Free To Breathe
- Assets
- $0.0
- Revenue
- $2.0m
- Investments
- $0.0
- Employees
- 0
- Location
- Madison, WI
- Founding
- Data as of
- 09/2017
- EIN
- 45-0505050
Organization Overview
Free To Breathe is located in Madison, WI. Free To Breathe is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2017, Free To Breathe generated $2.0m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (23.0%) each year. All expenses for the organization totaled $3.2m during the year ending 09/2017. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2017
Describe the Organization's Mission:
Part 3 - Line 1
OUR VISION IS TO DOUBLE LUNG CANCER SURVIVAL BY 2022. TO TURN THIS VISION INTO REALITY WE FOCUS ON FUNDING RESEARCH WITH THE GREATEST POTENTIAL TO SAVE LIVES, HELPING ALL PATIENTS FULLY UNDERSTAND THEIR TREATMENT OPTIONS, ENSURING MOLECULAR TUMOR TESTING IS STANDARD OF CARE, AND DOUBLING THE NUMBER OF LUNG CANCER PATIENTS PARTICIPATING IN CLINICAL TRIALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FREE TO BREATHE COMMUNITY EVENTS, INCLUDING RUN/WALKS, BIKE RIDES AND YOGATHONS WERE ORGANIZED THROUGHOUT THE NATION TO RAISE AWARENESS OF AND RESEARCH DOLLARS FOR LUNG CANCER. IN 2017, THE FREE TO BREATHE SERIES TOOK PLACE IN MORE THAN 40 LOCATIONS AND INCLUDED A NATIONAL WALK, MAKING IT THE LARGEST BRANDED NATIONAL LUNG CANCER EVENT SERIES. MORE THAN 10,000 PEOPLE WERE INVOLVED IN THE EVENTS.
FREE TO BREATHE SUPPORTS RESEARCH IN LUNG CANCER. IN 2017, GRANTS WERE PROVIDED TO 7 RESEARCHERS TO INSTITUTIONS ACROSS THE UNITED STATES. IN ADDITION, FREE TO BREATHE ADMINISTERS THE LUNG CANCER MUTATION CONSORTIUM, WHICH IS PROSPECTIVELY ANALYZING THE GENOMIC MAKEUP OF PATIENT TUMORS AND MATCHING PATIENTS TO APPROPRIATE CLINICAL TRIALS. FUNDS ARE PROVIDED TO MEMBER INSTITUTIONS TO OFFSET THE COSTS OF TUMOR TESTING. OVERSIGHT IS PROVIDED BY AN EXECUTIVE COMMITTEE, INCLUDING SEVERAL OF THE TOP LUNG CANCER RESEARCHERS IN THE COUNTRY.
FREE TO BREATHE COMMUNITY EVENTS, INCLUDING RUN/WALKS, BIKE RIDES AND YOGATHONS WERE ORGANIZED THROUGHOUT THE NATION TO RAISE AWARENESS OF AND RESEARCH DOLLARS FOR LUNG CANCER. IN 2017, THE FREE TO BREATHE SERIES TOOK PLACE IN MORE THAN 40 LOCATIONS AND INCLUDED A NATIONAL WALK, MAKING IT THE LARGEST BRANDED NATIONAL LUNG CANCER EVENT SERIES. MORE THAN 10,000 PEOPLE WERE INVOLVED IN THE EVENTS.
FREE TO BREATHE SUPPORTS RESEARCH IN LUNG CANCER. IN 2017, GRANTS WERE PROVIDED TO 7 RESEARCHERS TO INSTITUTIONS ACROSS THE UNITED STATES. IN ADDITION, FREE TO BREATHE ADMINISTERS THE LUNG CANCER MUTATION CONSORTIUM, WHICH IS PROSPECTIVELY ANALYZING THE GENOMIC MAKEUP OF PATIENT TUMORS AND MATCHING PATIENTS TO APPROPRIATE CLINICAL TRIALS. FUNDS ARE PROVIDED TO MEMBER INSTITUTIONS TO OFFSET THE COSTS OF TUMOR TESTING. OVERSIGHT IS PROVIDED BY AN EXECUTIVE COMMITTEE, INCLUDING SEVERAL OF THE TOP LUNG CANCER RESEARCHERS IN THE COUNTRY.
