Friends Of Telethon Foundation Italy Inc
- Assets
- $79.8k
- Revenue
- $9.4k
- Investments
- $0.0
- Employees
- 0
- Location
- New York, NY
- Founding
- 01/2015
- Data as of
- 12/2020
- EIN
- 47-1635833
Organization Overview
Friends Of Telethon Foundation Italy Inc, operating under the name Daybreak Children's Rare Disease Fund, is located in New York, NY. The organization was established in 2015. According to its NTEE Classification (H11) the organization is classified as: Single Organization Support, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Daybreak Children's Rare Disease Fund is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Daybreak Children's Rare Disease Fund generated $9.4k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (43.9%) each year. All expenses for the organization totaled $15.4k during the year ending 12/2020. As we would expect to see with falling revenues, expenses have declined by (40.1%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO SUPPORT THE BEST RESEARCH AIMED AT THE CURE OF RARE GENETIC DISEASES. DAYBREAK CHOOSE AS PRIMARY BENEFICIARIES OF ITS EFFORTS FONDAZIONE TELETHON ITALIA AND ITS TWO WORLD-CLASS RESEARCH CENTERS, TIGEM AND SR-TIGET. DAYBREAK CHILDREN'S RARE DISEASE FUND IS COMMITTED TO RAISE AWARENESS ON RARE GENETIC DISEASES AND TO PROMOTE TIMELY DEVELOPMENT AND AVAILABILITY OF SAFE AND EFFECTIVE DIAGNOSTICS AND TREATMENTS FOR AFFECTED PERSONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DAYBREAK CHILDREN'S RARE DISEASE FUND GRANT-MAKING SUPPORTS THE BEST RESEARCH AIMED AT THE CURE OF RARE GENETIC DISEASES. ITS PRIMARY BENEFICIARIES ARE FONDAZIONE TELETHON ITALIA AND ITS TWO WORLD-CLASS RESEARCH CENTERS, TIGEM AND SR-TIGET.DAYBREAK GRANTS MAY SPONSOR SPECIFIC SCIENTIFIC PROJECTS AND MAY NOT SPONSOR GENERAL OPERATING EXPENSES OF ANY ORGANIZATION.THE ORGANIZATION DID NOT CONDUCT ANY GRANTMAKING ACTIVITIES DURING 2020 DUE TO LACK OF FUNDING.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Tiziana Ciraco Treasurer | OfficerTrustee | 10 | $0 |
Luca Di Montezemolo Chair | OfficerTrustee | 1 | $0 |
Christian Moretti Secretary | OfficerTrustee | 1 | $0 |
Francesca Pasinelli Vice Chair | OfficerTrustee | 1 | $0 |
Michael Caplan Director | Trustee | 1 | $0 |
Priya Stephen Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $9,429 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $9,429 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $9,429 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $6,000 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,042 |
| Advertising and promotion | $0 |
| Office expenses | $1,309 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $7,000 |
| Total functional expenses | $15,351 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $79,787 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $79,787 |
| Accounts payable and accrued expenses | $2,200 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,200 |
| Net assets without donor restrictions | $77,587 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $79,787 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Friends Of Telethon Foundation Italy Inc has recieved totaling $10.
| Awarding Organization | Amount |
|---|---|
Abbvie Foundation North Chicago, IL PURPOSE: MATCHING GRANTS | $10 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
New Jersey Health Foundation Inc Princeton, NJ | $176,302,881 | $3,140,034 |
Research To Prevent Blindness Endowment Fund Inc New York, NY | $317,713,049 | $28,546,765 |
Ats Foundation Inc New York, NY | $0 | $224,022 |
Foundation For Advancement Of Intl Medical Education And Research Philadelphia, PA | $73,208,748 | $9,951,039 |
Nccn Foundation Plymouth Meeting, PA | $7,730,910 | $3,697,738 |
Giovanni Armenise-Harvard Foundation For Scientific Research Boston, MA | $87,268,004 | $3,121,005 |
Cds Wolf Foundation Inc Webster, NY | $18,173,557 | $6,502,648 |
Parkinson Alliance Inc Kingston, NJ | $464,272 | $616,177 |
Margaret M Dyson Tr Uw Fbo Margaret M Dyson Vision Research Institute Poughkeepsie, NY | $4,372,343 | $800,997 |
Simons Fund Conshohocken, PA | $473,099 | $317,439 |
Commonwealth Housing Legal Services Glenside, PA | $760,384 | $699,820 |
Pan Long Island Challenge Inc Wantagh, NY | $24,805 | $0 |