Child Neurology Education And Research Foundation
- Assets
- $4.6m
- Revenue
- $3.6m
- Investments
- $0.0
- Employees
- 11
- Location
- Lexington, KY
- Founding
- 05/2001
- Data as of
- 12/2021
- EIN
- 41-1984675
Organization Overview
Child Neurology Education And Research Foundation is located in Lexington, KY. The organization was established in 2001. According to its NTEE Classification (H50) the organization is classified as: Nerve, Muscle & Bone Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Child Neurology Education And Research Foundation employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Child Neurology Education And Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Child Neurology Education And Research Foundation generated $3.6m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 27.7% each year . All expenses for the organization totaled $3.2m during the year ending 12/2021. While expenses have increased by 26.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Child Neurology Education And Research Foundation has awarded 41 individual grants totaling $1,635,773. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO SERVE AS A COLLABORATIVE CENTER OF EDUCATION, RESOURCES, AND SUPPORT FOR CHILDREN AND THEIR FAMILIES LIVING WITH NEUROLOGIC CONDITIONS, AND FACILITATE CONNECTION WITH MEDICAL PROFESSIONALS WHO CARE FOR THEM.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH GRANTS: SINCE 2001, CNF HAS PROUDLY AWARDED OVER 50 GRANTS AND SCHOLARSHIPS TOTALING $4.3M TO CHILD NEUROLOGISTS, MEDICAL STUDENTS AND RESEARCHERS WHO ARE WORKING ON TREATMENTS AND CURES FOR PEDIATRIC NEUROLOGIC DISEASES. TO ENCOURAGE COLLABORATION AND INCREASE RESEARCH, THE FOUNDATION AWARDED A $100,000 PEDIATRIC EPILEPSY RESEARCH FOUNDATION (PERF) ELTERMAN AND A $100,000 PERF SHIELDS RESEARCH GRANT TO SUPPORT CLINICAL OR BASIC SCIENCE RESEARCH BY A CHILD NEUROLOGIST OR DEVELOPMENTAL PEDIATRICIAN EARLY IN THEIR ACADEMIC CAREER WHO ARE MEMBERS OF THE CHILD NEUROLOGY SOCIETY IN 2021. TO FURTHER SUPPORT INTEREST IN THE FIELD OF CHILD NEUROLOGY, THE FOUNDATION ALSO AWARDED THE NEURODEVELOPMENTAL DISABILITIES SUMMER RESEARCH SCHOLARSHIP OF $3,500 TO A MEDICAL STUDENT WHO HAS AN INTEREST IN TRAINING IN NEURODEVELOPMENTAL DISABILITIES OR CHILD NEUROLOGY.
COMMUNITY SUPPORT AND EDUCATION: THROUGH CNF'S COLLABORATIVE, MULTI-STAKEHOLDER PROCESS, VARIOUS COMMUNITY SUPPORT EFFORTS WERE OFFERED INCLUDING PATIENT/CAREGIVER EDUCATIONAL PROGRAMMING, CLINICAL EDUCATION, PEER SUPPORT, DIGITAL RESOURCE SUPPORT, AND ADVOCATE TRAINING. IN 2021, CNF PROVIDED 100 FAMILIES WITH CHROMEBOOKS AND HOTSPOTS TO BETTER ACCESS TELEHEALTH, PROVIDED EMOTIONAL SUPPORT TO OVER 140 FAMILIES WITH 57 DIFFERENT DIAGNOSES, REACHED OVER 700 CLINICIANS WITH EDUCATION, PROVIDED 25 FAMILIES WITH FREE GENETIC TESTING, AND CREATED OVER 50 NEW EDUCATIONAL ASSETS. PROGRAM TOPICS INCLUDED PEER SUPPORT, DIGITAL ACCESS, TELEHEALTH, INFANTILE SPAMS ACTION NETWORK, TRANSITION OF CARE, AND SHORTENING THE DIAGNOSTIC ODYSSEY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amy Brin Executive Director Non-Voting Member | Officer | 40 | $208,848 |
Greta Wright Chief Operations Officer Non-Voting Member | Officer | 40 | $161,847 |
Loren Wood VP Marketing Non-Voting Member | 40 | $103,847 | |
Dr Anup Patel President | OfficerTrustee | 7 | $0 |
Stephen Peters President-Elect | OfficerTrustee | 6 | $0 |
Timothy Engel Treasurer | OfficerTrustee | 1 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Cyndi Wright Project And Event Management | 12/30/21 | $105,468 |
Digital Health Solutions Llc Development Of Child Health Improvement Through Computer Automation System For Child Neurology | 12/30/21 | $591,293 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $179,131 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,751,728 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,930,859 |
| Total Program Service Revenue | $608,908 |
| Investment income | $13,506 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,554,448 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $321,203 |
| Grants and other assistance to domestic individuals. | $11,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $645,320 |