FREE TO BREATHE ORGANIZES ANNUAL CONFERENCES TO PROVIDE FORUMS FOR INTERNATIONALLY RENOWNED CLINICAL EXPERTS AND COMMUNITY ONCOLOGISTS, NURSES, PHARMACISTS, PATIENT ADVOCATES, AND OTHER HEALTHCARE PROFESSIONALS TO DISCUSS CURRENT AND EVOLVING THERAPIES IN THE SCREENING, DIAGNOSIS, AND MANAGEMENT OF PATIENTS WITH LUNG CANCER. FREE TO BREATHE CO-HOSTED THE FOCUS ON LUNG CANCER, PATIENT AND CAREGIVER PROGRAM CONFERENCE WITH PENN MEDICINE ABRAMSON CANCER CENTER, WITH A FOCUS ON NON-SMALL CELL AND SMALL CELL LUNG CANCER. THIS FREE CONFERENCE WAS DESIGNED FOR THOSE AT RISK, NEWLY DIAGNOSED, CURRENTLY IN TREATMENT OR SURVIVOR ON NON-SMALL CELL AND SMALL CELL LUNG CANCER, FAMILY MEMBERS, CAREGIVERS OR HEALTHCARE PROFESSIONALS. THE CONFERENCE PROVIDED EDUCATIONAL PRESENTATIONS REGARDING DIAGNOSIS, TREATMENT, AND COPING WITH LUNG CANCER, AND INFORMATION ABOUT ADVANCEMENTS IN RESEARCH. THE CONFERENCE ALSO PROVIDED MATERIALS FOR PATIENTS AND CAREGIVERS.
FREE TO BREATHE ORGANIZES ANNUAL CONFERENCES TO PROVIDE FORUMS FOR INTERNATIONALLY RENOWNED CLINICAL EXPERTS AND COMMUNITY ONCOLOGISTS, NURSES, PHARMACISTS, PATIENT ADVOCATES, AND OTHER HEALTHCARE PROFESSIONALS TO DISCUSS CURRENT AND EVOLVING THERAPIES IN THE SCREENING, DIAGNOSIS, AND MANAGEMENT OF PATIENTS WITH LUNG CANCER. FREE TO BREATHE CO-HOSTED THE FOCUS ON LUNG CANCER, PATIENT AND CAREGIVER PROGRAM CONFERENCE WITH PENN MEDICINE ABRAMSON CANCER CENTER, WITH A FOCUS ON NON-SMALL CELL AND SMALL CELL LUNG CANCER. THIS FREE CONFERENCE WAS DESIGNED FOR THOSE AT RISK, NEWLY DIAGNOSED, CURRENTLY IN TREATMENT OR SURVIVOR ON NON-SMALL CELL AND SMALL CELL LUNG CANCER, FAMILY MEMBERS, CAREGIVERS OR HEALTHCARE PROFESSIONALS. THE CONFERENCE PROVIDED EDUCATIONAL PRESENTATIONS REGARDING DIAGNOSIS, TREATMENT, AND COPING WITH LUNG CANCER, AND INFORMATION ABOUT ADVANCEMENTS IN RESEARCH. THE CONFERENCE ALSO PROVIDED MATERIALS FOR PATIENTS AND CAREGIVERS.
