Cloves Syndrome Community
- Assets
- $231.4k
- Revenue
- $141.2k
- Investments
- $0.0
- Employees
- 0
- Location
- West Kennebunk, ME
- Founding
- 12/2011
- Data as of
- 06/2023
- EIN
- 45-3056921
Organization Overview
Cloves Syndrome Community is located in West Kennebunk, ME. The organization was established in 2011. According to its NTEE Classification (G99) the organization is classified as: Voluntary Health Associations & Medical Disciplines N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cloves Syndrome Community is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, Cloves Syndrome Community generated $141.2k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 4 years, the organization has seen revenues fall by an average of (19.8%) each year. All expenses for the organization totaled $292.3k during the year ending 06/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
CLOVES SYNDROME COMMUNITY SUPPORTS, EDUCATES, EMPOWERS AND IMPROVES THE LIVES OF THOSE AFFECTED BY CLOVES SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROVIDE INFORMATION AND RESOURCES TO EDUCATE OTHERS ABOUT CLOVES SYNDROME; FOSTER AND PROMOTE A SUPPORTIVE COMMUNITY; BUILD AND SUSTAIN A BROAD BASE OF FUNDING SOURCES TO SUPPORT OUR MISSION AND GOALS; UTILIZE INCOMING FUNDS TO PROVIDE FINANCIAL ASSISTANCE TO THOSE IMPACTED BY CLOVES SYNDROME; PARTICIPATE IN AND PROMOTE CLOVES SYNDROME RESEARCH TO ASSIST IN A COMPLETE UNDERSTANDING OF THE DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Joe Barclay Board Member | Trustee | 1 | $0 |
Sara Robertson Board Member | Trustee | 1 | $0 |
Steve Handel Board Member | Trustee | 1 | $0 |
Ashley Mcnamara Treasurer | OfficerTrustee | 1 | $0 |
Kyle Capossela Board Member | Trustee | 1 | $0 |
Irina Pivneva Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $114,520 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $114,520 |
| Total Program Service Revenue | $26,709 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $141,229 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $28,021 |
| Grants and other assistance to Foreign Orgs/Individuals | $100,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $51,227 |
| Compensation of current officers, directors, key employees. | $25,613 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $18,254 |
| Advertising and promotion | $0 |
| Office expenses | $5,392 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $155 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $35,699 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $6,729 |
| Total functional expenses | $292,253 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $223,902 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $7,500 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $231,402 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $231,402 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $231,402 |
Grants Awarded
Over the last fiscal year, Cloves Syndrome Community has awarded $59,408 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
WASHINGTON UNIVERSITY ATTN JOE GINDHART PURPOSE: 2022 Vascular Anomalies Communication Project | $9,408 |
UNIVERSITY OF NORTH CAROLINA CHAPEL HILL PURPOSE: 2022 research recipent. | $50,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
My Breast Cancer Support Portsmouth, NH | $342,534 | $395,266 |
Cloves Syndrome Community West Kennebunk, ME | $231,402 | $141,229 |
Move Social Inc Hollis, NH | $242 | $0 |
Project Stree Nashua, NH | $17,661 | $0 |
Northeast Cardio-Thoracic Surgical Society Inc Center Tuftonboro, NH | $0 | $0 |
John Marin Foundation Jonesport, ME | $0 | $0 |