Association For Creatine Deficiencies
- Assets
- $574.5k
- Revenue
- $322.3k
- Investments
- $0.0
- Employees
- 1
- Location
- Carlsbad, CA
- Founding
- 07/2013
- Data as of
- 12/2021
- EIN
- 46-2133007
Organization Overview
Association For Creatine Deficiencies is located in Carlsbad, CA. The organization was established in 2013. According to its NTEE Classification (G99) the organization is classified as: Voluntary Health Associations & Medical Disciplines N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Association For Creatine Deficiencies is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Association For Creatine Deficiencies generated $322.3k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 30.8% each year . All expenses for the organization totaled $474.1k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO PROMOTE AND FUND MEDIAL RESEARCH FOR TREATMENTS AND CURES, PROVIDE PATIENT, FAMILY, AND PUBLIC EDUCATION, AND ADVOCATE FOR EARLY INTERVENTION THROUGH NEWBORN SCREENING FOR CEREBRAL CREATINE DEFICIENCY SYNDROMES (CCDS).
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDING ACCURATE AND UP TO DATE INFORMATION THROUGH ATTENDANCE AT MEDICAL & SCIENTIFIC SYMPOSIUMS, & ETC. PUBLICATION OF CCDS EDUCATIONAL VIDEO, ETC.; QUARTERLY WEBSITE UPDATES. PUBLIC AWARENESS CAMPAIGNS IN LOCAL COMMUNITIES.PROMOTING RESEARCH TO IMPROVE DIAGNOSES & TREATMENT THROUGH ADVOCATING FEDERAL FUNDING FOR RARE DISEASES, INCREASING PATIENT REGISTRY ENROLLMENT, NON-DRUG RESEARCH OPPORTUNITIES AND OUTREACH. HELPING PATIENTS & FAMILIES WITH CCDS. QUARTERLY WEB NEWSLETTER, ONLINE RESOURCE GUIDES & ETC.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Erin Coller Director Of Comm | OfficerTrustee | 10 | $0 |
Randy Allen Vice President | OfficerTrustee | 5 | $0 |
Celeste Graham Director Of Education | OfficerTrustee | 5 | $0 |
Daniel Coller Financial Director | OfficerTrustee | 10 | $0 |
Heidi Wallace President | OfficerTrustee | 25 | $0 |
Kim Tuminello Director Of Advocacy | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $34,760 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $285,982 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $320,742 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $322,273 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $111,130 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $40,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $38,268 |
| Pension plan accruals and contributions | $1,839 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $770 |
| Fees for services: Accounting | $12,566 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $165,012 |
| Advertising and promotion | $25,208 |
| Office expenses | $10,931 |
| Information technology | $3,361 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $63,142 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,827 |
| All other expenses | $0 |
| Total functional expenses | $474,054 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $429,199 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $10,000 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $66,106 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $69,207 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $574,512 |
| Accounts payable and accrued expenses | $9,615 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $9,615 |
| Net assets without donor restrictions | $249,450 |
| Net assets with donor restrictions | $315,447 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $574,512 |
Grants Awarded
Over the last fiscal year, Association For Creatine Deficiencies has awarded $109,055 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
Indianapolis, IN | | $30,000 |
Washington, DC | | $30,000 |
Salt Lake City, UT | | $25,000 |
Quincy, MA | | $14,055 |
Los Angeles, CA | | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Association For Creatine Deficiencies has recieved totaling $36,505.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $35,155 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,150 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $200 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Tidepool Project Palo Alto, CA | $8,802,323 | $8,057,426 |
The Clearity Foundation San Diego, CA | $1,046,628 | $2,174,746 |
Parkinson & Movement Disorder Alliance Tucson, AZ | $977,925 | $2,055,222 |
Ignite Collective Inc Mammoth Lakes, CA | $797,462 | $1,150,173 |
National Foundation For Autism Research San Diego, CA | $831,651 | $1,066,123 |
Vinnova Portland, OR | $117,552 | $1,020,031 |
Sage Institute For Psychedelic Therapy Oakland, CA | $268,267 | $704,887 |
International Hyperbarics Association Inc Los Angeles, CA | $361,311 | $721,513 |
Autism Research Group Inc Woodland Hills, CA | $410,160 | $209 |
Baron Jay Foundation North Hollywood, CA | $93,707 | $523,939 |
Oligo Nation Sebastopol, CA | $1,684,218 | $672,520 |
Napa Medical Research Foundation Napa, CA | $643,570 | $680,537 |