FREE TO BREATHE CREATES AND DISTRIBUTES FREE PRINT AND ONLINE EDUCATIONAL MATERIALS ON LUNG CANCER CAUSES, SYMPTOMS, PREVENTION, TREATMENTS AND CLINICAL TRIALS FOR PATIENTS, THEIR CAREGIVERS AND THEIR MEDICAL TEAMS. IN 2017, APPROXIMATELY 40,000 INDIVIDUALS ACCESSED THESE MATERIALS. IN ADDITION, OVER 50,000 INDIVIDUALS WERE EMAILED OUR NEWSLETTER WITH VALUABLE INFORMATION FOR THE ENTIRE LUNG CANCER COMMUNITY. INNUMERABLE ADDITIONAL PEOPLE HAVE RECEIVED CRITICAL INFORMATION THROUGH ELECTRONIC COMMUNICATIONS, SOCIAL MEDIA AND IN-PERSON EVENTS.
FREE TO BREATHE CREATES AND DISTRIBUTES FREE PRINT AND ONLINE EDUCATIONAL MATERIALS ON LUNG CANCER CAUSES, SYMPTOMS, PREVENTION, TREATMENTS AND CLINICAL TRIALS FOR PATIENTS, THEIR CAREGIVERS AND THEIR MEDICAL TEAMS. IN 2017, APPROXIMATELY 40,000 INDIVIDUALS ACCESSED THESE MATERIALS. IN ADDITION, OVER 50,000 INDIVIDUALS WERE EMAILED OUR NEWSLETTER WITH VALUABLE INFORMATION FOR THE ENTIRE LUNG CANCER COMMUNITY. INNUMERABLE ADDITIONAL PEOPLE HAVE RECEIVED CRITICAL INFORMATION THROUGH ELECTRONIC COMMUNICATIONS, SOCIAL MEDIA AND IN-PERSON EVENTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Joan Schiller President | OfficerTrustee | 3 | $0 |
Lorraine Pastore Vice President | OfficerTrustee | 2 | $0 |
Peter Fry Treasurer | OfficerTrustee | 2 | $0 |
Sharon Munger Secretary | OfficerTrustee | 3 | $0 |
Antoinette Wozniak Director | Trustee | 1 | $0 |
Jean Kamla Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,868,323 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,868,323 |
| Total Program Service Revenue | $61,188 |
| Investment income | $32,167 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $67 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,961,745 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,184,795 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $103,718 |
| Compensation of current officers, directors, key employees. | $51,859 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $803,052 |
| Pension plan accruals and contributions | $11,622 |
| Other employee benefits | $70,972 |
| Payroll taxes | $69,367 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $56,164 |
| Fees for services: Accounting | $12,750 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $2,389 |
| Fees for services: Other | $288,000 |
| Advertising and promotion | $16,520 |
| Office expenses | $163,806 |
| Information technology | $38,114 |
| Royalties | $0 |
| Occupancy | $60,072 |
| Travel | $59,572 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $221,622 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,464 |
| Insurance | $7,712 |
| All other expenses | $4,696 |
| Total functional expenses | $3,180,407 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $0 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Unrestricted restricted net Assets | $0 |
| Temporarily restricted net Assets | $0 |
| Permanently restricted net Assets or current funds | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total net assets or fund balances | $0 |
Grants Awarded
Over the last fiscal year, Free To Breathe has awarded $2,377,407 in support to 24 organizations.
| Grant Recipient | Amount |
|---|---|
BRIGHAM AND WOMEN'S HOSPITAL PURPOSE: LUNG CANCER RESEARCH PROGRAMS | $15,960 |
CLEVELAND CLINIC PURPOSE: LUNG CANCER RESEARCH PROGRAMS | $13,500 |
CASE WESTERN RESERVE UNIVERSITY PURPOSE: LUNG CANCER RESEARCH PROGRAMS | $100,000 |
DANA-FARBER CANCER INSTITUTE PURPOSE: LUNG CANCER RESEARCH PROGRAMS | $24,000 |
DUKE UNIVERSITY PURPOSE: LUNG CANCER RESEARCH PROGRAMS | $400,000 |
EMORY UNIVERSITY PURPOSE: LUNG CANCER RESEARCH PROGRAMS | $25,200 |