Hope For Hie
- Assets
- $282.0k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- West Bloomfield, MI
- Founding
- 09/2014
- Data as of
- 12/2021
- EIN
- 46-4038344
Organization Overview
Hope For Hie is located in West Bloomfield, MI. The organization was established in 2014. According to its NTEE Classification (G96) the organization is classified as: Neurology & Neuroscience, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hope For Hie is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hope For Hie generated $161.2k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 16.5% each year . All expenses for the organization totaled $133.2k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
AWARENESS & EDUCATION - OUTREACH PROGRAM TO NEONATAL INTENSIVE CARE UNITS "NICUS" AND SIMILAR ORGANIZATIONS TO RAISE AWARENESS OF HE AND INFORM FAMILIES AFFLICTED WITH HIE THAT A SUPPORT SYSTEM EXISTS. OUTREACH CONSISTS AMONG OTHER THINGS OF PAMPHLETS GIFT BOXES SEE BELOW AND ADMINISTRATION OF A MEDICAL ADVISORY BOARD.
OUTREACH BOXES - CARE BOXES PROVIDED HOSPITALS AND NICUS AROUND THE COUNTRY FOR DISTRIBUTION TO FAMILIES RECENTLY AFFECTED BY HIE.
GIVEAWAYS & FAMILY SUPPORT - PROVIDES SUPPORT AND CARE PACKAGES FOR FAMILIES SUFFERING WITH HIE. PACKAGES CONSIST OF HOLIDAY HOSPITALIZATION AND BEREAVEMENT SUPPORT.
MOM'S RETREAT - RETREAT FOR MOTHERS OF CHILDREN AFFECTED BY HIE. THE RETREAT PROVIDES A VENUE FOR REST RELAXATION DISCUSSION AND COMPANIONSHIP FOR MOTHERS OF HIE-EFFECTED CHILDREN. THE 2020 MOM'S RETREAT WAS RESCHEDULED TO A LATER DATE DUE TO THE COVID-19 PANDEMIC. COSTS INCURRED WILL BE APPLIED TO THE RESCHEDULED RETREAT TO BE HELD AT A FUTURE DATE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Betsy Pilon Executive Director | 45 | $83,208 | |
David Ford President | 5 | $0 | |
Matthew Kegyes Treasurer | 5 | $0 | |
Becky Detlef Secretary | 5 | $0 | |
Crystal Kostick Director At Large | 5 | $0 | |
Amy Cutler Professional Outreach Chair | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $161,216 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $161,216 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $84,458 |
| Occupancy, rent, utilities, and maintenance | $5,172 |
| Printing, publications, postage, and shipping | $2,442 |
| Other expenses | $41,129 |
| Total expenses | $133,201 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $281,979 |
| Other assets | $0 |
| Total assets | $281,979 |
| Total liabilities | $0 |
| Net assets or fund balances | $281,979 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Hope For Hie has recieved totaling $2,510.
| Awarding Organization | Amount |
|---|---|
Deacon Charitable Foundation Citrus Heights, CA PURPOSE: EDUCATION | $2,510 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The International Parkinson And Movement Disorder Society Inc Milwaukee, WI | $48,331,901 | $12,317,485 |
Rehabilitation Center For Neurological Development Piqua, OH | $2,357,958 | $1,363,332 |
Hope For Hie West Bloomfield, MI | $281,979 | $0 |
University Clinical Neurologists Indianapolis, IN | $866,086 | $218,702 |
Lending Hands Of Michigan Inc Portage, MI | $139,886 | $0 |
International Society For Frontotemporal Dementias Inc Indianapolis, IN | $75,327 | $0 |
International Symposium On Neural Regeneration Inc Columbus, OH | $105,537 | $0 |
The Neurosciences Foundation Cincinnati, OH | $0 | $0 |