Childhood Arthritis & Rheumatology Research Alliance

Organization Overview

Childhood Arthritis & Rheumatology Research Alliance is located in Washington, DC. The organization was established in 2014. According to its NTEE Classification (G51) the organization is classified as: Arthritis, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Childhood Arthritis & Rheumatology Research Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Childhood Arthritis & Rheumatology Research Alliance generated $6.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.2% each year. All expenses for the organization totaled $10.0m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, Childhood Arthritis & Rheumatology Research Alliance has awarded 81 individual grants totaling $2,799,436. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.


ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.


GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION.


OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.


Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.

Board, Officers & Key Employees

Name (title)Compensation
Emily Von Scheven MD Mas
President
$87,930
Robert Fuhlbrigge MD PHD
Past President
$68,040
Stacy Ardoin MD
Treasurer
$67,500
Robert Colbert MD PHD
Vice President
$40,000
Christy Sandborg MD
Chair
$0
Carol Wallace MD
Director
$0

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Duke Clinical Research Institute
Carra Registry Management
$4,250,011
Executive Director Inc
Management Services
$1,354,905
Boston Children's Hospital
Informatics Support For Registry
$322,233
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$205,868
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$205,868
Total Program Service Revenue$6,231,027
Investment income $1,422
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $6,468,070

Grants Awarded

Over the last fiscal year, Childhood Arthritis & Rheumatology Research Alliance has awarded $870,584 in support to 15 organizations.

Grant RecipientAmount

DUKE MEDICAL CENTER

Org PageRecipient Profile

Durham, NC

PURPOSE: LARGE GRANT

$177,480

NEMOURS FOUNDATION

Org PageRecipient Profile

Jacksonville, FL

PURPOSE: LARGE GRANT

$100,000

UNIVERSITY OF UTAH

Org PageRecipient Profile

Salt Lake City, UT

PURPOSE: LARGE GRANT

$99,896

REGENTS OF THE UNIVERSITY OF MICHIGAN

Org PageRecipient Profile

Ann Arbor, MI

PURPOSE: LARGE GRANT

$98,329

CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER

Org PageRecipient Profile

Cincinnati, OH

PURPOSE: PRECISION DECISION

$69,998

HACKENSACK UMC RESEARCH

Org PageRecipient Profile

Edison, NJ

PURPOSE: SMALL GRANT

$53,034
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Childhood Arthritis & Rheumatology Research Alliance has recieved totaling $4,545,343.

Awarding OrganizationAmount
Arthritis Foundation Inc

Atlanta, GA

PURPOSE: RESEARCH

$4,333,333
Cure Jm Foundation

Leesburg, VA

PURPOSE: SUPPORT THE EXPANSIO

$142,010
Lupus And Allied Diseases Association Inc

Verona, NY

PURPOSE: Pediatric Lupus Research

$70,000
View Grant Recipient Profile

Create an account to unlock the data you need.

or