Familial Adenomatous Polyposis Foundation

HIGHLIGHTS FROM OUR 2017 PROGRAMS: PATIENT SERVICES INCLUDED: OUR INFORMATIONAL WEBSITE, HCCTAKESGUTS.ORG, SERVED OVER 12,000 UNIQUE INDIVIDUALS. OUR "EXPERT CARE FACILITY" LIST HELPED OVER 2,000 PEOPLE FIND A PROVIDER. THE PATIENT'S GUIDE TO LYNCH SYNDROME WAS DISTRIBUTED TO OVER 500 INDIVIDUALS TO BE USED PERSONALLY OR SHARED WITH THEIR FAMILIES. THE PATIENT'S GUIDE TO FAP WAS DISTRIBUTED TO OVER 900 PATIENTS TO BE SHARED WITH THEIR FAMILIES. SERVING AS PATIENT NAVIGATORS AND ADVISORS, WE GUIDED PATIENTS TO CREDIBLE RESOURCES AND COACHED PATIENTS ON HOW TO NAVIGATE LIFE WITH A HEREDITARY COLON CANCER CONDITION. WE RESPONDED TO EMAILS AND PHONE CALLS FROM INDIVIDUAL PATIENTS, ON AVERAGE, ONE OR TWO TIMES PER WEEK. MEDICAL PROFESSIONAL SERVICES INCLUDED: OUR SEVEN-HOUR EDUCATIONAL WEBINAR SERIES ENTITLED "ADVANCING CARE FOR ADENOMATOUS POLYPOSIS CONDITIONS" WAS ATTENDED BY OVER 350 PROVIDERS. THE PATIENT'S GUIDE TO LYNCH SYNDROME WAS DISTRIBUTED TO OVER 600 PROVIDERS TO BE USED PERSONALLY OR SHARED WITH THEIR PATIENTS. THE PATIENT'S GUIDE TO FAP WAS DISTRIBUTED TO OVER 400 PROVIDERS TO BE SHARED WITH THEIR PATIENTS. WE PROVIDED OVER 250 COMPLEMENTARY BROCHURES AT THE REQUEST OF PROVIDERS FOR DISTRIBUTION IN THEIR CLINICS. WE ATTENDED AND EXHIBITED AT THE COLLABORATIVE GROUP OF THE AMERICAS ON INHERITED COLORECTAL CANCER ANNUAL MEETING. WE WERE SELECTED TO PROVIDE INPUT TO TWO SETS OF CLINICAL PRACTICE GUIDELINES DEVELOPED BY THE NATIONAL COMPREHENSIVE CANCER GUIDELINES: "GENETIC/FAMILIAL HIGH-RISK ASSESSMENT: COLORECTAL- AND "COLON CANCER SCREENING." ON A MONTHLY BASIS, WE SUPPORTED PROVIDERS BY CONNECTING THEM TO EXPERTS AT HIGH RISK CENTERS. WE ALSO SERVED PROVIDERS BY HELPING TO CONNECT THEIR PATIENTS TO OTHER AFFECTED FAMILIES.