Down Syndrome Diagnosis Network
- Assets
- $634.0k
- Revenue
- $409.0k
- Investments
- $0.0
- Employees
- 2
- Location
- Stillwater, MN
- Founding
- 07/2014
- Data as of
- 10/2020
- EIN
- 46-3042112
Organization Overview
Down Syndrome Diagnosis Network is located in Stillwater, MN. The organization was established in 2014. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 10/2020, Down Syndrome Diagnosis Network employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Down Syndrome Diagnosis Network is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 10/2020, Down Syndrome Diagnosis Network generated $409.0k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 34.0% each year . All expenses for the organization totaled $255.6k during the year ending 10/2020. While expenses have increased by 40.0% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION IS TO CONNECT, SUPPORT, AND PROVIDE ACCURATE INFORMATION TO FAMILIES WITH A DOWN SYNDROME DIAGNOSIS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CONNECT - DSDN HOSTS ANNUAL RETREATS FOR MOMS AND DADS (SEPARATELY) OF CHILDREN WITH DOWN SYNDROME TO ALLOW THEM TO CONNECT, BE INSPIRED, RECHARGE, AND GIVE BACK TO THE LOCAL COMMUNITY THROUGH VOLUNTEER PROJECTS. THE RETREATS ARE A 2 DAY EVENT WITH MEALS INCLUDED, MOTIVATIONAL SPEAKERS, BREAKOUT DISCUSSION SESSIONS, PAMPERING SESSIONS, AND BONDING ACTIVITIES. REVENUE LISTED ABOVE INCLUDES REGISTRATION FEES, EXHIBIT FEES, TSHIRT SALES, BOOK SALES, AND RETREAT SPONSORSHIPS.
INFORM - DSDN BOARD MEMBERS AND VOLUNTEERS ATTEND DOWN SYNDROME RELATED CONFERENCES TO SHARE INFORMATION ABOUT DSDN'S SERVICES TO FAMILIES, LOCAL AND NATIONAL DOWN SYNDROME ORGANIZATIONS, AND MEDICAL PROFESSIONALS. DSDN ALSO CREATES AND PROVIDES BROCHURES ON DELIVERING DOWN SYNDROME DIAGNOSIS TO LOCAL ORGANIZATIONS AND MEDICAL PROFESSIONALS.
SUPPORT - DSDN PROVIDES WELCOME GIFTS TO NEW PARENTS, MEMORIAL GIFTS, AND CARE PACKAGES TO PARENTS WITH A CHILD IN THE HOSPITAL FOR AN EXTENDED PERIOD. ALSO AS PART OF SUPPORT SERVICES, DSDN OFFERS SCHOLARSHIPS TO ATTEND THE NATIONAL DOWN SYNDROME CONGRESS CONVENTION, THE NATIONAL DOWN SYNDROME SOCIETY'S BUDDY WALK IN WASHINGTON, AND THE DSDN PARENT RETREATS. DSDN ALSO HAS A HEARING LOSS FUND TO PROVIDE FAMILIES WITH GRANTS TO COVER EXPENSES RELATED TO HEARING LOSS WHICH INCLUDE HEARING AIDS AND SIGN LANGUAGE CLASSES. IN 2019, DSDN AWARDED GRANTS TO LOCAL DOWN SYNDROME ORGANIZATIONS AS WELL.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jennifer Jacob Executive Director | Officer | 32 | $50,000 |
Christy Cooper Board Member | Trustee | 40 | $40,000 |
Jenny Di Benedetto Vice President | Officer | 5 | $0 |
Jill Urich Treasurer | Officer | 10 | $0 |
Melissa Shutwell President | Officer | 8 | $0 |
Heather Bradley Trustee | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $393,193 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $393,193 |
| Total Program Service Revenue | $19,079 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$3,239 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $409,033 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $8,300 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $67,663 |
| Compensation of current officers, directors, key employees. | $67,663 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $23,366 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $3,835 |
| Office expenses | $16,592 |
| Information technology | $976 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $108,979 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $901 |
| Insurance | $664 |
| All other expenses | $0 |
| Total functional expenses | $255,579 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $626,979 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $500 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $3,472 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $3,003 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $633,954 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $398,238 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $235,716 |
| Total liabilities and net assets/fund balances | $633,954 |
Grants Awarded
Over the last fiscal year, Down Syndrome Diagnosis Network has awarded $8,300 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
Austin, TX PURPOSE: DONATION | $2,100 |
Winston Salem, NC PURPOSE: DONATION | $2,100 |
Tulsa, OK PURPOSE: DONATION | $2,100 |
Ewing, NJ PURPOSE: DONATION | $1,000 |
Louisville, KY PURPOSE: DONATION | $500 |
New Britain, CT PURPOSE: DONATION | $500 |
Grants Recieved
Over the last fiscal year, we have identified 4 grants that Down Syndrome Diagnosis Network has recieved totaling $109,446.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $98,229 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $8,021 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,696 |
Carol Lavin Bernick Family Foundation Chicago, IL PURPOSE: GENERAL FUND | $500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The Against Malaria Foundation Kansas City, MO | $318 | $95,777,874 |
West Michigan Cancer Center Kalamazoo, MI | $48,096,612 | $92,880,121 |
Muscular Dystrophy Association Chicago, IL | $71,915,435 | $63,707,273 |
Michigan Health Endowment Fund Brighton, MI | $367,711,952 | $101,875,561 |
Siouxland Regional Cancer Center Sioux City, IA | $22,869,484 | $57,761,612 |
Radiological Society Of North America Inc Oak Brook, IL | $185,391,800 | $68,158,260 |
American Society Of Anesthesiologists Schaumburg, IL | $127,402,745 | $57,130,862 |
Central Indiana Health System Cardiac Services Inc St Louis, MO | $662,903,932 | $148,340,814 |
Vivent Health Inc Milwaukee, WI | $84,987,861 | $66,654,563 |
American Academy Of Orthopedic Surgeons Rosemont, IL | $161,166,072 | $86,943,619 |
Volunteers Of America Inc Eden Prairie, MN | $9,099,953 | $36,157,650 |
Childrens Clinic Network Minneapolis, MN | $16,399,110 | $36,366,264 |