Li Fraumeni Syndrome Association
- Assets
- $380.4k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Holliston, MA
- Founding
- 02/2014
- Data as of
- 12/2022
- EIN
- 45-2284811
Organization Overview
Li Fraumeni Syndrome Association is located in Holliston, MA. The organization was established in 2014. According to its NTEE Classification (E86) the organization is classified as: Patient & Family Support, under the broad grouping of Health Care and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Li Fraumeni Syndrome Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
LI-FRAUMENI SYNDROME ASSOCIATION, INC. PROVIDES A WIDE RANGE OF INFORMATION, ADVOCACY, AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH LI FRAUMENI SYNDROME. WE SUPPORT A CONSORTIUM OF RESEARCHERS, MEDCIAL PROVIDERS AND CAREGIVERS TO FURTHER RESEARCH AND PROMOTE OPITAM CARE FOR THE LFS COMMUNITY.
Describe the Organization's Program Activity:
Part 3
LI-FRAUMENI SYNDROME ASSOCIATION, INC. PROVIDES A WIDE RANGE OF INFORMATION, ADVOCACY, AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH LI FRAUMENI SYNDROME. WE SUPPORT A CONSORTIUM OF RESEARCHERS, MEDCIAL PROVIDERS AND CAREGIVERS TO FURTHER RESEARCH AND PROMOTE OPITAM CARE FOR THE LFS COMMUNITY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jennifer Perry President/co-Founder | 20 | $0 | |
Holly Fraumeni Vice President | 20 | $0 | |
Sandi Barrett Secretary | 4 | $0 | |
Michelle Giovenelli Treasurer | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $0 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $0 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $0 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $0 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $0 |
| Total expenses | $0 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $380,416 |
| Other assets | $0 |
| Total assets | $380,416 |
| Total liabilities | $0 |
| Net assets or fund balances | $380,416 |
Grants Awarded
Over the last fiscal year, Li Fraumeni Syndrome Association has awarded $125,500 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
HUNTSMAN CANCER INSTITUTE - UNIVERSITY OF UTAH PURPOSE: SUPPLEMENTAL FUNDING IN ORIGINAL LSFA GRANT EXPLORING P53 THERAPY AND PREVENTION | $100,000 |
DANA FARBER CANCER INSTITUTE PURPOSE: CAMPER SCHOLARSHIP FOR CHILDREN TO ATTEND SUMMER CAMP | $20,000 |
HOLE IN THE WALL GANG FUND INC PURPOSE: CAMPER SCHOLARSHIP FOR CHILDREN TO ATTEND SUMMER CAMP | $5,500 |