Arthritis Research Center Foundation Inc

Organization Overview

Arthritis Research Center Foundation Inc, operating under the name National Data Bank For Rheumatic Dis, is located in Wichita, KS. The organization was established in 2000. According to its NTEE Classification (H51) the organization is classified as: Arthritis Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, National Data Bank For Rheumatic Dis employed 17 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Data Bank For Rheumatic Dis is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, National Data Bank For Rheumatic Dis generated $1.8m in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (1.8%) each year. All expenses for the organization totaled $1.7m during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (0.3%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO INCREASE THE GENERAL BODY OF MEDICAL KNOWLEDGE REGARDING RHEUMATIC DISEASES (ARTHRITIS-RELATED ILLNESSES) BY PERFORMING RESEARCH USING THE DATA BANK AND PUBLISHING THAT RESEARCH IN PEER-REVIEWED MEDICAL JOURNALS. THE CLINICAL RESEARCH IS DESIGNED TO IMPROVE THE TREATMENT AND OUTCOMES OF THESE CONDITIONS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

JANSSEN RA: CHARACTERIZE BASELINE DEMOGRAPHIC DIFFERENCES BETWEEN INDIVIDUALS WITH REFRACTORY RA VS INDIVIDUALS WITH NON-REFRACTORY RA AND COMPARE CHANGES IN PATIENT REPORT OUTCOMES (PROS) OVER TIME BETWEEN INDIVIDUALS WITH REFRACTORY AND NON-REFRACTORY RA.


PRECISION: FOR THE PSA COHORT: TO DESCRIBE DIRECT MEDICAL COSTS BY 0.5-POINT INCREMENTS OF THE HEALTH ASSESSMENT QUESTIONNAIRE-DISABILITY INDEX (HAQ-DI) SCORE AMONG PATIENTS WITH PSA. FOR THE AS COHORT: TO DESCRIBE DIRECT MEDICAL COSTS BY 1-POINT INCREMENTS OF THE BATH ANKYLOSING SPONDYLITIS DISABILITY ACTIVITY INDEX (BASDAI) SCORE AMONG PATIENTS WITH AS.


UFCW: TO UNDERSTAND HOW UFCW MEMBERS IN THE US HAVE BEEN AFFECTED BY THE COVID-19 PANDEMIC, INCLUDING COVID-RELATED TOPICS SUCH AS TESTING, ILLNESS OUTBREAKS, AND VACCINATION.


ALL OTHER PROGRAM SERVICE INITIATIVES, INCLUDING REGISTRY THAT USES THE INTERNET TO CREATE A COMMUNITY OF ARTHRITIS PATIENTS, WHO WILLINGLY PROVIDE PATIENT INFORMATION TO BE USED FOR DISCOVERY RESEARCH AND THE DEVELOPMENT OF PERSONALIZED MEDICINE FOR PEOPLE WITH ARTHRITIS, TO GATHER DATA TO BE USED FOR ANALYSES OF HEART DISEASE IN RHEUMATOID ARTHRITIS AND USING THE NDB RA PATIENT DATE FROM 1998 THROUGH JUNE 2011 TO DETERMINE THE MOST COMMON TREATMENT PATHWAYS OVER THE PAST DECADE AND CHARACTERIZE THE PATIENTS ON THESE PATHWAYS.


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Board, Officers & Key Employees

Name (title)Compensation
Rebecca Schumacher
Secretary/treasurer
$85,265
Kaleb Michaud PHD
Director
$41,928
Dr Frederick Wolfe MD
President
$0
Theodore Pincus MD
Director
$0
Donna Hawley PHD
Director
$0
James R O'dell MD
Director
$0

Financial Statements

Statement of Revenue
Federated campaigns$829,235
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $410,855
All other contributions, gifts, grants, and similar amounts not included above$0
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$1,240,090
Total Program Service Revenue$524,093
Investment income $38
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$11,987
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,758,011

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Arthritis Research Center Foundation Inc has recieved totaling $183.

Awarding OrganizationAmount
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$183
View Grant Recipient Profile

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