| Compensation of current officers, directors, key employees. | $285,251 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $411,180 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $224,152 |
| Payroll taxes | $71,212 |
| Fees for services: Management | $31,870 |
| Fees for services: Legal | $46,164 |
| Fees for services: Accounting | $40,184 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $52,500 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,106,007 |
| Advertising and promotion | $8,919 |
| Office expenses | $13,684 |
| Information technology | $103,414 |
| Royalties | $0 |
| Occupancy | $40,494 |
| Travel | $20,831 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $11,015 |
| Interest | $2,500 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $17,436 |
| Insurance | $8,148 |
| All other expenses | $2,899 |
| Total functional expenses | $3,190,132 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $387,276 |
| Savings and temporary cash investments | $1,598,955 |
| Pledges and grants receivable | $1,923,611 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $31,401 |
| Net Land, buildings, and equipment | $19,274 |
| Investments—publicly traded securities | $523,677 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $98,957 |
| Other assets | $0 |
| Total assets | $4,583,151 |
| Accounts payable and accrued expenses | $270,023 |
| Grants payable | $299,536 |
| Deferred revenue | $235,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $100,000 |
| Other liabilities | $104,521 |
| Total liabilities | $1,009,080 |
| Net assets without donor restrictions | $448,077 |
| Net assets with donor restrictions | $3,125,994 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,583,151 |
Grants Awarded
Over the last fiscal year, Child Neurology Education And Research Foundation has awarded $298,000 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
Washington, DC PURPOSE: 2022 PERF Shields Research Grant | $100,000 |
Irvine, CA PURPOSE: 2021 PERF Elterman Research Grant | $100,000 |
Silver Spring, MD PURPOSE: Infantile Spasms Awareness Week | $32,000 |
St Paul, MN PURPOSE: 2021 Unrestricted Symposium Grant | $30,000 |
San Diego, CA PURPOSE: Infantile Spasms Awareness Week | $19,000 |
Chicago, IL PURPOSE: $5,000 2021 Parents Against Mortality in Epilepsy (PAME) Grant; $5,000 2021 Sudden Unexpected Death in Epilepsy (SUDEP) Awareness & Behavior Change Grant | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 8 grants that Child Neurology Education And Research Foundation has recieved totaling $140,916.
| Awarding Organization | Amount |
|---|---|
Band Foundation Wilmington, DE PURPOSE: SUDEP AWARENESS AND BEHAVIOR CHANGE PROGRAM | $42,500 |
Band Foundation Wilmington, DE PURPOSE: SUDEP AWARENESS AND BEHAVIOR CHANGE PROGRAM | $42,500 |
Orange County Community Foundation Newport Beach, CA PURPOSE: EDUCATION | $25,000 |
Winokur Family Foundation Inc Greenwich, CT PURPOSE: GRANT TO FURTHER DONEE'S EXEMPT PURPOSE | $15,500 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $5,127 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $5,127 |
Endowment Analysis
| Beg. Balance | $133,951 |
| Earnings | $4,974 |
| Admin Expense | $1,350 |
| Grants | $3,500 |
| Ending Balance | $134,075 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Orthopaedic Research And Education Foundation Rosemont, IL | $25,903,586 | $3,855,378 |
Child Neurology Education And Research Foundation Lexington, KY | $4,583,151 | $3,554,448 |
Mpn Research Foundation Chicago, IL | $7,764,367 | $2,570,885 |
Parkinson's Disease Research Society C/O Carol Santi Highland Park, IL | $0 | $653 |
The Orthopedic Foundation Westerville, OH | $1,329,918 | $554,191 |
Beacon Orthopaedic Research & Education Foundation Cincinnati, OH | $118,608 | $377,702 |
Foundation For Arthroplasty Research And Education Rosemont, IL | $2,262,502 | $120,077 |
Indiana Parkinson Foundation Noblesville, IN | $162,652 | $0 |
Jordan Research Foundation Virginia Beach, VA | $371,366 | $282,143 |
Tri-State Multiple Sclerosis Association Inc Evansville, IN | $1,107,999 | $140,176 |
Kenneth H Campbell Foundation For Neurological Research Cincinnati, OH | $877,414 | $129,937 |
Northwestern Arthritis & Rehabiltation Institute Chicago, IL | $19,210 | $0 |