Fabry Support & Information Group
- Assets
- $633.7k
- Revenue
- $441.9k
- Investments
- $0.0
- Employees
- 8
- Location
- Concordia, MO
- Founding
- 10/2000
- Data as of
- 12/2021
- EIN
- 43-1890134
Organization Overview
Fabry Support & Information Group, operating under the name Fsig, is located in Concordia, MO. The organization was established in 2000. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Fsig employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fsig is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Fsig generated $441.9k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 7.3% each year. All expenses for the organization totaled $312.8k during the year ending 12/2021. While expenses have increased by 1.5% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
FABRY SUPPORT & INFORMATION GROUP (FSIG) IS A 501(C)(3) NONPROFIT ORGANIZATION. OUR MISSION IS TO PROVIDE INFORMATION, ADVOCACY, EDUCATION, AND COMPASSIONATE SUPPORT TO IMPROVE THE QUALITY OF LIFE AND THE QUALITY OF CARE FOR FABRY
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT MEETINGS - SINCE FABRY PATIENTS HAVE A HARD TIME WITH TRAVEL, FSIG TAKES OUR MEETINGS TO THEM IN CITIES NEAR THEM. WE PROVIDE THEM WITH UP TO DATE INFORMATION FROM MEDICAL AND INDUSTRY PROFESSIONALS. THIS ALSO GIVES PATIENTS AN OPPORTUNITY TO TALK TO OTHER FABRY PATIENTS WHO ARE FACING THE SAME DAY TO DAY CHALLENGES AS THEY ARE. IN 2021, WE REACHED APPROXIMATELY 195 PATIENTS/FAMILY MEMBERS VIRTUALLY.
WEBSITE DEVELOPMENT - PROVIDE A FORUM FOR FABRY PATIENTS TO MAKE CONTACT AND HELP SUPPORT ONE ANOTHER.
FEFC REGISTRATION FEE REGISTRATION FEE CHARGED TO COME TO 2021 FSIG EXPERT FABRY CONFERENCE. APPROXIMATELY 104 ATTENDEES OVER VIRTUAL CONFERENCE.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jack Johnson Chief Executive Officer | 40 | $60,970 | |
Debra Johnson Secretary/treasurer | OfficerTrustee | 15 | $0 |
Jason Frett Vice President | OfficerTrustee | 0.25 | $0 |
Amy Young President | OfficerTrustee | 0.5 | $0 |
Connie Kreps Board Member | Trustee | 0.1 | $0 |
Fred Battah Board Member | Trustee | 0.1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $112,871 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $112,871 |
| Total Program Service Revenue | $276,847 |
| Investment income | $899 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $49,741 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $441,876 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $60,970 |
| Compensation of current officers, directors, key employees. | $60,970 |
| Compensation to disqualified persons | $96,228 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $21,041 |
| Fees for services: Management | $27,643 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $3,042 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $3,211 |
| Office expenses | $8,534 |
| Information technology | $960 |
| Royalties | $0 |
| Occupancy | $3,600 |
| Travel | $2,868 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $21,614 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,142 |
| Insurance | $1,758 |
| All other expenses | $11,481 |
| Total functional expenses | $312,849 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $191,101 |
| Savings and temporary cash investments | $427,404 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $15,145 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $633,650 |
| Accounts payable and accrued expenses | $112,252 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $112,252 |
| Net assets without donor restrictions | $521,398 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $633,650 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Fabry Support & Information Group has recieved totaling $1,342.
| Awarding Organization | Amount |
|---|---|
Ge Foundation Norwalk, CT PURPOSE: MATCHING GIFTS | $1,035 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $307 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Fort Sanders Perinatal Center Knoxville, TN | $10,128,344 | $20,892,841 |
United Cerebral Palsy Heartland Berkeley, MO | $21,714,583 | $13,839,591 |
United Cerebral Palsy Center For Disability Services Joliet, IL | $3,735,483 | $3,150,628 |
National Association Of Neonatal Nurses Chicago, IL | $1,978,150 | $2,104,976 |
Cerebral Palsy Of Southwestern Illinois Fairview Heights, IL | $3,197,425 | $1,946,488 |
Organization Of Teratology Information Specialists Nfp Brentwood, TN | $1,314,372 | $1,595,383 |
Midwest Asian Health Association - Maha Chicago, IL | $1,647,552 | $1,767,369 |
The Lyon Family Foundation Chicago, IL | $4,144,753 | $242,200 |
Perinatal Quality Foundation Oklahoma City, OK | $853,464 | $1,030,454 |
Magic Foundation Warrenville, IL | $2,737,360 | $1,415,154 |
The American Board Of Genetic Counseling Inc Chicago, IL | $2,575,721 | $1,069,295 |
Inclusion Connections Olathe, KS | $705,413 | $790,026 |