0 |
Zachary Carroll Treasurer | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $1,844 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $117,900 |
| Government grants | $75,900 |
| All other contributions, gifts, grants, and similar amounts not included above | $354,860 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $550,504 |
| Total Program Service Revenue | $107,805 |
| Investment income | $5,760 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $68,086 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $732,155 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $133,750 |
| Compensation of current officers, directors, key employees. | $43,020 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $169,088 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $27,434 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $12,498 |
| Fees for services: Lobbying | $17,500 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $2,509 |
| Fees for services: Other | $326,942 |
| Advertising and promotion | $60,325 |
| Office expenses | $53,775 |
| Information technology | $6,047 |
| Royalties | $0 |
| Occupancy | $44,174 |
| Travel | $7,532 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $33,612 |
| Interest | $111 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $734 |
| Insurance | $6,909 |
| All other expenses | $0 |
| Total functional expenses | $930,611 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $381,818 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,245 |
| Net Land, buildings, and equipment | $1,724 |
| Investments—publicly traded securities | $144,944 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $2,259 |
| Total assets | $533,990 |
| Accounts payable and accrued expenses | $29,984 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $2,131 |
| Other liabilities | $7,864 |
| Total liabilities | $39,979 |
| Net assets without donor restrictions | $336,885 |
| Net assets with donor restrictions | $157,126 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $533,990 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that National Down Syndrome Congress has recieved totaling $39,894.
| Awarding Organization | Amount |
|---|---|
The Anna And John J Sie Foundation Denver, CO PURPOSE: PROVIDES INFORMATION, ADVOCACY AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME | $12,500 |
The Anna And John J Sie Foundation Denver, CO PURPOSE: PROVIDES INFORMATION, ADVOCACY AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME | $12,500 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $7,042 |
Kim Edwards Charitable Foundation Inc Lexington, KY PURPOSE: CHARITABLE | $5,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,752 |
Baird Foundation Inc Milwaukee, WI PURPOSE: HEALTH AND HUMAN SERVICES | $50 |
Endowment Analysis
| Beg. Balance | $3,138,540 |
| Earnings | $383,488 |
| Net Contributions | $30,000 |
| Other Expense | $131,978 |
| Ending Balance | $3,420,050 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Harwood Center Inc Memphis, TN | $4,064,983 | $2,916,893 |
Space Coast Early Intervention Center Inc Melbourne, FL | $2,922,251 | $1,801,540 |
National Down Syndrome Congress Roswell, GA | $533,990 | $732,155 |
Down Syndrome Association Of Middle Tennessee Hermitage, TN | $522,901 | $544,904 |
Gold Coast Down Syndrome Organization Inc Boynton Beach, FL | $1,061,245 | $405,422 |
Barclay Downs Swim & Racquet Club Inc Charlotte, NC | $1,611,831 | $500,979 |
Possible Dream Foundation Inc Miami, FL | $0 | $0 |
Down Syndrome Association Of Greater Charlotte Charlotte, NC | $457,544 | $352,182 |
National Hbpa Inc Oldsmar, FL | $269,729 | $296,601 |
Downside Up Hixson, TN | $15,712 | $0 |
Coastal Bringing Up Down Syndrome Of Southeastern Nc Inc Wilmington, NC | $154,653 | $0 |
Down Syndrome Association Of Memphis Cordova, TN | $382,137 | $142,961 |